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The Belmont Report

United States. National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research

Published: 1978

Total Pages: 614


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This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
The Model Rules of Professional Conduct provides an up-to-date resource for information on legal ethics. Federal, state and local courts in all jurisdictions look to the Rules for guidance in solving lawyer malpractice cases, disciplinary actions, disqualification issues, sanctions questions and much more. In this volume, black-letter Rules of Professional Conduct are followed by numbered Comments that explain each Rule's purpose and provide suggestions for its practical application. The Rules will help you identify proper conduct in a variety of given situations, review those instances where discretionary action is possible, and define the nature of the relationship between you and your clients, colleagues and the courts.
The integrity of knowledge that emerges from research is based on individual and collective adherence to core values of objectivity, honesty, openness, fairness, accountability, and stewardship. Integrity in science means that the organizations in which research is conducted encourage those involved to exemplify these values in every step of the research process. Understanding the dynamics that support â€" or distort â€" practices that uphold the integrity of research by all participants ensures that the research enterprise advances knowledge. The 1992 report Responsible Science: Ensuring the Integrity of the Research Process evaluated issues related to scientific responsibility and the conduct of research. It provided a valuable service in describing and analyzing a very complicated set of issues, and has served as a crucial basis for thinking about research integrity for more than two decades. However, as experience has accumulated with various forms of research misconduct, detrimental research practices, and other forms of misconduct, as subsequent empirical research has revealed more about the nature of scientific misconduct, and because technological and social changes have altered the environment in which science is conducted, it is clear that the framework established more than two decades ago needs to be updated. Responsible Science served as a valuable benchmark to set the context for this most recent analysis and to help guide the committee's thought process. Fostering Integrity in Research identifies best practices in research and recommends practical options for discouraging and addressing research misconduct and detrimental research practices.
Augmented Reality (AR) is the blending of digital information in a real-world environment. A common example can be seen during any televised football game, in which information about the game is digitally overlaid on the field as the players move and position themselves. Another application is Google Glass, which enables users to see AR graphics and information about their location and surroundings on the lenses of their "digital eyewear", changing in real-time as they move about. Augmented Reality Law, Privacy, and Ethics is the first book to examine the social, legal, and ethical issues surrounding AR technology. Digital eyewear products have very recently thrust this rapidly-expanding field into the mainstream, but the technology is so much more than those devices. Industry analysts have dubbed AR the "eighth mass medium" of communications. Science fiction movies have shown us the promise of this technology for decades, and now our capabilities are finally catching up to that vision. Augmented Reality will influence society as fundamentally as the Internet itself has done, and such a powerful medium cannot help but radically affect the laws and norms that govern society. No author is as uniquely qualified to provide a big-picture forecast and guidebook for these developments as Brian Wassom. A practicing attorney, he has been writing on AR law since 2007 and has established himself as the world's foremost thought leader on the intersection of law, ethics, privacy, and AR. Augmented Reality professionals around the world follow his Augmented Legality® blog. This book collects and expands upon the best ideas expressed in that blog, and sets them in the context of a big-picture forecast of how AR is shaping all aspects of society. - Augmented reality thought-leader Brian Wassom provides you with insight into how AR is changing our world socially, ethically, and legally. - Includes current examples, case studies, and legal cases from the frontiers of AR technology. - Learn how AR is changing our world in the areas of civil rights, privacy, litigation, courtroom procedure, addition, pornography, criminal activity, patent, copyright, and free speech. - An invaluable reference guide to the impacts of this cutting-edge technology for anyone who is developing apps for it, using it, or affected by it in daily life.
In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.
"This publication contains the 'Guiding Principles on Business and Human Rights: Implementing the United Nations Protect, Respect and Remedy Framework', which were developed by the Special Representative of the Secretary-General on the issue of human rights and transnational corporations and other business enterprises. The Special Representative annexed the Guiding Principles to his final report to the Human Rights Council (A/HRC/17/31), which also includes an introduction to the Guiding Principles and an overview of the process that led to their development. The Human Rights Council endorsed the Guiding Principles in its resolution 17/4 of 16 June 2011."--P. iv.
FISMA and the Risk Management Framework: The New Practice of Federal Cyber Security deals with the Federal Information Security Management Act (FISMA), a law that provides the framework for securing information systems and managing risk associated with information resources in federal government agencies. Comprised of 17 chapters, the book explains the FISMA legislation and its provisions, strengths and limitations, as well as the expectations and obligations of federal agencies subject to FISMA. It also discusses the processes and activities necessary to implement effective information security management following the passage of FISMA, and it describes the National Institute of Standards and Technology's Risk Management Framework. The book looks at how information assurance, risk management, and information systems security is practiced in federal government agencies; the three primary documents that make up the security authorization package: system security plan, security assessment report, and plan of action and milestones; and federal information security-management requirements and initiatives not explicitly covered by FISMA. This book will be helpful to security officers, risk managers, system owners, IT managers, contractors, consultants, service providers, and others involved in securing, managing, or overseeing federal information systems, as well as the mission functions and business processes supported by those systems. - Learn how to build a robust, near real-time risk management system and comply with FISMA - Discover the changes to FISMA compliance and beyond - Gain your systems the authorization they need
The OECD Public Integrity Handbook provides guidance to government, business and civil society on implementing the OECD Recommendation on Public Integrity. The Handbook clarifies what the Recommendation’s thirteen principles mean in practice and identifies challenges in implementing them.
When it comes to computer crimes, the criminals got a big head start. But the law enforcement and IT security communities are now working diligently to develop the knowledge, skills, and tools to successfully investigate and prosecute Cybercrime cases. When the first edition of "Scene of the Cybercrime" published in 2002, it was one of the first books that educated IT security professionals and law enforcement how to fight Cybercrime. Over the past 5 years a great deal has changed in how computer crimes are perpetrated and subsequently investigated. Also, the IT security and law enforcement communities have dramatically improved their ability to deal with Cybercrime, largely as a result of increased spending and training. According to the 2006 Computer Security Institute's and FBI's joint Cybercrime report: 52% of companies reported unauthorized use of computer systems in the prior 12 months. Each of these incidents is a Cybecrime requiring a certain level of investigation and remediation. And in many cases, an investigation is mandates by federal compliance regulations such as Sarbanes-Oxley, HIPAA, or the Payment Card Industry (PCI) Data Security Standard. Scene of the Cybercrime, Second Edition is a completely revised and updated book which covers all of the technological, legal, and regulatory changes, which have occurred since the first edition. The book is written for dual audience; IT security professionals and members of law enforcement. It gives the technical experts a little peek into the law enforcement world, a highly structured environment where the "letter of the law" is paramount and procedures must be followed closely lest an investigation be contaminated and all the evidence collected rendered useless. It also provides law enforcement officers with an idea of some of the technical aspects of how cyber crimes are committed, and how technology can be used to track down and build a case against the criminals who commit them. Scene of the Cybercrime, Second Editions provides a roadmap that those on both sides of the table can use to navigate the legal and technical landscape to understand, prevent, detect, and successfully prosecute the criminal behavior that is as much a threat to the online community as "traditional" crime is to the neighborhoods in which we live. Also included is an all new chapter on Worldwide Forensics Acts and Laws. - Companion Web site provides custom tools and scripts, which readers can download for conducting digital, forensic investigations - Special chapters outline how Cybercrime investigations must be reported and investigated by corporate IT staff to meet federal mandates from Sarbanes Oxley, and the Payment Card Industry (PCI) Data Security Standard - Details forensic investigative techniques for the most common operating systems (Windows, Linux and UNIX) as well as cutting edge devices including iPods, Blackberries, and cell phones