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This practical guide offers invaluable and sensitive advice for all who work alongside terminally ill children, their families and families who have been bereaved. Paul Nash helpfully describes the different types of care that are needed depending on the age of the child - from baby to teenager - and on the particular needs of the child's family. He also provides resources to help with remembering and celebrating the life of a child, including rituals that can be used in preparation for death, at the time of death and at funeral or memorial services.
The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.
Winner of the Margaret Mead Award A classic, moving study of terminally ill children that emphasizes their agency and shows how we can relate to dying children more honestly “The death of a child,” writes Myra Bluebond-Langner, “poignantly underlines the impact of social and cultural factors on the way that we die and the way that we permit others to die.” In a moving drama constructed from her observations of leukemic children, aged three to nine, in a hospital ward, she shows how the children come to know they are dying, how and why they attempt to conceal this knowledge from their parents and the medical staff, and how these adults in turn try to conceal from the children their awareness of the child’s impending death. In contrast to many parents, doctors, nurses, and social scientists who regard the children as passive recipients of adult actions, Bluebond-Langner emphasizes the children’s role in initiating and maintaining the social order. Her sensitive and stirring portrait shows the children to be willful, purposeful individuals capable of creating their own worlds. The result suggests better ways of relating to dying children and enriches our understanding of the ritual behavior surrounding death.
This heartwarming classic picture book by beloved children’s book author Margaret Wise Brown is beautifully reillustrated for a contemporary audience by the critically acclaimed, award-winning illustrator Christian Robinson. One day, the children find a bird lying on its side with its eyes closed and no heartbeat. They are very sorry, so they decide to say good-bye. In the park, they dig a hole for the bird and cover it with warm sweet-ferns and flowers. Finally, they sing sweet songs to send the little bird on its way.
Confident Parents, Confident Kids lays out an approach for helping parents—and the kids they love—hone their emotional intelligence so that they can make wise choices, connect and communicate well with others (even when patience is thin), and become socially conscious and confident human beings. How do we raise a happy, confident kid? And how can we be confident that our parenting is preparing our child for success? Our confidence develops from understanding and having a mastery over our emotions (aka emotional intelligence)—and helping our children do the same. Like learning to play a musical instrument, we can fine-tune our ability to skillfully react to those crazy, wonderful, big feelings that naturally arise from our child’s constant growth and changes, moving from chaos to harmony. We want our children to trust that they can conquer any challenge with hard work and persistence; that they can love boundlessly; that they will find their unique sense of purpose; and they will act wisely in a complex world. This book shows you how. With author and educator Jennifer Miller as your supportive guide, you'll learn: the lies we’ve been told about emotions, how they shape our choices, and how we can reshape our parenting decisions in better alignment with our deepest values. how to identify the temperaments your child was born with so you can support those tendencies rather than fight them. how to align your biggest hopes and dreams for your kids with specific skills that can be practiced, along with new research to support those powerful connections. about each age and stage your child goes through and the range of learning opportunities available. how to identify and manage those big emotions (that only the parenting process can bring out in us!) and how to model emotional intelligence for your children. how to deal with the emotions and influences of your choir—the many outside individuals and communities who directly impact your child’s life, including school, the digital world, extended family, neighbors, and friends. Raising confident, centered, happy kids—while feeling the same way about yourself—is possible with Confident Parents, Confident Kids.
For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
Explains that different plants and animals have different lifespans and grow up at different rates
Children and Their Families: The Continuum of Care provides a unique interdisciplinary perspective that underscores the nurse's role in planning, coordinating, and working with all members of a pediatric health care team. It shows students how to make critical judgments and assessments to manage the care of children in a variety of community settings, including homes, schools, and medical centers. From infancy through adolescence, this text thoroughly covers the health promotion, surveillance, and maintenance needs of children. In this edition, threaded case studies follow a community of pediatric clients and continue throughout the chapter to show the interrelated dynamics of pediatric nursing care. A companion Website includes journal articles, NCLEX®-style chapter review questions, a Spanish-English audio glossary, Watch and Learn videos, a fluids and electrolytes tutorial, and much more.
What do you need to know in order to provide the best possible care for sick children of different faiths? What, in the context of the young person's faith, might it be helpful to know to support the child and the family, improve care, communicate sensitively and avoid causing offence? Drawing on extensive, evidence-based research and practice, this practical resource addresses the multi-faith needs of sick and dying children and young people in hospitals and the wider community. Covering Islam, Christianity, Hinduism, Sikhism, Judaism and Buddhism, it provides the key information needed to help multi-disciplinary healthcare staff offer the best, culturally-appropriate care to sick children and their families. The book discusses daily, palliative, end of life and bereavement care in a range of settings, including hospitals, hospices, schools and home. The information provided covers those aspects of the religions discussed that are essential for healthcare staff to understand, including modesty and hygiene, taboos, food and prohibited products, age-related issues, sacred objects, visitors, and the expectations of the family. It includes important information on the issues of disability and mental health in each faith as well as addressing the significance within different faith traditions of the transitions from childhood to adolescence to adulthood. A comprehensive resource that uniquely focuses on the care needs of sick children from different faiths, this book will be of immeasurable value to multi-disciplinary healthcare professionals including doctors, nurses, bereavement support and palliative care workers, carers, counsellors, chaplains and arts therapists.
In our society's aggressive pursuit of cures for cancer, we have neglected symptom control and comfort care. Less than one percent of the National Cancer Institute's budget is spent on any aspect of palliative care research or education, despite the half million people who die of cancer each year and the larger number living with cancer and its symptoms. Improving Palliative Care for Cancer examines the barriersâ€"scientific, policy, and socialâ€"that keep those in need from getting good palliative care. It goes on to recommend public- and private-sector actions that would lead to the development of more effective palliative interventions; better information about currently used interventions; and greater knowledge about, and access to, palliative care for all those with cancer who would benefit from it.