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Through drawings, helps children understand and learn to cope with family change when someone is very ill.
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Offering supportive, practical advice from a leading child-life specialist, this book includes information such as what to tell a child about the illness, how to recognize early-warning signs in a child's drawings, sleep patterns, schoolwork and eating habits, and when and where to get professional help. Illustrations & Calvin & Hobbes cartoons.
Every day, thousands of people receive a diagnosis of serious, life-threatening illness, and their families and friends suddenly become caregivers. Despite the best of intentions it is not always easy to communicate well under these circumstances, or find deep empathy for something one has never before experienced. When is it best to speak, and when to be silent? How can someone provide real comfort, and how can relationships with loved ones facing serious illness be enhanced in this most difficult time? This book is about how to be an encouraging caregiver and friend under the most difficult circumstances, when the possibility of death is all too real The authors believe that open dialogue must not be avoided until the last minute when opportunities will be limited, but that caregivers and loved ones can embrace this time, mortal time, honestly as a way to sensitively and compassionately engage with those for whom a central fact of life is realized--that all of our lives are time-limited. In The Art of Conversation Through Serious Illness, the authors consider how to best listen to and speak with one facing life-threatening illness, with lessons on being a primary conversation partner, becoming properly empathic and receiving empathy, maintaining everyday conversation, using platitudes appropriately, understanding healthy denial, and talking about dying. Offering bedside guidance usually only available to professionals and peppered with insightful anecdotes from the authors' own experiences, this gentle, succinct book is appropriate for anyone going through this uniquely difficult yet universal life experience.
Rev. ed. of: Handbook for mortals / Joanne Lynn, Joan Harrold, and the Center to Improve Care of the Dying, George Washington University. 1999.
In response to a request by the Health Care Financing Administration (HCFA), the Institute of Medicine proposed a study to examine definitions of serious or complex medical conditions and related issues. A seven-member committee was appointed to address these issues. Throughout the course of this study, the committee has been aware of the fact that the topic addressed by this report concerns one of the most critical issues confronting HCFA, health care plans and providers, and patients today. The Medicare+Choice regulations focus on the most vulnerable populations in need of medical care and other services-those with serious or complex medical conditions. Caring for these highly vulnerable populations poses a number of challenges. The committee believes, however, that the current state of clinical and research literature does not adequately address all of the challenges and issues relevant to the identification and care of these patients.
For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
This indispensable book about love and mental health addresses the short-term, daily problems of living with a person with mental illness, as well as long-term planning and care. Of special note are the forty-three “Quick Reference Guides” about such topics as: responding to hallucinations, delusions, violence and anger; helping your loved one comply with treatment plans and medication; deciding if the person should live at home or in a facility; choosing a doctor and dealing with mental health professionals; handling the holidays and family activities; managing stress; helping siblings and adult children with their special concerns. “Ms. Woolis produced a handbook which is both practical and accessible, eminently useful for all of us who have a family member with a serious mental illness.” –E. Fuller Torrey, M.D., author of Surviving Schizophrenia “Rebecca Woolis presents easy-to-follow practical guidelines for coping with the multitude of problems that regularly confront families. In minutes the reader can find helpful suggestions for dealing with any problem that might arise.” –Christopher S. Amenson, Ph.D., Director, Pacific Clinics East
"A down to earth and eminently practical guide for anyone affected by serious illness¿Think of this book as a bird sitting on your shoulder, reminding you to pay attention to what the patient and family say (and don't say)." - The Most Rev. Dr. Katharine Jefferts Schori, Presiding Bishop of The Episcopal Church"As an oncologist, I'm glad to have this resource for my patients and their families. As the husband of a recently diagnosed cancer patient, I'm grateful someone else has gone through this and can tell me what to expect."- David W. Miller, M.D."A must read for patients, their caregivers and the friends and family who love them." - The Rev. Elizabeth Welch, MDiv, BCCSojourn Chaplaincy at San Francisco General Hospital"This resource reminds us of the support needed by all families facing end-of-life and other critical care situations and gives guidance on how to offer support that makes a real difference." - Galen Miller, Executive Vice PresidentNational Hospice & Palliative Care Organization"A fountain of short, pithy pearls of wisdom and advice for those of us who often so inadequately attempt to find words and deeds to support our friends and family who are doing the work of care giving."- Richard Payne, M.D., Director, Duke Institute on Care at the End of Life