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Health and illness are storied experiences that necessarily entail personal, cultural, and political complexities. For all of us, communicating about health and illness requires a continuous negotiation of these complexities and a delicate balance between what we learn about the biology of disease from providers and our own very personal, subjective experiences of being ill. Storied Health and Illness brings together dozens of noteworthy scholars, both established and emerging, in a provocative collection that embraces narrative ways of knowing to think about, analyze, and reconsider our own and others’ health beliefs, behaviors, and communication. Comprehensive content reflects the editors’ substantial research in integrative health, narrative care, and innovative ways of improving well-being and quality of life in personal relationships, healthcare, the workplace, and community settings. Unique narrative approaches to the study of health communication include: • 14 chapters written by 22 contributors who use engaging stories from their own research or personal experience to introduce and ground foundational communication concepts in healthcare, health promotion, community support, organizational wellness, and other health-related sites of interest. • Compelling stories of individuals living with the inherent challenges and unexpected opportunities of mental illness, addiction, aging, cancer, dialysis, sexual harassment, miscarriage, obesity, alopecia, breastfeeding, health threats to immigrant workers, developmental differences, and youth gun violence. • 36 Health Communication in Action (HCIA) sidebars that highlight applied research of innovative health communication scholars in their own words and then prompt readers to think more deeply about their own perspectives and experiences. • Theorizing Practice boxes that encourage readers to reflect on stories that describe significant experiences in their own and others’ lives as they consider assumptions and enlarge their viewpoints in previously unimagined ways.
Our personalities and our identities are intimately bound up with the stories that we tell to organize and to make sense of our lives. To understand the human meaning of illness, we therefore must turn to the stories we tell about illness, suffering, and medical care. Stories of Sickness explores the many dimensions of what illness means to the sufferers and to those around them, drawing on depictions of illness in great works of literature and in nonfiction accounts. The exploration is primarily philosophical but incorporates approaches from literature and from the medical social sciences. When it was first published in 1987, Stories of Sickness helped to inaugurate a renewed interest in the importance of narrative studies in health care. For the Second Edition the text has been thoroughly revised and significantly expanded. Four almost entirely new chapters have been added on the nature, complexities, and rigor of narrative ethics and how it is carried out. There is also an additional chapter on maladaptive ways of being sick that deals in greater depth with disability issues. Health care professionals, students of medicine and bioethics, and ordinary people coping with illness, no less than scholars in the health care humanities and social sciences, will find much value in this volume. Unique Features: *Philosophically sophisticated yet clearly written and easily accessible *Interdisciplinary approach--combines philosophy, literature, health care, social sciences *Contains many fascinating stories and vignettes of illness drawn from both fiction and nonfiction *A new and comprehensive overview of the "hot topic" of narrative ethics in medicine and health care
A New York Times Notable Book of the Year: “Unforgettable . . . Few have told such a compelling life-story as skillfully” (San Francisco Chronicle). In the summer of 1992, on the eve of an American tour, singer/songwriter Ben Watt, one half of the Billboard-topping pop duo Everything But The Girl, was taken to a London hospital complaining of chest pain. As his condition worsened, doctors were baffled. He was eventually he was diagnosed with a rare life-threatening autoimmune disease called Churg-Strauss Syndrome. “To paraphrase Joseph Heller,” Ben says, “you know it’s something serious when they name it after two guys.” By the time he came home, two-and-half-months later, his ravaged body was forty-six pounds lighter, and he was missing most of his small intestine. “Unfold[ing] like a page-turning mystery” (The Los Angeles Times), and “told with great wit and without self-pity, Patient is a sobering look at how life can suddenly be transformed into a humbling vaudeville of tests, IV’s, catheters, and bedpans” (The New York Times Book Review). Injecting a frankness and natural humility into his “funny, frightening, and piercingly vulnerable” (Interview) chronicle of a medical nightmare, Ben writes about his childhood, reflects on family, and his shared life with band member and partner, Tracey Thorn. The result is “a vivid, finely wrought look at having one’s future yanked away, and surviving physically and emotionally” (Dallas Morning Star-Telegram). A Sunday Times Book of the Year A Village Voice Favorite Book of the Year An Esquire (UK) Best Non-Fiction Award Finalist
Narrative medicine emerged in response to a commodified health care system that places corporate and bureaucratic concerns over the needs of the patient. This book provides an introduction to the principles of narrative medicine and guidance for implementing narrative methods.
A neurologist explores the very real world of psychosomatic illness. Most of us accept the way our heart flutters when we set eyes on the one we secretly admire, or the sweat on our brow as we start the presentation we do not want to give. But few of us are fully aware of how dramatic our body's reactions to emotions can sometimes be. Take Pauline, who first became ill when she was fifteen. What seemed at first to be a urinary infection became joint pain, then food intolerances, then life-threatening appendicitis. And then one day, after a routine operation, Pauline lost all the strength in her legs. Shortly after that her convulsions started. But Pauline's tests are normal; her symptoms seem to have no physical cause whatsoever. Pauline may be an extreme case, but she is by no means alone. As many as a third of men and women visiting their GP have symptoms that are medically unexplained. In most, an emotional root is suspected and yet, when it comes to a diagnosis, this is the very last thing we want to hear, and the last thing doctors want to say. In It's All in Your Head consultant neurologist Dr Suzanne O'Sullivan takes us on a journey through the very real world of psychosomatic illness. She takes us from the extreme -- from paralysis, seizures and blindness -- to more everyday problems such as tiredness and pain. Meeting her patients, she encourages us to look deep inside the human condition. There we find the secrets we are all capable of keeping from ourselves, and our age-old failure to credit the intimate and extraordinary connection between mind and body.
This comprehensive book celebrates the coming of age of narrativein health care. It uses narrative to go beyond the patient's storyand address social, cultural, ethical, psychological,organizational and linguistic issues. This book has been written to help health professionals andsocial scientists to use narrative more effectively in theireveryday work and writing. The book is split into three, comprehensive sections;Narratives, Counter-narratives and Meta-narratives.
A collection of women's illness narratives Stories of Illness and Healing is the first collection to place the voices of women experiencing illness alongside analytical writing from prominent scholars in the field of narrative medicine. The collection includes a variety of women's illness narratives--poetry, essays, short fiction, short drama, analyses, and transcribed oral testimonies--as well as traditional analytic essays about themes and issues raised by the narratives. Stories of Illness and Healing bridges the artificial divide between women's lives and scholarship in gender, health, and medicine. The authors of these narratives are diverse in age, ethnicity, family situation, sexual orientation, and economic status. They are doctors, patients, spouses, mothers, daughters, activists, writers, educators, and performers. The narratives serve to acknowledge that women's illness experiences are more than their diseases, that they encompass their entire lives. The pages of this book echo with personal accounts of illness, diagnosis, and treatment. They reflect the social constructions of women's bodies, their experiences of sexuality and reproduction, and their roles as professional and family caregivers. Finally, and perhaps most importantly, Stories of Illness and Healing draws the connection between women's suffering and advocacy for women's lives.
Updated second edition: “A bold and imaginative book which moves our thinking about narratives of illness in new directions.” —Sociology of Heath and Illness Since it was first published in 1995, The Wounded Storyteller has occupied a unique place in the body of work on illness. A collective portrait of a so-called “remission society” of those who suffer from illness or disability, as well as a cogent analysis of their stories within a larger framework of narrative theory, Arthur W. Frank’s book has reached a large and diverse readership including the ill, medical professionals, and scholars of literary theory. Drawing on the work of such authors as Oliver Sacks, Anatole Broyard, Norman Cousins, and Audre Lorde, as well as from people he met during the years he spent among different illness groups, Frank recounts a stirring collection of illness stories, ranging from the well-known—Gilda Radner’s battle with ovarian cancer—to the private testimonials of people with cancer, chronic fatigue syndrome, and disabilities. Their stories are more than accounts of personal suffering: They abound with moral choices and point to a social ethic. In this new edition Frank adds a preface describing the personal and cultural times when the first edition was written. His new afterword extends the book’s argument significantly, discussing storytelling and experience, other modes of illness narration, and a version of hope that is both realistic and aspirational. Reflecting on his own life during the creation of the first edition and the conclusions of the book itself, he reminds us of the power of storytelling as way to understand our own suffering. “Arthur W. Frank’s second edition of The Wounded Storyteller provides instructions for use of this now-classic text in the study of illness narratives.” —Rita Charon, author of Narrative Medicine “Frank sees the value of illness narratives not so much in solving clinical conundrums as in addressing the question of how to live a good life.” —Christianity Today
A riveting exploration of the most difficult and important part of what doctors do, by Yale School of Medicine physician Dr. Lisa Sanders, author of the monthly New York Times Magazine column "Diagnosis," the inspiration for the hit Fox TV series House, M.D. "The experience of being ill can be like waking up in a foreign country. Life, as you formerly knew it, is on hold while you travel through this other world as unknown as it is unexpected. When I see patients in the hospital or in my office who are suddenly, surprisingly ill, what they really want to know is, ‘What is wrong with me?’ They want a road map that will help them manage their new surroundings. The ability to give this unnerving and unfamiliar place a name, to know it—on some level—restores a measure of control, independent of whether or not that diagnosis comes attached to a cure. Because, even today, a diagnosis is frequently all a good doctor has to offer." A healthy young man suddenly loses his memory—making him unable to remember the events of each passing hour. Two patients diagnosed with Lyme disease improve after antibiotic treatment—only to have their symptoms mysteriously return. A young woman lies dying in the ICU—bleeding, jaundiced, incoherent—and none of her doctors know what is killing her. In Every Patient Tells a Story, Dr. Lisa Sanders takes us bedside to witness the process of solving these and other diagnostic dilemmas, providing a firsthand account of the expertise and intuition that lead a doctor to make the right diagnosis. Never in human history have doctors had the knowledge, the tools, and the skills that they have today to diagnose illness and disease. And yet mistakes are made, diagnoses missed, symptoms or tests misunderstood. In this high-tech world of modern medicine, Sanders shows us that knowledge, while essential, is not sufficient to unravel the complexities of illness. She presents an unflinching look inside the detective story that marks nearly every illness—the diagnosis—revealing the combination of uncertainty and intrigue that doctors face when confronting patients who are sick or dying. Through dramatic stories of patients with baffling symptoms, Sanders portrays the absolute necessity and surprising difficulties of getting the patient’s story, the challenges of the physical exam, the pitfalls of doctor-to-doctor communication, the vagaries of tests, and the near calamity of diagnostic errors. In Every Patient Tells a Story, Dr. Sanders chronicles the real-life drama of doctors solving these difficult medical mysteries that not only illustrate the art and science of diagnosis, but often save the patients’ lives.