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Medical Entanglements uses intersectional feminist, queer, and crip theory to move beyond “for or against” approaches to medical intervention. Using a series of case studies – sex-confirmation surgery, pharmaceutical treatments for sexual dissatisfaction, and weight loss interventions – the book argues that, because of systemic inequality, most mainstream medical interventions will simultaneously reinforce social inequality and alleviate some individual suffering. The book demonstrates that there is no way to think ourselves out of this conundrum as the contradictions are a product of unjust systems. Thus, Gupta argues that feminist activists and theorists should allow individuals to choose whether to use a particular intervention, while directing their social justice efforts at dismantling systems of oppression and at ensuring that all people, regardless of race, gender, sexuality, class, or ability, have access to the basic resources required to flourish.
The philosopher Henry Richardson's short book is a defense of a position on a neglected topic in medical research ethics. Clinical research ethics has been a longstanding area of study, dating back to the aftermath of the Nazi death-camp doctors and the Tuskegee syphilis study. Most ethical regulations and institutions (such as Institutiional Review Boards) have developed in response to those past abuses, including the stress on obtaining informed consent from the subject. Richardson points out that that these ethical regulations do not address one of the key dilemmas faced by medical researchers -- whether or not they have obligations towards subjects who need care not directly related to the purpose of the study, termed "ancillary care obligations." Does a researcher testing an HIV vaccine in Africa have an obligation to provide anti-retrovirals to those who become HIV positive during the trial? Should a researcher studying a volunteer's brain scan, who sees a possible tumor, do more than simply refer him or her to a specialist? While most would agree that some special obligation does exist in these cases, what is the basis of this obligation, and what are its limits? Richardson's analysis of those key questions and the development of his own position are at the heart of this book, which will appeal to bioethicists studying research ethics, to policy makers, and to political and moral philosophers interested in the obligations of beneficence, one of the key issues in moral theory. " 'Philosophy recovers itself,' wrote John Dewey, 'when it ceases to be a device for dealing with the problems of philosophers and becomes a method, cultivated by philosophers, for dealing with the problems of men.' Henry Richardson confronts a problem in the ethics of medical research that is often (as his many real-life examples show) a matter of life and death. The problem is unexplored and quite difficult: Richardson finds he must craft new theory to deal with it. The theory he creates shows how we become morally entangled with others without intending to, as we enter into intimacies with them. This theory of moral entanglement is a genuine discovery in philosophy, with application across a wide range of human relationships. Since the theory was designed for medical researchers it also provides a bespoke ethical framework, as well as specific guidance, for researchers in the field. This book shows practical philosophy at its best: inspired by real problems, responding with powerful solutions." -- Leif Wenar, Chair of Ethics, King's College London "A medical researcher investigating transmission of malaria may find that a subject has another disease. Does the researcher have an obligation to devote some of the team's resources to treating this disease? The traditional principles of research ethics do not ask much less answer this important question. In this theoretically and practically rich book, Henry Richardson seeks to provide an answer and to identify issues that need further exploration. He argues that "ancillary care obligations" are explained by "moral entanglement" and cannot be justified by traditional principles of justice or the duty to rescue. He is admirably soft-hearted and tough-minded in combining his long demonstrated philosophical acuity with a deep knowledge of the problems on the ground. Richardson's book is characterized by great generosity towards those who need help, towards the problems faced by researchers, and towards the scholarly community - even those with whom he disagrees." - Alan Wertheimer, Senior Research Scholar, Department of Bioethics, National Institutes of Health "In this important book, Henry Richardson sculpts a new path for research ethics, one that focuses on ethical obligations of ancillary-care in clinical trials and medical research, particularly in developing countries, but with relevance throughout the world. In Moral Entanglements, Richardson extends the reach of his analysis both deep within and outside the research itself, recognizing the broader moral backdrop relevant for society-wide judgments of justice, and the special relationships that exist within the medical research context, about what is or is not owed research participants in situations of medical need. Rather than leave such important decisions up to the vagaries of politics or ad hoc assessments, this book sets out a comprehensive theoretical framework with principles to guide such decisions in the everyday lives of both medical researchers and research participants. This book significantly contributes to the ethics of ancillary-care in medical and public health research and judiciously enlightens questions and potential resolutions to these vital global and domestic problems." - Jennifer Prah Ruger, Associate Professor, Yale Schools of Public Health and Medicine
Biomedical Entanglements is an ethnographic study of the Giri people of Papua New Guinea, focusing on the indigenous population’s interaction with modern medicine. In her fieldwork, Franziska A. Herbst follows the Giri people as they circulate within and around ethnographic sites that include a rural health center and an urban hospital. The study bridges medical anthropology and global health, exploring how the ‘biomedical’ is imbued with social meaning and how biomedicine affects Giri ways of life.
In this landmark Companion, expert contributors from around the world map out the field of the critical medical humanities. This is the first volume to introduce comprehensively the ways in which interdisciplinary thinking across the humanities and social sciences might contribute to, critique and develop medical understanding of the human individually and collectively. The thirty-six newly commissioned chapters range widely within and across disciplinary fields, always alert to the intersections between medicine, as broadly defined, and critical thinking. Each chapter offers suggestions for further reading on the issues raised, and each section concludes with an Afterword, written by a leading critic, outlining future possibilities for cutting-edge work in this area. Topics covered in this volume include: the affective body, biomedicine, blindness, breath, disability, early modern medical practice, fatness, the genome, language, madness, narrative, race, systems biology, performance, the postcolonial, public health, touch, twins, voice and wonder. Together the chapters generate a body of new knowledge and make a decisive intervention into how health, medicine and clinical care might address questions of individual, subjective and embodied experience.
In Seizing the Means of Reproduction, Michelle Murphy's initial focus on the alternative health practices developed by radical feminists in the United States during the 1970s and 1980s opens into a sophisticated analysis of the transnational entanglements of American empire, population control, neoliberalism, and late-twentieth-century feminisms. Murphy concentrates on the technoscientific means—the technologies, practices, protocols, and processes—developed by feminist health activists. She argues that by politicizing the technical details of reproductive health, alternative feminist practices aimed at empowering women were also integral to late-twentieth-century biopolitics. Murphy traces the transnational circulation of cheap, do-it-yourself health interventions, highlighting the uneasy links between economic logics, new forms of racialized governance, U.S. imperialism, family planning, and the rise of NGOs. In the twenty-first century, feminist health projects have followed complex and discomforting itineraries. The practices and ideologies of alternative health projects have found their way into World Bank guidelines, state policies, and commodified research. While the particular moment of U.S. feminism in the shadow of Cold War and postcolonialism has passed, its dynamics continue to inform the ways that health is governed and politicized today.
Edge Entanglements traverses the borderlands of the community "mental health" sector by "plugging in" to concepts offered by Gilles Deleuze and Felix Guattari along with work from Mad Studies, postcolonial, and feminist scholars. Barlott and Setchell demonstrate what postqualitative inquiry can do, surfacing the transformative potential of freely-given relationships between psychiatrised people and allies in the community. Thinking with theory, the authors map the composition and generative processes of freely-given, ally relationships. Edge Entanglements surfaces how such relationships can unsettle constraints of the mental health sector and produce creative possibilities for psychiatrised people. Affectionately creating harmonies between theory and empirical "data," the authors sketch ally relationships in ways that move. Allyship is enacted through micropolitical processes of becoming-complicit: ongoing movement towards taking on the struggle of another as your own. Barlott and Setchell’s work offers both conceptual and practical insights into postqualitative experimentation, relationship-oriented mental health practice, and citizen activism that unsettles disciplinary boundaries. Ongoing, disruptive movements on the margins of the mental health sector – such as freely-given relationships – offer opportunities to be otherwise. Edge Entanglements is for people whose lives and practices are precariously interconnected with the mental health sector and are interested in doing things differently. This book is likely to be useful for novice and established (applied) new material and/or posthumanist scholars interested in postqualitative, theory-driven research; health practitioners seeking alternative or radical approaches to their work; and people interested in citizen advocacy, activism, and community organising in/out of the mental health sector.
In Rethinking Diabetes, Emily Mendenhall investigates how global and local factors transform how diabetes is perceived, experienced, and embodied from place to place. Mendenhall argues that the link between sugar and diabetes overshadows the ways in which underlying biological processes linking hunger, oppression, trauma, unbridled stress, and chronic mental distress produce diabetes. The life history narratives in the book show how deeply embedded these factors are in the ways diabetes is experienced and (re)produced among poor communities around the world. Rethinking Diabetes focuses on the stories of women living with diabetes near or below the poverty line in urban settings in the United States, India, South Africa, and Kenya. Mendenhall shows how women's experiences of living with diabetes cannot be dissociated from their social responsibilities of caregiving, demanding family roles, expectations, and gendered experiences of violence that often displace their ability to care for themselves first. These case studies reveal the ways in which a global story of diabetes overlooks the unique social, political, and cultural factors that produce syndemic diabetes differently across contexts. From the case studies, Rethinking Diabetes clearly provides some important parallels for scholars to consider: significant social and economic inequalities, health systems that are a mix of public and private (with substandard provisions for low-income patients), and rising diabetes incidence and prevalence. At the same time, Mendenhall asks us to unpack how social, cultural, and epidemiological factors shape people's experiences and why we need to take these differences seriously when we think about what drives diabetes and how it affects the lives of the poor.
Why our approaches to Alzheimer's and dementia are problematic and contradictory Due to rapidly aging populations, the number of people worldwide experiencing dementia is increasing, and the projections are grim. Despite billions of dollars invested in medical research, no effective treatment has been discovered for Alzheimer's disease, the most common form of dementia. The Alzheimer Conundrum exposes the predicaments embedded in current efforts to slow down or halt Alzheimer’s disease through early detection of pre-symptomatic biological changes in healthy individuals. Based on a meticulous account of the history of Alzheimer’s disease and extensive in-depth interviews, Margaret Lock highlights the limitations and the dissent associated with biomarker detection. Lock argues that basic research must continue, but should be complemented by a public health approach to prevention that is economically feasible, more humane, and much more effective globally than one exclusively focused on an increasingly harried search for a cure.
Military-civilian encounters are multiple and diverse in our times. Contributors to this volume demonstrate how military and civilian domains are constituted through entanglements undermining the classic civil-military binary and manifest themselves in unexpected places and manners. Moreover, the essays trace out the ripples, reverberations and resonations of civil-military entanglements in areas not usually associated with such ties, but which are nevertheless real and significant for an understanding of the roles war, violence and the military play in shaping contemporary societies and the everyday life of its citizens.
Conversations with a founder of the influential Social Construction of Technology (SCOT) approach in science and technology studies offer an introduction to the field. Science and technology studies (STS) is a relatively young but influential field. Scholars from disciplines as diverse as urban studies, mobility studies, media studies, and body culture studies are engaging in a systematic dialogue with STS, seeking to enrich their own investigations. Within STS, the Social Construction of Technology (SCOT) theory has proved to be one of the most influential in its neighboring fields. Yet the literature has grown so large so quickly, it is difficult to get an overview of SCOT. In this book, conversations with Trevor Pinch, a founder of SCOT, offer an introduction and genealogy for the field. Pinch was there at the creation—as coauthor of the groundbreaking 1984 article that launched SCOT—and has remained active through subsequent developments. Engaging and conversational, Pinch charts SCOT's important milestones. The book describes how Pinch and Wiebe Bijker adapted the “empirical program of relativism,” developed by the Bath School to study the social construction of scientific facts, to apply to the social construction of artifacts. Entanglements addresses five issues in depth: relevant social groups, and SCOT's focus on groups of users; the intertwining of social representation and practices; the importance of tacit knowledge in SCOT's approach to the nonrepresentational; the controversy over nonhuman agency; and the political implications of SCOT.