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Cognitive disorders take a toll on everyone—the person living with the condition, their family, friends, caregivers, and the communities they live in. Most of the public's interest has been in the medical research area for this devastating disease, and advice is desperately needed from those who have created innovative solutions with their own first-hand experience. Voices in Dementia Care is based on a series of interviews with dementia care experts across Europe and the United States and with people living day-to-day with the condition. It provides an intimate look at the challenges of delivering high-quality dementia care with limited resources. The book provides readers a list of best practices that can be adapted and applied in the home and in institutional settings. Voices in Dementia Care is a must-read for anyone caring for loved ones with Alzheimer’s, dementia, or other cognitive disorders. From Voices in Dementia Care— In these pages, we include transcripts of our interviews with the elder care and long-term care providers we have interviewed about dementia care. The voices of these care professionals are important to hear in their entirety, as they describe the nuances of the challenges inherent in delivering innovative high quality dementia care with limited resources. Based on our analysis of these interviews, we have identified the critical best practices that we believe all elder and long-term care providers should consider when delivering care to people living with dementia. These best practices can be adapted and applied by the informal caregiver as well—the sister, brother, child, or other loved one who may be responsible for caring for a person living with dementia outside of a traditional care environment.
Based on research into ten key areas relevant to dementia, this book offers practical advice and suggestions.
Offers more than fifty true stories of lives being transformed by Alzheimer's, featuring essays written by patients, family, friends, spouses, and caregivers that have been touched by the disease.
How does it feel when someone you love develops dementia? How do you cope with the shock, the stress and the grief? Can you be sure that you and your family will receive the support you need? In Telling Tales About Dementia, thirty carers from different backgrounds and in different circumstances share their experiences of caring for a parent, partner or friend with dementia. They speak from the heart about love and loss: 'I still find it hard to believe that Alzheimer's has happened to us,' writes one contributor, 'as if we were sent the wrong script.' The stories told here vividly reflect the tragedy of dementia, the gravity of loss, and instances of unsatisfactory diagnosis, treatment and care. But they contain hope and optimism too: clear indications that the quality of people's lives can be enhanced by sensitive support services, by improved understanding of the impact of dementia, by recognising the importance of valuing us all as human beings, and by embracing and sustaining the connections between us. This unique collection of personal accounts will be an engaging read for anyone affected by dementia in a personal or professional context, including relatives of people with dementia, social workers, medical practitioners and care staff.
The story of becoming a doctor, and being a son. Jerald Winakur is a doctor who cares for, and about, the elderly. Dedicated and compassionate, he's a surrogate son to many. And yet, all his years of service helping patients and their families adjust to the challenges of aging did not prepare him for becoming father to his own father, who had become as needy as any child. In Memory Lessons--a tender and provocative book--Dr. Winakur writes about what it's like to be medical counselor to countless patients, while disclosing his personal heartbreak at watching his 86-year-old father descend into disability and dementia, his mother at his side. In both of these roles--highly skilled professional and loving son--he finds he is hard pressed to alter a course that devastates his dad and tears at his family. But he does what he can. A doctor who does his best to listen carefully to each patient in turn, who attempts to confront every problem with, as he says, "a reasonable fund of knowledge, a modicum of common sense, and a large dose of honesty," Dr. Winakur knows that there is much we can do by loving and listening. We all search for answers; we all want to do the right thing for our parents, but few of us know what that right thing is. Faced with caring for a growing sea of elders, Dr. Winakur reflects on his thirty years in the medical profession to consider the very personal and immediate questions asked by families every day: What are we going to do with Dad? Who will care for him--and how? These are urgent questions, and they're faced head-on in Memory Lessons with unflinching honesty, hope, and, above all, love.
The physical care of people with dementia is of vital importance, but so too is their emotional, social, mental and spiritual wellbeing. The creative arts are gaining increasing recognition not only as a tool for delivering effective person-centred dementia care, but also for attending to soul as well as body. Encouraging those who care for people with dementia to develop their own creative skills, this book provides a creative map of care with easy-to-follow examples and detailed case studies. After explaining why adopting a creative approach is central to effective dementia care, the authors go on to discuss meditation, singing, movement and storytelling, describing the therapeutic benefits of each and giving practical examples of how they can be used with individuals or groups. They also look at the importance of creative supervision in promoting creativity and creating a safe space for honest interpersonal connection: an essential foundation for effective teamwork. This book will be an invaluable resource for anyone involved in the care of a person with dementia, including professional staff in residential and nursing homes, hospitals and day centres, families and other non-professional carers.
This open access book outlines the challenges of supporting the health and wellbeing of older adults around the world and offers examples of solutions designed by stakeholders, healthcare providers, and public, private and nonprofit organizations in the United States. The solutions presented address challenges including: providing person-centered long-term care, making palliative care accessible in all healthcare settings and the home, enabling aging-in-place, financing long-term care, improving care coordination and access to care, delivering hospital-level and emergency care in the home and retirement community settings, merging health and social care, supporting people living with dementia and their caregivers, creating communities and employment opportunities that are accessible and welcoming to those of all ages and abilities, and combating the stigma of aging. The innovative programs of support and care in Aging Well serve as models of excellence that, when put into action, move health spending toward a sustainable path and greatly contribute to the well-being of older adults.
This book offers an accessible and sympathetic introduction for relatives, carers and professionals looking after or training to work with people with dementia. Drawing on the two `laws of dementia', the author explains the causes of communication problems, mood disturbances and `deviant' behaviours, with particular emphasis on how these are experienced by dementia sufferers themselves. Case examples demonstrate the typical symptoms and progression of dementia, and clear guidance is provided on how to support dementia sufferers at every stage and help them deal with the challenges posed by their condition. Relatives and carers will find this book a source of essential information and encouragement to deal confidently with the difficulties posed by the condition both for people with dementia and those around them.
Explains the history of the rodeo, important rodeo figures, and different kinds of rodeos.
If you are facing the unique challenges of caring for a parent with dementia, you are not alone. What do you do when your loved one so plainly needs assistance, but is confused, angry, or resistant to your help? Where can you find the vital information you need, when you need it? Journalist Thomas Harrison and leading geriatric psychiatrist Brent Forester show that you don’t have to be a medical expert to be a good care provider in this authoritative guide. They explain the basics of dementia and offer effective strategies for coping with the medical, emotional, and financial toll. With the right skills, you can navigate changing family roles, communicate better with your parent, keep him or her safe, and manage difficult behaviors. Learn how to "care smarter, not harder"--and help your loved one maintain the best possible quality of life. Winner (Second Place)--American Journal of Nursing Book of the Year Award, Consumer Health Category Winner (Third Place)--Foreword INDIES Book of the Year Award, Family & Relationships Category