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Providing key information and insight into the experiences of people living with a diagnosis of young onset dementia, this book will increase the knowledge and skills of health and social care professionals in the early recognition, diagnosis and support of young people with dementia and their families. The book explores the experiences of people living with a diagnosis of young onset dementia through detailed case studies, and gives learning points to implement in practice for the better provision of appropriate support and care. It explains the need for adapting services which are often designed for older people, and how the complicated diagnostic process can lead to misdiagnosis among younger people. Key issues are considered, including at-risk groups, work and dealing with potential loss of employment, changes in personal and family relationships, readjusting life expectations and plans, and social isolation.
Dr Daniel Gibbs is one of 50 million people worldwide with an Alzheimer's disease diagnosis. Unlike most patients with Alzheimer's, however, Dr Gibbs worked as a neurologist for twenty-five years, caring for patients with the very disease now affecting him. Also unusual is that Dr Gibbs had begun to suspect he had Alzheimer's several years before any official diagnosis could be made. Forewarned by genetic testing showing he carried alleles that increased the risk of developing the disease, he noticed symptoms of mild cognitive impairment long before any tests would have alerted him. In this highly personal account, Dr Gibbs documents the effect his diagnosis has had on his life and explains his advocacy for improving early recognition of Alzheimer's. Weaving clinical knowledge from decades caring for dementia patients with his personal experience of the disease, this is an optimistic tale of one man's journey with early-stage Alzheimer's disease. Soon to be a documentary film on MTV/Paramount +.
A writing couple searches for answers when Alzheimer's causes one of them to lose the place where stories come from — memory. At the age of fifty-three, Tony walks away from a life of journalism and into an unknown future. June is forty-eight, a writer and teacher, and over the following decade watches as her husband changes — in interests, goals, and behaviour — until Tony has a fall, ending the life they had known. A diagnosis is seven years away, yet the signs of Alzheimer’s are all around. A suitcase Tony packs for a trip is jammed with four umbrellas, a visual symbol of cognitive looping. But how far back do these signs go? The couple starts probing the past and finding answers. This is not an old person’s disease.
Christine Bryden was a top civil servant and single mother of three children when she was diagnosed with dementia at the age of 46. Dancing with Dementia is a vivid account of her experiences of living with dementia, exploring the effects of memory problems, loss of independence, difficulties in communication and the exhaustion of coping with simple tasks. She describes how, with the support of her husband Paul, she continues to lead an active life nevertheless, and explains how professionals and carers can help. This book is a thoughtful exploration of how dementia challenges our ideas of personal identity and of the process of self-discovery it can bring about.
How to live a full and rewarding life after a dementia diagnosis. Keith Oliver was diagnosed with young onset dementia at the age of 55. Unaware at the time that dementia could affect people of this age, Keith set out to increase public awareness of the condition and dispel the myths about the illness. Using a unique diary format, this intimate and empowering memoir captures what everyday life with dementia is like, offering both a candid look at its struggles, and a profoundly moving account of Keith's journey to live a full life afterwards.
Understanding Young Onset Dementia provides a state-of-the-art overview of approaches to care and evaluation for people with young onset dementia. It reviews the challenges in providing care and services, outlines new innovations in treatment and explores the impact of the condition to offer guidance about best practice in care. Written by world-leading researchers and experts in the field, this book gives key evidence for best practice and focuses on lived experience of those with young onset dementia. It has a broad focus looking at aspects of care beyond diagnosis and gives a comprehensive summary of the current qualitative and quantitative research in the field of young onset dementia. This international collaboration fills a much-needed gap in the academic market and is vital to guide learning and deliver future innovations. This book will be of great interest for academics, scholars and post graduate students in the field of mental health and dementia research. It will also appeal to neurologists, psychiatrist, geriatricians and psychologists looking to update their knowledge or already working in the field.
CBS News correspondent Barry Petersen tells the tender story of his wife's battle with Early Onset Alzheimer's.
Around one in 1000 younger people (under 65) in the UK are living with dementia, about one-third of whom have Alzheimer's. These conditions are sometimes misdiagnosed as stress or depression. Younger people have particular difficulties, such as work, dependent children, and financial commitments. They may be physically fit and have to deal with lack of understanding and social stigma caused by 'odd' behaviour. They may find it hard to cope with losing their faculties at such a young age. They may not know where to turn for help - or even if specialised help is available. This book will provide some of the answers.
Christine Bryden was 46 years old when she was diagnosed with dementia, and in this book she describes her remarkable emotional, physical and spiritual journey in the three years immediately following. Offering rare first-hand insights into how it feels to gradually lose the ability to undertake tasks most people take for granted, it is made all the more remarkable by Christine's positivity and strength, and deep sense, drawn in part from her Christian faith, that life continues to have purpose and meaning. Originally published in Australia in 1998, the book is brought up-to-date with a new Foreword, Preface and Appendix, in which Christine explains how the disease has progressed over the years, and how she is today. It also contains many previously unseen photographs of Christine and her family, from around the time of her diagnosis up to the present day. Inspirational and informative in equal measure, Who will I be when I die? will be of interest to other people with dementia and their families, as well as to dementia care professionals.