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A mother whose child has had a cochlear implant tells Laura Mauldin why enrollment in the sign language program at her daughter’s school is plummeting: “The majority of parents want their kids to talk.” Some parents, however, feel very differently, because “curing” deafness with cochlear implants is uncertain, difficult, and freighted with judgment about what is normal, acceptable, and right. Made to Hear sensitively and thoroughly considers the structure and culture of the systems we have built to make deaf children hear. Based on accounts of and interviews with families who adopt the cochlear implant for their deaf children, this book describes the experiences of mothers as they navigate the health care system, their interactions with the professionals who work with them, and the influence of neuroscience on the process. Though Mauldin explains the politics surrounding the issue, her focus is not on the controversy of whether to have a cochlear implant but on the long-term, multiyear undertaking of implantation. Her study provides a nuanced view of a social context in which science, technology, and medicine are trusted to vanquish disability—and in which mothers are expected to use these tools. Made to Hear reveals that implantation has the central goal of controlling the development of the deaf child’s brain by boosting synapses for spoken language and inhibiting those for sign language, placing the politics of neuroscience front and center. Examining the consequences of cochlear implant technology for professionals and parents of deaf children, Made to Hear shows how certain neuroscientific claims about neuroplasticity, deafness, and language are deployed to encourage compliance with medical technology.
In her book, Raising Kids with Cochlear Implants, Amy Milani shares personal narratives about her experience raising a son and daughter with cochlear implants. Excerpts from a journal she wrote following her son's surgery describe exactly how he began listening and learning language with a cochlear implant. Stories pulled from daily life as expatriates in Germany reveal how her son acquires a selection of favorite words. When her daughter is also born with hearing loss, the family moves back to the U.S. to find an appropriate preschool and support system for cochlear implants and to fully embrace oral deaf education. In alternate chapters, Amy discusses broader issues affecting family life such as the challenges a young child faces wearing equipment and the social implications of hearing in a way that's unfamiliar to most people. Her narratives provide authentic evidence of the joys and struggles parents experience when helping children with cochlear implants transition into the hearing world. Speaking from thirteen years of experience, Amy addresses the commitment required by parents to help their children learn to listen and speak with cochlear implants. Her personal narratives are of a family ready to take on the responsibility for their children's hearing well beyond surgery. She explains how her son and daughter are part of a new generation of kids identified early with hearing loss who grow up with cochlear implants, relying on parents to make it all happen. She calls these children "Generation CI." In this book, she motivates new parents to get answers about their child's hearing loss and hopes to reach those who are interested in learning more about what life is like for families with young children who have cochlear implants.
All parents experience stress as they attempt to meet the challenges of caring for their children. This comprehensive book examines the causes and consequences of parenting distress, drawing on a wide array of findings in current empirical research. Kirby Deater-Deckard explores normal and pathological parenting stress, the influences of parents on their children as well as children on their parents, and the effects of biological and environmental factors. Beginning with an overview of theories of stress and coping, Deater-Deckard goes on to describe how parenting stress is linked with problems in adult and child health (emotional problems, developmental disorders, illness); parental behaviors (warmth, harsh discipline); and factors outside the family (marital quality, work roles, cultural influences). The book concludes with a useful review of coping strategies and interventions that have been demonstrated to alleviate parenting stress.
Karen Putz grew up hard of hearing and became deaf as a teen. When her own kids began losing their hearing, she figured she had all the answers as a professional and as a deaf person. She quickly learned it was a whole other ballgame to be a parent of deaf and hard of hearing kids. Karen shares the twists and turns of her journey and the wisdom she's learned along the way.
***INSTANT New York Times, Wall Street Journal, and USA Today Bestseller*** 2023 Gold Winner — Nautilus Book Award World-class pediatric surgeon, social scientist, and best-selling author of Thirty Million Words Dr. Dana Suskind returns with a revelatory new look at the neuroscience of early childhood development—and how it can guide us toward a future in which every child has the opportunity to fulfill their potential. Her prescription for this more prosperous and equitable future, as clear as it is powerful, is more robust support for parents during the most critical years of their children’s development. In her poignant new book, Parent Nation, written with award-winning science writer Lydia Denworth, Dr. Suskind helps parents recognize both their collective identity and their formidable power as custodians of our next generation. Weaving together the latest science on the developing brain with heart-breaking and relatable stories of families from all walks of life, Dr. Suskind shows that the status quo—scores of parents convinced they should be able to shoulder the enormous responsibility of early childhood care and education on their own—is not only unsustainable, but deeply detrimental to the wellbeing of children, families, and society. Anyone looking for a blueprint for how to build a brighter future for our children will find one in Parent Nation. Informed by the science of foundational brain development as well as history, political science, and the lived experiences of families around the country, this book clearly outlines how society can and should help families meet the developmental needs of their children. Only then can we ensure that all children are able to enjoy the promise of their potential.
The second edition of this guide offers a readable, comprehensive summary of everything a parent or teacher would want to know about raising and educating a deaf child. It covers topics ranging from what it means to be deaf to the many ways that the environments of home and school can influence a deaf child's chances for success in academic and social circles. The new edition provides expanded coverage of cochlear implants, spoken language, mental health, and educational issues relating to deaf children enrolled in integrated and separate settings. Marschark makes sense of the most current educational and scientific literature, and also talks to deaf children, their parents, and deaf adults about what is important to them. Raising and Educating a Deaf Child is not a "how to" book or one with all the "right" answers for raising a deaf child; rather, it is a guide through the conflicting suggestions and programs for raising deaf children, as well as the likely implications of taking one direction or the other.
Contributors present the latest information on both the new world evolving for deaf & hard-of-hearing children & the improved expectations for their acquisition of spoken language.
Hi mama (or dad!). I've been where you are. The darkness, the unknowns, the fear, the uncertainty -- everything that accompanies a hearing loss diagnosis. You may feel all of these things at once. You may ebb and flow between them. Or you may not know what you feel at all. And that is okay. When you are told your child has significant hearing loss, there is no right reaction. Tears may flow, or they may refuse to come. Anger may boil over, or it may fester. Grief can pave the way, or it can be pushed aside. We all process serious, life-altering news differently. My own family received that news on October 18, 2019. In some ways, it feels like a lifetime ago. In others, the pain and emotions are still fresh. Time is funny that way. My goal in sharing my son Cooper's story -- our story, really -- is to show you that you are truly never alone. This journey to Holland (hang in there, I'll get to the relevancy of this) can feel like a lonely one at the beginning. But when you find acceptance, when you open your heart, there is so much beauty to be found along the way.
Millions of Americans experience some degree of hearing loss. The Social Security Administration (SSA) operates programs that provide cash disability benefits to people with permanent impairments like hearing loss, if they can show that their impairments meet stringent SSA criteria and their earnings are below an SSA threshold. The National Research Council convened an expert committee at the request of the SSA to study the issues related to disability determination for people with hearing loss. This volume is the product of that study. Hearing Loss: Determining Eligibility for Social Security Benefits reviews current knowledge about hearing loss and its measurement and treatment, and provides an evaluation of the strengths and weaknesses of the current processes and criteria. It recommends changes to strengthen the disability determination process and ensure its reliability and fairness. The book addresses criteria for selection of pure tone and speech tests, guidelines for test administration, testing of hearing in noise, special issues related to testing children, and the difficulty of predicting work capacity from clinical hearing test results. It should be useful to audiologists, otolaryngologists, disability advocates, and others who are concerned with people who have hearing loss.
Written for parents, siblings and extended family members who want a better understanding of the impact hearing loss can have in their young loved one. Hearing loss in children can have more devastating effects than in adults because it can impair the ability to learn vocabulary, grammar, word order, idiomatic expressions and other aspects of verbal communication. This is a guide on how to address the most important educational issues and processes through the school years, including legal rights and legislation. It also addresses the profound emotional impact hearing loss can have on a child and how it can affect the entire family dynamic. Readers can even prevent some of the pitfalls common among families new to a child with hearing loss. This book also covers the latest technology available to these children, especially in the classroom, including assistive listening devices, hearing aids and cochlear implants and dispels myths associated with wearing amplified.