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This book examines the right to be forgotten and finds that this right enjoys recognition mostly in jurisdictions where privacy interests impose limits on freedom of expression. According to its traditional understanding, this right gives individuals the possibility to preclude the media from revealing personal facts that are no longer newsworthy, at least where no other interest prevails. Cases sanctioning this understanding still abound in a number of countries. In today’s world, however, the right to be forgotten has evolved, and it appears in a more multi-faceted way. It can involve for instance also the right to access, control and even erase personal data. Of course, these prerogatives depend on various factors and competing interests, of both private and public nature, which again require careful balancing. Due to ongoing technological evolution, it is likely that the right to be forgotten in some of its new manifestations will become increasingly relevant in our societies.
This discussion paper looks at the protection of personal information. It sets out the main issues that need to be addressed and outlines some options for the legislation, followed by some specific questions of consideration. Topics covered are the meaning of privacy and the design of Canada's new privacy law.
Authentication of electronic communications can make a significant contribution to meeting the need for security and privacy in the use of public electronic networks and to building user confidence. The principles presented in this document are intended for those involved in the design, development and deployment of authentication services and products. The document identifies the functions and responsibilities of participants in authentication processes and provides a framework to assess and manage the risks that accompany these responsibilities. It also identifies security, privacy, disclosure and complaint-handling matters.
The ATIA has been the subject of a number of reform proposals since its passage in 1983. Nor is this the first ATIA reform proposal to be the subject of a study by the Committee: barely a week before the 38th Parliament was dissolvwe, the committee tabled a report to the House of Commons recommending that the Minister of Justice consider introducing a bill based on the provisions in the Open Government Act, proposed by the then Information Commissioner, John Reid.
Initially genetic disorders were all considered as rare diseases. At present, in the mid of 2009, the OMIM catalogue contains information on more than 12 000 entries of which about 2500 are available for clinical testing based on the identification of the responsible gene defect. However, altogether it has been estimated that about 8 percent of a population in the economically developed countries will during their lifetime suffer from a disease mainly as the result of their genetic constitution. Adding to that, it is estimated that all diseases have a genetic component, which will determine who will be at a higher than average risk for a certain disorder. Further it is postulated that in the near future, this genetic profiling could become useful in selecting an appropriate therapy adapted to the genetic constitution of the person. Thus, genetic disorders are not rare. Measuring quality of health care related processes became an issue in the 1990s, mainly in laboratory medicine, but also for hospitals and other health care systems. In many countries national authorities started to implement recommendations, guidelines or legal procedures regulating quality of health care delivery. In laboratory medicine, in parallel, the use of accreditation as a method assuring high quality standards in testing came in use. With the increasing possibilities of performing molecular genetic testing, genetic laboratories needed to become involved in this process. As many genetic disorders are rare, most laboratories worldwide offered analysis for a specific set of disorders, and, therefore, very early on a transborder flow of samples occurred. While international quality criteria (ISO) have been in existence for a number of years, the regulation of quality issues still may differ between countries. Based on their personal experience in the varying fields of quality research and clinical implementation of quality criteria in genetic services the authors of this book share their experience and give examples of the implementation of quality issues in national quality systems worldwide. This book, which is the result of the effort of many persons, is destined to aid laboratory managers and counsellors, health care managers and other stakeholders in national or international health care service to improve the services to the benefit of patients with suspected genetic disorders.
Mandatory AIDS testing contravens Privacy Act.