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"Imagine the heart-wrenching devastation that is experienced by a family when a parent is diagnosed with Alzheimer's disease! Author Diane Currie shares her candid and personal reflections about her mother's struggle with this disease as she copes with the reality of the present but always honors the memory of her past. Through a series of moving vignettes, she remains connected with her mother in a creative way as the strong bond between them slowly dissolves as the disease progresses. From the first moment of her mother's diagnosis, Currie conveys in a captivating manner the intense feelings of loss and hopelessness one experiences when dealing with this dreadful disease. She is able to protray the subtle changes in her mother's behavior and personality throughout her decline, all in a deeply human way. While Before My Eyes describes one family's touching and painful journey, in essence Currie's reflective account may typify the Alzheimer's experience, while offering support and validation to all those who walk its arduous path"--Page 4 of cover.
When Tom DeBaggio turned fifty-seven in 1999, he thought he was about to embark on the relaxing golden years of retirement -- time to spend with his family, his friends, the herb garden he had spent decades cultivating and from which he made a living. Then, one winter day, he mentioned to his doctor during a routine exam that he had been stumbling into forgetfulness, making his work difficult. After that fateful visit, and a subsequent battery of tests over several months, DeBaggio joined the legion of twelve million others afflicted with Alzheimer's disease. But under such a curse, DeBaggio was also given one of the greatest gifts: the ability to chart the ups and downs of his own failing mind. Losing My Mind is an extraordinary first-person account of early onset Alzheimer's -- the form of the disease that ravages younger, more alert minds. DeBaggio started writing on the first day of his diagnosis and has continued despite his slipping grasp on one of life's greatest treasures, memory. In an inspiring and detailed account, DeBaggio paints a vivid picture of the splendor of memory and the pain that comes from its loss. Whether describing the happy days of a youth spent in a much more innocent time or evaluating how his disease has affected those around him, DeBaggio poignantly depicts one of the most important parts of our lives -- remembrance -- and how we often take it for granted. But to DeBaggio, memory is more than just an account of a time long past, it is one's ability to function, to think, and ultimately, to survive. As his life becomes reduced to moments of clarity, the true power of thought and his ability to connect to the world shine through, and in DeBaggio's case, it is as much in the lack of functioning as it is in the ability to function that one finds love, hope and the relaxing golden years of peace. At once an autobiography, a medical history and a testament to the beauty of memory, Losing My Mind is more than just a story of Alzheimer's, it is the captivating tale of one man's battle to stay connected with the world and his own life.
A book of encouragement on how one man of faith faced the oncoming darkness of Alzheimer's disease. In a powerful story of courage and faith, Davis shows how God gives strength and grace.
The gripping memoir of one critical year in the life of Ann Davidson and her husband, Julian, a prominent physiology professor at Stanford Medical School who has Alzheimer's disease. These 56 vignettes each tell a complete story, progressing from Ann and Julian's initial confusion and anger through adjustments and moments of humor and joy to increasing acceptance and an odd sort of peace.
'Keeper' is a very humane and honest exploration of living with Alzheimer's, giving an illuminating account of the disease itself. Gillies tells about the time she and her family spent living with someone with dementia, in a big Victorian house in the far, far north of Scotland.
Living In The Labyrinth is the story of how one woman found the strength and the courage to cope with a devastating disease that has afflicted five million Americans. Far from being an exercise in self-pity or a standard autobiography, this is an unflinching and ultimately uplifting look at a debilitating illness from the inside out. “Somewhere there is that ever-present reminder list of what I am supposed to do today. But I cannot find it. I attempt to do the laundry and find myself outside, in my backyard, holding soiled clothes. How did I get here? How do I get back?” Only forty-five when she first began to struggle with the memory lapses and disorientation that signal the onset of Alzheimer’s, Diana Friel McGowin has written a courageous, stirring insider’s story of the disease that is now the fourth leading killer of American adults. Diana’s personal journey through days of darkness and light, fear and hope gives us new insight into a devastating illness and the plight of its victims, complete with a list of early warning signs, medical background, and resources for further information. But Diana’s story goes far beyond a recounting of a terrifying disease. It portrays a marriage struggling to survive, a family hurt beyond words, and a woman whose humor and intelligence triumph over setbacks and loss to show us the best of what being human is. “A stunner of a book . . . it takes the reader on a terrifying but enlightening journey.”—San Antonio News Express “Touching and sometimes angry . . . a poignant insider’s view.”—The Cincinnati Enquirer
“A useful, step-by-step guide for anyone new to caring for those with Alzheimer’s.” —Library Journal H.O.P.E. for the Alzheimer’s Journey equips Alzheimer’s caregivers with knowledge, tools, and advice for their difficult road ahead. Author Carol B. Amos incorporates her own experience—including her family’s email correspondence illustrating how they coped during this particular challenge. Amos also introduces The Caregiving Principle™: a simple approach that provides a deeper understanding of a person with Alzheimer’s disease and a framework for the caregiver’s role. She provides examples of how The Caregiving Principle™ helped her connect with her mother. H.O.P.E. for the Alzheimer’s Journey encourages caregivers to take care for themselves and provides inspiration for a less stressful, more rewarding journey.
Simple ways to connect when you visit with a family member or friend.
This story poses a profound question - do we accept the hand that fate deals us, or do we battle to make the most of the life we have and help others in the process? Chris Graham, just 38 years old but already facing the advanced stages of Alzheimer's disease, has emphatically chosen the latter. Having lived through a troubled childhood, Chris joined the British Army at a young age and found that the life of a soldier provided him with a much-needed sense of stability. However, his world was turned upside down when, at just 34 years of age, he was diagnosed with a form of early onset dementia. This brutal disease had already claimed the life of his father at 42, along with several other members of his family, and tragically had already confined his brother to a nursing home at the age of 43. In his brother's life, Chris could see a terrifying window into his own near future. Chris, though, is an extraordinary human being. Having been handed nothing less than a death sentence, he decided overnight to stand up to this horrendous disease and do something to leave his mark before it was too late. And so it was that last year, Chris embarked on an awareness-raising 16,000-mile solo cycle around North America, armed only with his bike, a sense of humour, and some good old-fashioned British grit. Leaving his ever-supportive wife Vicky and baby son Dexter at home, he took on huge challenges - for instance, the fear that the ability to discern left from right might leave him at any point while navigating an entire continent - and made it home in time for Christmas, determined to spending however long he has left pouring his love and attention into his family life. Five Minutes of Amazing is both the story of Chris' epic journey and of his fight against the disease increasingly being recognised as the defining disease of our generation. Inspiring and heart-rending in equal measure, it's as important as it is moving, and it will touch everyone who reads it.
Alzheimer's disease is a growing public health crisis. According to the Alzheimer's Association, there are 5.4 million victims of this disease; by 2050, there will be close to 15 million people who suffer from this debilitating disorder of memory, thinking, personality, and functioning. The disease profoundly affects immediate family members, close friends, and neighbors. These people - the Alzheimer's family - undergo tremendous psychological and emotional change as they witness the cruel and relentless progression of the disease in their loved one. Incorporating over thirty years of experience with Alzheimer's patients and their families with current medical knowledge, the authors chart the complex emotional journey of the Alzheimer's family from the onset of the disease through the death of the loved one. They discuss the anger that rises in the face of discordant views of the disease, the defenses that emerge when family members are unwilling to accept a dementia diagnosis, and the common emotions of anxiety, guilt, anger, and shame. They focus especially on grief as the core response to losing a loved one to dementia, and describe the difficult processes of adaptation and acceptance, which lead to personal growth. Final chapters emphasize the importance of establishing a care community and how to understand and cope with personal stress. This volume will be useful to medical professionals and ordinary people close to or caring for a person with dementia.