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Winner of the 2012 AJN (American Journal of Nursing) Book of the Year Award in the Hospice and Palliative Care category In the 1960s, English physician and committed Christian Cicely Saunders introduced a new way of treating the terminally ill that she called "hospice care." Emphasizing a holistic and compassionate approach, her model led to the rapid growth of a worldwide hospice movement. Aspects of the early hospice model that stressed attention to the religious dimensions of death and dying, while still recognized and practiced, have developed outside the purview of academic inquiry and consideration. Meanwhile, global migration and multicultural diversification in the West have dramatically altered the profile of contemporary hospice care. In response to these developments, this volume is the first to critically explore how religious understandings of death are manifested and experienced in palliative care settings. Contributors discuss how a "good death" is conceived within the major religious traditions of Christianity, Islam, Hinduism, Judaism, Buddhism, Chinese religion, and Aboriginal spirituality. A variety of real-world examples are presented in case studies of a Buddhist hospice center in Thailand, Ugandan approaches to dying with HIV/AIDS, Punjabi extended-family hospice care, and pediatric palliative care. The work sheds new light on the significance of religious belief and practice at the end of life, at the many forms religious understanding can take, and at the spiritual pain that so often accompanies the physical pain of the dying person.
Explores the end-of-life spiritual needs of people who do not identify with traditional religions. This groundbreaking book addresses the spiritual aspect of hospice care for those who do not fit easily within traditional religious beliefs and categories. A companion volume to Religious Understandings of a Good Death in Hospice Palliative Care, this work also advocates for renewed attention to the spiritual, the often overlooked element of hospice care. Drawing on data from clinical case studies, new sociological research, and the perspectives of agnostics, atheists, those who emphasize the spiritual rather than institutional dimensions of a traditional religion, and the rapidly growing cohort of those who describe themselves as spiritual-but-not-religious, the contributors to this volume interpret the shift from predominantly Christian-based pastoral services to a new approach to “the spiritual” shaped by the increasing diversity of Western societies and new understandings of the nature of secular society. How do we use it in a way that enables caregivers to assist patients? Clinicians and policy makers will appreciate the book’s practical recommendations regarding staff roles, training, and resource allocation. General readers will be moved by the persuasive call for greater religious and spiritual literacy at every level of health care in order to respond to the full spectrum of human needs in life and in death.
Finding Dignity at the End of Life discusses the need for palliative care as a human right and explores a whole-person methodology for use in treatment. The book examines the concept of palliative care as a holistic human right from the perspective of multiple aspects of faith, ideology, culture, and nationality. Integrating a humanities-based approach, chapters provide detailed discussions of spirituality, suffering, and healing from scholars from around the world. Within each chapter, the authors address a different cultural and religious focus by examining how this topic relates to questions of inherent dignity, both ethically and theologically, and how different spiritual lenses may inform our interpretation of medical outcomes. Mental health practitioners, allied professionals, and theologians will find this a useful and reflective guide to palliative care and its connection to faith, spirituality, and culture.
This book is an exploration of issues that are essential in end of life care. Understanding end of life practices across cultures and religions is important in the delivery of patient centered end of life care. This book helps clinicians and non-clinicians understand the various end of life practices in their vast patient populations, further contributing to providing empathetic and compassionate end of life care to patients. With the advent of many new options at the end of life, this book also explores the modern day approaches to end of life often sought by patients when faced with disease progression and adversity.
Sociological and Spiritual Aspects of Palliative Care in Ireland : Understandings of a Good Death
Few issues apply universally to people as poignantly as death and dying. All religions address concerns with death from the handling of human remains, to defining death, to suggesting what happens after life. The Routledge Companion to Death and Dying provides readers with an overview of the study of death and dying. Questions of death, mortality, and more recently of end-of-life care, have long been important ones and scholars from a range of fields have approached the topic in a number of ways. Comprising over fifty-two chapters from a team of international contributors, the companion covers: funerary and mourning practices; concepts of the afterlife; psychical issues associated with death and dying; clinical and ethical issues; philosophical issues; death and dying as represented in popular culture. This comprehensive collection of essays will bring together perspectives from fields as diverse as history, philosophy, literature, psychology, archaeology and religious studies, while including various religious traditions, including established religions like Christianity, Judaism, Islam, Hinduism, and Buddhism as well as new or less widely known traditions such as the Spiritualist Movement, the Church of Latter Day Saints, and Raëlianism. The Routledge Companion to Death and Dying is essential reading for students and researchers in religious studies, philosophy and literature.
Following the death of her father, journalist and hospice volunteer Ann Neumann sets out to examine what it means to die well in the United States. When Ann Neumann’s father was diagnosed with non-Hodgkin’s lymphoma, she left her job and moved back to her hometown of Lancaster, Pennsylvania. She became his full-time caregiver—cooking, cleaning, and administering medications. When her father died, she was undone by the experience, by grief and the visceral quality of dying. Neumann struggled to put her life back in order and found herself haunted by a question: Was her father’s death a good death? The way we talk about dying and the way we actually die are two very different things, she discovered, and many of us are shielded from what death actually looks like. To gain a better understanding, Neumann became a hospice volunteer and set out to discover what a good death is today. She attended conferences, academic lectures, and grief sessions in church basements. She went to Montana to talk with the attorney who successfully argued for the legalization of aid in dying, and to Scranton, Pennsylvania, to listen to “pro-life” groups who believe the removal of feeding tubes from some patients is tantamount to murder. Above all, she listened to the stories of those who were close to death. What Neumann found is that death in contemporary America is much more complicated than we think. Medical technologies and increased life expectancies have changed the very definition of medical death. And although death is our common fate, it is also a divisive issue that we all experience differently. What constitutes a good death is unique to each of us, depending on our age, race, economic status, culture, and beliefs. What’s more, differing concepts of choice, autonomy, and consent make death a contested landscape, governed by social, medical, legal, and religious systems. In these pages, Neumann brings us intimate portraits of the nurses, patients, bishops, bioethicists, and activists who are shaping the way we die. The Good Death presents a fearless examination of how we approach death, and how those of us close to dying loved ones live in death’s wake.
Listening carefully to patients at the end of life is at the heart of good palliative care and this book provides a means of recognizing and talking about spiritual needs even when religious language is not used. The author refers to this as a 'language of spirit'. The book is based on interviews with patients who are dying and the language that they use to describe their experiences. It deals with death, dying, the experiences of patients and the relief of spiritual pain by looking closely at patient stories, drawings and behaviour. The book explains why it is often easier to recognize than to explain spiritual issues. Part One explores the psychological, spiritual and theological interpretations of human experience. A detailed account is given of how the patients' own stories were collected. Drawing on a broad literature which is grounded in patients' words and deeds, Part Two introduces a non-religious 'language of spirit'. Illuminated by patient art, Part Three shows what patients use this language to 'say' about their situation and how it is mediated through various metaphors. Part Four suggests ways of responding positively to patients' spiritual needs. Aimed primarily at palliative care specialists and specialist nurses, this book will also appeal to health care chaplains, pastoral support workers, theologians, social researchers, and psychotherapists. 'The numerous illustrations, given by patients comments as they tell their story, make this book a truly fascinating journey through an important area of end of life care.' Dame Cicely Saunders, OM, DBE, FRCP, Founder/President, St Christopher's Hospice, London 'The emphasis on allowing patients to speak for themselves is striking... the author has presented the topic in a sensitive and refreshing way... I think this book will be well-received and it will be an important contribution to the literature of palliative care.' Dr Odette Spruyt, Head of Pain and Palliative Care Department, Peter MacCallum Cancer Institute, East Melbourne, Australia
The World of Hospice Spiritual Care: A Practical Guide for Palliative Care Chaplains offers a comprehensive study of spiritual care in hospice. Dr. Sullivan's ability to express the role of the spiritual counselor in creative and insightful ways is refreshing. Chaplains serve in interdisciplinary teams to relieve pain and suffering and to improve patients' quality of life. Members of hospice teams must have specialized knowledge in their area of expertise. Hospice chaplains must be familiar with other areas of hospice work and their functions because hospice care components interrelate. Working in the hospice environment offers tremendous satisfaction and challenges. Doug skillfully addresses those challenges and equips chaplains to allow God's presence to shine through them as they minister effectively in palliative care outreaches. This practical guide examines hospice movement history, philosophy and concepts of care, program models, and interdisciplinary teams. Then Dr. Sullivan discusses the psychosocial and spiritual aspects of pain; spiritual assessments and spiritual care plans; the role of spiritual care staff; grief, bereavement, and mourning; and staff grief and stress management. A thorough analysis of these topics introduces caregivers to the world of hospice, which helps the critical role of the spiritual counselor (hospice chaplain) to emerge. Thus, a better understanding of these concepts and the resulting increased technical competence allows hospice chaplains more freedom to impact patients', families', and caregivers' lives through the ministry of presence. The World of Hospice Spiritual Care: A Practical Guide for Palliative Care Chaplains prepares chaplains to offer comfort, kindness, and care to the dying in their communities in their greatest hours of need. The emotional, spiritual, and practical helps hospice chaplains provide through the ministry of presence can make all the difference in the world for their neighbors. Indeed, hospice chaplains are ordinary people inspired by extraordinary purpose, allowing God's manifest presence to change people's lives through palliative care ministry.