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Numerous movies, YouTube videos, books, and public service announcements have begun to address people with narcolepsy, and this discourse has led to greater visibility and understanding about an often-misunderstood condition. In Narratives of Narcolepsy in Everyday Life: Exploring Intricacies of Identity, Sleepiness, and Place, Nicole Eugene draws on in-depth interviews, participant observation, and field notes to examine life with narcolepsy, witha particular focus on how certain socially-defined places play significant roles in determining the meaning of sleepiness, medication side effects, and other narcolepsy symptoms. Eugene also includes one autoethnographic essay that explores her own experiences with narcolepsy as a Black woman, refracted through the lens of the various places where sleepiness may arise. Throughout the book, an emphasis on making sense of narcolepsy by communicating with others with the condition demonstrates a peer-based approach to researching health communication and disabilities. Drawing on feminist disability studies, health communication, narrative inquiry, and autoethnography, this book is an example of interpretive qualitative communication research that renders the lives of vulnerable people with compassion and understanding.
Julie Flygare was on an ambitious path to success, entering law school at age 22, when narcolepsy destroyed the neurological boundaries between dreaming and reality in her brain. She faced terrifying hallucinations, paralysis and excruciating sleepiness - aspects of dream sleep taking place while wide awake. Yet, narcolepsy was a wake-up call for Julie. Her illness propelled her onto a journey she never imagined - from lying paralyzed on her apartment floor to dancing euphorically at a nightclub; from the classrooms of Harvard Medical School to the start line of the Boston Marathon. Wide Awake and Dreaming is a revealing first-hand account of dreams gone wrong with narcolepsy. It's the brave story of one woman trampling over barriers and finding light in the darkest of circumstances.
In this book, Yuxia Qian and Rukhsana Ahmed explore health acculturation, which they argue is a complex, multidimensional communication process involving concerted efforts from migrants, health professionals, researchers, community members, policymakers, and the media, rather than a unidimensional process synonymous with assimilation. Qian and Ahmed examine individual migrant health acculturation experiences, community-based culturally-centered health interventions, and cross-cultural health promotion and campaigns. Ultimately, this book unpacks the complexity surrounding the health acculturation process through different theoretical frameworks and cross-cultural applications in a range of communication contexts, including the interpersonal, family, community, organizational, and media.
Social Support and Health in the Digital Age discusses how theinformation age has revolutionized nearly every facet of human communication—from the ways in which people purchase products to how they meet and fall in love. These exciting new communication technologies can both unite and divide us. People who are separated by great distances can now communicate with each other in real time, whereas parents often find themselves competing with smartphones and tablets for their children’s attention. This book explores the many ways that digital communication media, such as online forums, social networking sites, and mobile applications, enhance and constrain social support in health-related contexts. We already know a great deal about how the Internet has altered how people search for health information, but less about how people seek and receive social support in this new age of information, which is critical for maintaining our physical, mental, and emotional wellbeing.
Hallucinations, for most people, imply madness. But there are many different types of non-psychotic hallucination caused by various illnesses or injuries, by intoxication--even, for many people, by falling sleep. From the elementary geometrical shapes that we see when we rub our eyes to the complex swirls and blind spots and zigzags of a visual migraine, hallucination takes many forms. At a higher level, hallucinations associated with the altered states of consciousness that may come with sensory deprivation or certain brain disorders can lead to religious epiphanies or conversions. Drawing on a wealth of clinical examples from his own patients as well as historical and literary descriptions, Oliver Sacks investigates the fundamental differences and similarities of these many sorts of hallucinations, what they say about the organization and structure of our brains, how they have influenced every culture's folklore and art, and why the potential for hallucination is present in us all.
A narcoleptic's tireless journey through the neuroscience of disordered sleep Whether it's a bout of bad jet lag or a stress-induced all-nighter, we've all suffered from nights that left us feeling less than well-rested. But for some people, getting a bad night's sleep isn't just an inconvenience: it's a nightmare. In Sleepyhead, science writer Henry Nicholls uses his own experience with chronic narcolepsy as a gateway to better understanding the cryptic, curious, and relatively uncharted world of sleep disorders. We meet insomniacs who can't get any sleep, narcoleptics who can't control when they sleep, and sleep apnea victims who nearly suffocate in their sleep. We learn the underlying difference between morning larks and night owls; why our sleeping habits shift as we grow older; and the evolutionary significance of REM sleep and dreaming. Charming, eye-opening, and deeply humanizing, Sleepyhead will help us all uncover the secrets of a good night's sleep.
Womanist AIDS Activism in the United States: “It’s Who We Are” is an in-depth exploration of AIDS advocacy work among Black women. Based on interviews gathered from thirty-six Black women AIDS activists from across the nation, Angelique Harris and Omar Mushtaq examine the ways in which race, gender, sexuality, and spirituality influence the motivations and approaches behind the efforts of the women in the study. The authors use womanism—an epistemological framework that centers the world views of women of color—to better situate this activism within a larger sociocultural and historical context. They find that identity, spirituality, emotions, and experiences with AIDS knowledge all influence the ways in which these activists approached their community activism work. The authors analyze womanism in detail and propose ways in which this framework can be applied more broadly in examinations of community engagement among women of color, and specifically Black women.
Over the past decade, effective prevention and treatment policies have resulted in global health organizations claiming that the end of the HIV/AIDS crisis is near and that HIV/AIDS is now a chronic but manageable disease. These proclamations have been accompanied by stagnant or decreasing public interest in and financial support for people living with HIV and the organizations that support them, minimizing significant global disparities in the management and control of the HIV pandemic. The contributors to this edited collection explore how diverse communities of people living with HIV (PLHIV) and organizations that support them are navigating physical, social, political, and economic challenges during these so-called “post-crisis” times.
A renowned neurologist shares the true stories of people unable to get a good night’s rest in The Nocturnal Brain: Nightmares, Neuroscience, and the Secret World of Sleep, a fascinating exploration of the symptoms and syndromes behind sleep disorders. For Dr. Guy Leschziner’s patients, there is no rest for the weary in mind and body. Insomnia, narcolepsy, night terrors, apnea, and sleepwalking are just a sampling of conditions afflicting sufferers who cannot sleep—and their experiences in trying are the stuff of nightmares. Demoniac hallucinations frighten people into paralysis. Restless legs rock both the sleepless and their sleeping partners with unpredictable and uncontrollable kicking. Out-of-sync circadian rhythms confuse the natural body clock’s days and nights. Then there are the extreme cases. A woman in a state of deep sleep who gets dressed, unlocks her car, and drives for several miles before returning to bed. The man who has spent decades cleaning out kitchens while “sleep-eating.” The teenager prone to the serious, yet unfortunately nicknamed Sleeping Beauty Syndrome stuck in a cycle of excessive unconsciousness, binge eating, and uncharacteristic displays of aggression and hypersexuality while awake. With compassionate stories of his patients and their conditions, Dr. Leschziner illustrates the neuroscience behind our sleeping minds, revealing the many biological and psychological factors necessary in getting the rest that will not only maintain our physical and mental health, but improve our cognitive abilities and overall happiness.
The wickedly entertaining debut featuring Mark Genevich, Narcoleptic Detective Mark Genevich is a South Boston P.I. with a little problem: he's narcoleptic, and he suffers from the most severe symptoms, including hypnagogic hallucinations. These waking dreams wreak havoc for a guy who depends on real-life clues to make his living. Clients haven't exactly been beating down the door when Mark meets Jennifer Times—daughter of the powerful local D.A. and a contestant on American Star—who walks into his office with an outlandish story about a man who stole her fingers. He awakes from his latest hallucination alone, but on his desk is a manila envelope containing risqué photos of Jennifer. Are the pictures real, and if so, is Mark hunting a blackmailer, or worse? Wildly imaginative and with a pitch-perfect voice, Paul Tremblay's The Little Sleep is the first in a new series that casts a fresh eye on the rigors of detective work, and introduces a character who has a lot to prove—if only he can stay awake long enough to do it.