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Ten years after the results of the Cash and Counseling Demonstration and Evaluation were released, this book assesses the impact of this study, which developed individualized plans for helping people with disabilities to stay independent in the community. The study was the first wide-scale test of people with disabilities managing their own budgets and results from the random-controlled trial demonstrated significant positive outcomes, encouraging the US federal and state governments to provide this option as part of their community-based care programs. This volume looks at what people with disabilities and their caregivers are saying about this option ten years removed from the study, and what the latest research shows in terms of what it will take to improve this approach, making the option available for all people with disabilities. The contributions also discuss what needs remain unmet even when people can manage their own budgets, and present participants’ and their family caregivers’ views on what support broker activities really help (or hurt). Finally, the book summarizes the results of a project involving the Council of Social Work Education and nine schools of social work to develop modules to train future social workers on person-centred planning and participant direction. Of interest to those researchers studying social care with a focus on disabilities, this book would also be of use to those training social workers and support staff. The chapters in this book were originally published in the Journal of Gerontological Social Work and Home Health Care Services Quarterly.
Family Caregiving in the New Normal discusses how the drastic economic changes that have occurred over the past few years have precipitated a new conversation on how family care for older adults will evolve in the future. This text summarizes the challenges and potential solutions scientists, policy makers, and clinical providers must address as they grapple with these changes, with a primary focus given to the elements that may impact how family caregiving is organized and addressed in subsequent decades, including sociodemographic trends like divorce, increased participation of women in the workforce, geographic mobility, fewer children in post-baby boom families, chronic illness trends, economic stressors, and the current policy environment. A section on the support of caregivers includes technology-based solutions that examine existing models, personal health records, and mobile applications, big data issues, decision-making support, person-centered approaches, crowd-sourced caregiving such as blogs and personal websites that have galvanized caregivers, and new methods to combine paid and unpaid forms of care. - Provides a concise "roadmap" of the demographic, economic, health trends, and policy challenges facing family caregivers - Presents potential solutions to caregiving so that scientists, policymakers, and clinical providers can best meet the needs of families and communities in the upcoming decades - Includes in-depth, diverse stories of caregivers of persons with different diseases who share perspectives - Covers person-centered care approaches to family caregiving that summarize effective community-based services of psychosocial intervention models - Examines how existing efficacious models can more effectively reach and serve individual families
How do we understand and also assess the health care of America? Where is health care provided? What are the characteristics of those institutions which provide it? Over the short term, how are changes in health care provisions affecting the health of the population, the cost of care, and access to care?. Health Care Delivery in the United States, now in a thoroughly updated and revised 9th edition, discusses these and other core issues in the field. Under the editorship of Dr. Kovner and with the addition of Dr. James Knickman, Senior VP of Evaluation, Robert Wood Johnson Foundation, leading thinkers and practitioners in the field examine how medical knowledge creates new healthcare services. Emerging and recurrent issues from wide perspectives of health policy and public health are also discussed. With an easy to understand format and a focus on the major core challenges of the delivery of health care, this is the textbook of choice for course work in health care, the reference for administrators and policy makers, and the standard for in-service training programs.;chapter
As people age, they are at increased risk of having their basic human rights threatened or violated. When age is perceived as incompetence, it can easily lead to discrimination that impacts human rights. Based on the premise that social policy must reflect human rights principles, this graduate-level textbook views the challenges associated with aging as opportunities for policy development that stresses the rights of older adults rather than needs. The text distinguishes between “needs” and “rights” and describes those policies and services that best ensure that the rights of older adults are actually met—particularly programs that enable people to remain in their own communities so they can benefit from continued integration and participation in society. Issues and challenges surrounding such efforts, and gaps in social policies faced by specific subsets of older people, are critically examined. The book first analyzes current aging policies and rights and considers the Older Americans Act as a basic policy framework. With an eye to promoting independence, the book discusses issues of income, housing, transportation, health, and home care and what constitutes a “livable community,” along with policies that promote wellbeing and focus on preventing senior abuse and exploitation. Challenges faced by older workers are covered, as are issues particular to family caregivers, older women, and grandparents as caregivers. Gaps in social policies for LG BT seniors and older members of specific ethnic groups are discussed. Particular attention is given to global issues and aging policies in diverse countries and the ways in which they reflect human rights concerns. Each chapter concludes with probing discussion questions for classroom use. KEY FEATURES: Presents a human rights framework for aging policy Distinguishes between needs and rights of older persons Focuses on policies and programs that can help older people to remain in the community Explores the issues and challenges of specific older populations Discusses global responses and concerns with regard to older persons and human rights Carole B. Cox, MSW, PhD, is professor at the Graduate School of Social Service, Fordham University. She is a fellow of the Gerontological Society of America and a Fulbright scholar. She is the author of more than 50 journal articles and chapters dealing with various aspects of aging and caregiving, with extensive research on caregivers for persons with dementia, their needs, and their use of services. Her recent work includes a study of the impact of dementia on the workplace. Her caregiving research also includes that of grandparents raising grandchildren, leading to the development of a curriculum, Empowering Grandparents Raising Grandchildren: A Training Manual for Group Leaders (Springer Publishing Company, 2000). She is the editor of To Grandmother’s House We Go and Stay: Perspectives on Custodial Grandparents (Springer Publishing Company, 2000). Her other books include Home Care for the Elderly: An International Perspective, coauthored with Abraham Monk (1991); The Frail Elderly: Problems, Needs, and Community Responses (1993); Ethnicity and Social Work Practice, coauthored with Paul Ephross (1998); Community Care for an Aging Society: Policies and Services (Springer Publishing Company, 2005); and Dementia and Social Work Practice (Springer Publishing Company, 2007).
Since 1972, the Robert Wood Johnson Foundation has been the nation's largest philanthropy devoted exclusively to health. To further its mission of improving the health and health care of all Americans, the Foundation strives to foster innovation, develop ideas, disseminate information, and enable committed people to devote their energies to improving the nation's well-being. As part of the Foundation's efforts to inform the public, the eleventh volume in the Robert Wood Johnson Foundation Anthology series, To Improve Health and Health Care, provides an in-depth look into the programs it funds. Written for policymakers and practitioners, as well as interested members of the public, the series offers valuable lessons for leaders and educators developing plans for the coming years.
This book is about trying to answer questions. These questions were well introduced by Prof. Margaret Hall in the opening of her chapter in this book: “The fundamental idea of ‘law and aging’ as a discrete category of legal principle and theory is controversial: how and why are ‘older adults’ or ‘seniors’ or ‘elders’ (the very terminology is controversial and fraught with difficulties) a discrete and distinct group for whom ‘special’ legal thought and treatment is justified? For some, a category of law and aging is inherently paternalistic, suggesting that older persons are, like children, especially in need of the protection of the law. In this sense, the argument continues, the category itself internalizes ageist presumptions about older adults and is therefore inherently flawed and even harmful. If certain older adults are, because of physical or mental infirmities, genuinely in need of an enhanced level of legal protection, this entitlement should be conceptualized in terms of their disability; older adults are not a distinct group but an arbitrarily delineated demographic category which contains within it any number of groups that are legitimately distinct for the purposes of legal theory (the di- bled; women; persons of colour; Aboriginal persons; rich and poor; etc.) Indeed, the arti- cial category of “older adults” may be seen as obfuscating, submerging these more meaningful distinctions.
Among the issues confronting America is long-term care for frail, older persons and others with chronic conditions and functional limitations that limit their ability to care for themselves. Improving the Quality of Long-Term Care takes a comprehensive look at the quality of care and quality of life in long-term care, including nursing homes, home health agencies, residential care facilities, family members and a variety of others. This book describes the current state of long-term care, identifying problem areas and offering recommendations for federal and state policymakers. Who uses long-term care? How have the characteristics of this population changed over time? What paths do people follow in long term care? The committee provides the latest information on these and other key questions. This book explores strengths and limitations of available data and research literature especially for settings other than nursing homes, on methods to measure, oversee, and improve the quality of long-term care. The committee makes recommendations on setting and enforcing standards of care, strengthening the caregiving workforce, reimbursement issues, and expanding the knowledge base to guide organizational and individual caregivers in improving the quality of care.
Guide to U.S. Health and Health Care Policy provides the analytical connections showing students how issues and actions are translated into public policies and institutions for resolving or managing health care issues and crises, such as the recent attempt to reform the national health care system. The Guide highlights the decision-making cycle that requires the cooperation of government, business, and an informed citizenry in order to achieve a comprehensive approach to advancing the nation’s health care policies. Through 30 topical, operational, and relational essays, the book addresses the development of the U.S. health care system and policies, the federal agencies and public and private organizations that frame and administer those policies, and the challenges of balancing the nation’s health care needs with the rising costs of medical research, cost-effective treatment, and adequate health insurance. Key Features: The 30 topical essays investigate the fundamental political, social, economic, and procedural initiatives that drive health and health care policy decisions affecting Americans at the local, regional, and national levels Essential themes traced throughout the chapters include providing access to health care, national and international intervention, nutrition and health, human and financial resource allocation, freedom of religion versus public policy, discrimination and health care policy, universal health care coverage, private health care versus publicly funded health care, and the immediate and long-term costs associated with disease prevention, treatment, and health maintenance A Glossary of Key Health Care Policy Terms and Events, a selected Master Bibliography, and a thorough Index are included. This must-have reference for political science and public policy students who seek to understand the issues affecting health care policy in the U.S. is suitable for academic, public, high school, government, and professional libraries.