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Bringing together the human story of care with its representation in film, fiction and memoir, this book combines an analysis of care narratives to inform and inspire ideas about this major role in life. Alongside analysis of narratives drawn from literature and film, the author sensitively interweaves the story of his wife's illness and care to illuminate perspectives on dealing with human decline. Examining texts from a diverse range of authors such as Leo Tolstoy, Edith Wharton and Alice Munro, and filmmakers such as Ingmar Bergman and Michael Haneke, it addresses questions such as why caregiving is a dangerous activity, the ethical problems of writing about caregiving, the challenges of reading about caregiving, and why caregiving is so important. It serves as a fire starter on the subject of how we can gain insight into the challenges and opportunities of caregiving through the creative arts.
Bringing together the human story of care with its representation in film, fiction and memoir, this book combines an analysis of care narratives to inform and inspire ideas about this major role in life. Alongside analysis of narratives drawn from literature and film, the author sensitively interweaves the story of his wife's illness and care to illuminate perspectives on dealing with human decline. Examining texts from a diverse range of authors such as Leo Tolstoy, Edith Wharton and Alice Munro, and filmmakers such as Ingmar Bergman and Michael Haneke, it addresses questions such as why caregiving is a dangerous activity, the ethical problems of writing about caregiving, the challenges of reading about caregiving, and why caregiving is so important. It serves as a fire starter on the subject of how we can gain insight into the challenges and opportunities of caregiving through the creative arts.
From the critically acclaimed author of This Burns My Heart comes a “luminous mother-daughter saga” (Entertainment Weekly) about a young woman who is forced to flee 1980s Brazil for California, and in doing so unearths the hidden life of her enigmatic mother. Mara Alencar’s mother Ana is her moon, her sun, her stars. Ana, a struggling voice-over actress, is an admirably brave and recklessly impulsive woman who does everything in her power to care for her little girl in perilous 1980s Rio de Janeiro. With no other family or friends her own age, Ana eclipses Mara’s entire world. They take turns caring for each other—in ways big and small. But who is Ana, really? As she grows older, Mara slowly begins to piece together the many facets of Ana’s complicated life—a mother, a rebel, and always, an actress. When Ana becomes involved with a civilian rebel group attempting to undermine the city’s cruel Police Chief, their fragile arrangement begins to unravel. Mara is forced to flee the only home she’s ever known, for California, where she lives as an undocumented immigrant, caregiving for a dying woman. It’s here that she begins to grapple with her turbulent past and starts to uncover vital truths—about her mother, herself, and what it means to truly take care of someone. A “lovely and heartbreaking” (People) story that is “simultaneously dreamlike and visceral” (The Atlantic), The Caregiver is “a beautiful testament to Samuel Park’s extraordinary talents as a storyteller…that reads, in some moments, like a thriller—and, in others, like a meditation on what it means to be alive…A ferocious page-turner with deep wells of compassion for the struggles of the living—and the sins of the dead” (Kirkus Reviews, starred review).
Mark and Giulia's life together began as a storybook romance. They fell in love at eighteen, married at twenty-four, and were living their dream life in San Francisco. When Giulia was twenty-seven, she suffered a terrifying and unexpected psychotic break that landed her in the psych ward for nearly a month. One day she was vibrant and well-adjusted; the next she was delusional and suicidal, convinced that she was the devil and that her loved ones were not safe. All she wanted was to die. Eventually, Giulia fully recovered, and the couple had a son. But, soon after Jonas was born, Giulia had another breakdown, and then a third a few years after that. pushed to the edge of the abyss, everything the couple had once taken for granted was upended. A story of the fragility of the mind, and the tenacity of the human spirit, My Lovely Wife is, above all, a love story that raises profound questions: How do we care for the people we love? What and who do we live for? Breathtaking in its candor, radiant with compassion, and written with dazzling lyricism, Lukach's is an intensely personal odyssey through the harrowing years of his wife's mental illness, anchored by an abiding devotion to family that will affirm readers' faith in the power of love.
#1 New York Times Bestseller 2014 NATIONAL BOOK AWARD FINALIST In her first memoir, New Yorker cartoonist Roz Chast brings her signature wit to the topic of aging parents. Spanning the last several years of their lives and told through four-color cartoons, family photos, and documents, and a narrative as rife with laughs as it is with tears, Chast's memoir is both comfort and comic relief for anyone experiencing the life-altering loss of elderly parents. When it came to her elderly mother and father, Roz held to the practices of denial, avoidance, and distraction. But when Elizabeth Chast climbed a ladder to locate an old souvenir from the “crazy closet”-with predictable results-the tools that had served Roz well through her parents' seventies, eighties, and into their early nineties could no longer be deployed. While the particulars are Chast-ian in their idiosyncrasies-an anxious father who had relied heavily on his wife for stability as he slipped into dementia and a former assistant principal mother whose overbearing personality had sidelined Roz for decades-the themes are universal: adult children accepting a parental role; aging and unstable parents leaving a family home for an institution; dealing with uncomfortable physical intimacies; managing logistics; and hiring strangers to provide the most personal care. An amazing portrait of two lives at their end and an only child coping as best she can, Can't We Talk about Something More Pleasant will show the full range of Roz Chast's talent as cartoonist and storyteller.
A rich, penetrating memoir about the author's relationship with a flawed but influential figure—the painter Lucian Freud—and the satisfactions and struggles of a life lived through art. One of Britain's most important contemporary painters, Celia Paul has written a reflective, intimate memoir of her life as an artist. Self-Portrait tells the artist's story in her own words, drawn from early journal entries as well as memory, of her childhood in India and her days as a art student at London's Slade School of Fine Art; of her intense decades-long relationship with the older esteemed painter Lucian Freud and the birth of their son; of the challenges of motherhood, the unresolvable conflict between caring for a child and remaining commited to art; of the "invisible skeins between people," the profound familial connections Paul communicates through her paintings of her mother and sisters; and finally, of the mystical presence in her own solitary vision of the world around her. Self-Portrait is a powerful, liberating evocation of a life and of a life-long dedication to art.
The Accidental Caregiver stage production currently in development When thirty-two-year-old actor Gregor Collins reluctantly interviewed for a job as a caregiver more out of a favor to a friend - he had no idea his life was about to change forever. Seconds into a chance meeting in 2008 with, it would turn out, a world-renowned Holocaust refugee named Maria Altmann, there was an unexplainable magic in the air - it felt as if they had already met. And Collins was suddenly thrown into a situation with which he had never before been confronted: caring for someone other than himself. Gregor offers us a personal and unprecedented look at Maria over the three intimate years he cared for her - her thrilling escape from the Nazis, her fight and subsequent win in the landmark Supreme Court Case to return original Gustav Klimt artwork that belonged to her family in Austria, and the extraordinary people she met along the way. But the real heart of the story transcends mere historical fact. Through a refreshingly raw portrayal of their unlikely and unbreakable bond, imbued with humorous, candid anecdotes about his mercurial relationship with Hollywood, Gregor takes us on a deeply emotional journey of how he opened up his heart to a 92-year-old woman in need - and in turn experienced the love he had been searching for his entire life.
In The Revised Fundamentals of Caregiving (releasing June 24, 2016 as a Netflix Original Film titled The Fundamentals of Caring, starring Paul Rudd and Selena Gomez), Jonathan Evison, author of the new novel This Is Your Life, Harriet Chance! and the New York Times bestseller West of Here, has crafted a novel of the heart, a story of unlikely heroes in a grand American landscape. For Ben Benjamin, all has been lost--his wife, his family, his home, his livelihood. Hoping to find a new direction, he enrolls in a night class called The Fundamentals of Caregiving, where he will learn to take care of people with disabilities. He is instructed about professionalism, about how to keep an emotional distance between client and provider, and about the art of inserting catheters while avoiding liability. But when Ben is assigned his first client--a tyrannical nineteen-year-old boy named Trevor, who is in the advanced stages of Duchenne muscular dystrophy--he soon discovers that the endless service checklists have done nothing to prepare him for the reality of caring for a fiercely stubborn, sexually frustrated teenager who has an ax to grind with the whole world. Over time, the relationship between Ben and Trev, which had begun with mutual misgivings, evolves into a close friendship, and the traditional boundaries between patient and caregiver begin to blur. The bond between them strengthens as they embark on a road trip to visit Trev’s ailing father--a journey rerouted by a series of bizarre roadside attractions that propel them into an impulsive adventure disrupted by one birth, two arrests, a freakish dust storm, and a six-hundred-mile cat-and-mouse pursuit by a mysterious brown Buick Skylark. By the end of that journey, Trev has had his first taste of love, and Ben has found a new reason to love life. Bursting with energy and filled with moments of absolute beauty, this big-hearted and inspired novel ponders life’s terrible surprises as well as what it takes to truly care for another human being.
A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.
Elder Rage, or Take My Father... Please: How to Survive Caring for Aging Parents--is a riveting true story as well as an extensive self-help book, with solutions for effective management, medically and behaviorally, of challenging elders who resist care. Jacqueline Marcell's poignant and often-humorous story of caring for her challenging elderly father and sweet but frail mother, addresses issues like how to get an obstinate elder to: give up driving, accept a caregiver, see a different doctor, take medication, go to adult day care, move to a new residence, etc. Includes: Behavior Modification Guidelines, 25 Q&A's=How Do I Handle My Elderly Loved One Who...?, Long-Term Care Insurance, Ten Warning Signs of Alzheimer's, How is Alzheimer's Diagnosed, Three Stages of Alzheimer's, Startling Statistics, Other Diseases That Act Like Alzheimer's, Jacqueline's Top Ten Recommendations, Hope For The Future, The Search for the Cure, Valuable Resources, Recommended Reading. Internationally known dementia specialist, Rodman Shankle, MS MD, contributes the Addendum: A Physician's Guide to Treating Dementia. Over 50 endorsements include: Hugh Downs, Regis Philbin, Dr. Dean Edell, Duke University Center for Aging, Dr. Nancy Snyderman/ABC News, Leeza Gibbons, Senator John D. Rockefeller IV, Rudy Tanzi/Harvard Medical School, and The Johns Hopkins Memory Clinic. http://www.elderrage.com