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The inadequate supply of organs in the United States and other countries continues to drive the reliance on living donor transplantation. In 2000, representatives of the transplant community convened for a meeting on living donation in an effort to provide guidelines to promote the welfare of living donors. The consensus statement that resulted from this meeting recommended that transplant centers retain an Independent Living Donor Advocate (ILDA) to focus on the best interest of the donor. A decade later, nearly every transplant center in the United States, performing living donor surgeries, has incorporated an ILDA into their living donor screening and/or evaluation process Living Donor Advocate provides an overview of living donation and its risks, ethical challenges and future developments​, as well as details about the role a Living Donor Advocate plays in the transplantation process. This book will interest health professionals across various disciplines and patients undergoing transplantation or living donor surgery.
This book provides a complete guide to the evaluation, care, and follow-up of living kidney donors. Living donor kidney transplantation is established as the best treatment option for kidney failure. However, despite the tremendous benefits of living donation to recipients and society, the outcomes and optimal care of donors themselves have received relatively less attention. Fortunately, things are changing – including recent landmark developments in living donor risk assessment, policy and guidance. This volume offers authoritative, evidence-based guidance on the full range of clinical scenarios encountered in the evaluation and care of living kidney donors. The approach to key elements of risk assessment, ethical considerations and informed consent is accompanied by recommendations for patient-centered care before, during, and after donation. Advocacy initiatives and policies to remove disincentives to donation and advance a defensible system of practice are also discussed. General and transplant nephrologists, as well as related allied health professionals, can look to this book as a comprehensive resource addressing contemporary clinical topics in the practice of living kidney donation.
Rates of organ donation lag far behind the increasing need. At the start of 2006, more than 90,000 people were waiting to receive a solid organ (kidney, liver, lung, pancreas, heart, or intestine). Organ Donation examines a wide range of proposals to increase organ donation, including policies that presume consent for donation as well as the use of financial incentives such as direct payments, coverage of funeral expenses, and charitable contributions. This book urges federal agencies, nonprofit groups, and others to boost opportunities for people to record their decisions to donate, strengthen efforts to educate the public about the benefits of organ donation, and continue to improve donation systems. Organ Donation also supports initiatives to increase donations from people whose deaths are the result of irreversible cardiac failure. This book emphasizes that all members of society have a stake in an adequate supply of organs for patients in need, because each individual is a potential recipient as well as a potential donor.
Edited by leaders at one of the acclaimed transplant institutions in the United States, this reference covers all aspects of living donor solid organ and cellular transplantation in current clinical practice, including the kidney, liver, pancreas, lung, small bowel, islet, and hematopoietic stem cell transplantation. Detailed, engaging, and organ-
The only sibling with healthy kidneys, Suzanne is ambivalent about donating a kidney to a sister she's not even sure she likes but she makes the offer. Eight family members, including her mother, have died from the disease. Now her sisters have PKD and each need kidney transplants. The Reluctant Donor exposes Suzanne's doubts, raw fear, and strong Irish Catholic family history. Her terror at the prospect of surgery is offset by her wonder at the small miracles that surround her. Inspired by her faith and the courage of those who came before her, Suzanne Ruff navigates uncertainty with humor and honesty.
Nearly 120,000 people are in need of healthy organs in the United States.. Every ten minutes a new name is added to this list, while each day eight people die waiting for an organ to become available. Worse, the gap between those in need of an organ and the number of available donors is growing: our traditional reliance on cadaveric organ donation is insufficient, and in recent years there has been a decline in the number of living donors as well as in the percentage of living donors relative to overall kidney donors. Some transplant surgeons and policy advocates suggest a market solution and legalizing the sale of organs, Andrew Michael Flescher objects to this approach, citing concerns about social justice, commodification, and patient safety. Given that, what is the most efficacious means of attracting prospective living kidney donors? Flescher, drawing on scores of interviews with donors and patients, suggests that inculcating a sense of altruism and civic duty is a more effective means of increasing donor participation than purely financial incentives. He encourages individuals to spend time with patients on dialysis, advocating donor "chains" in order to facilitate relationships between donors and recipients, and creating sacred spaces in hospitals such as a "wall of heroes" to recognize those who sacrifice their body parts for others.
You're in need of a living kidney donor, but you're not sure how to go about the process. You've been told to share your story with family and friends-but striking up a conversation about your need for a kidney transplant (and search for a living kidney donor) is the most nerve-racking conversation you can imagine. Whether you're trying to avoid dialysis or be "free of the machine," this book can help get you there. In Pursuit of a Better Life provides communication principles, campaign strategies, template letters and old fashion relationship skills that can instantly create a desire to help. In this book, the author shares strategies taught in her motivational seminars and webinars, and with her mentoring and coaching clients. Living her best life possible as a preemptive (live-donor) kidney transplant recipient, the author invites her readers to proactively engage as their own best advocate and "join her at the top," where dreams do come true. Known as the quintessential marketing plan for finding living kidney donors, this book reveals strategies rarely discussed in your doctor's office or transplant center. Uncover this wildly successful path for attracting potential kidney donors today! ABOUT THE AUTHOR The highlight of Risa Simon's life was the day an unexpected, unrelated, living kidney donor offered to give her a kidney and tests revealed a sister-like match. That day didn't come easy-and it might never have if she wasn't willing to become a proactive contender, competing for her best life possible. Risa knows all too well what it's like to be a kidney patient trapped in a hopeless sinkhole headed towards dialysis. As she watched her renal function numbers decline, her emotions escalated. The thought of surrendering her sense of control over her future consumed her thoughts and immobilized her dreams. Unwittingly, she discovered a new paradigm after attending a kidney patient conference. The presentation she attended caused an awakening that compelled her to stand before her disease and use her voice to proactively secure her best choice - a transplant before dialysis. Today, Risa is living her best life ever as a preemptive (live-donor) transplant recipient. Her passion for helping others reflects in the names of her principal firms, The Proactive Path and the TransplantFirst Academy, a non-profit (501c3) organization leading the way to better outcomes. As an enthusiastic "positive-disruptor," she's dedicated her life to inspiring eligible kidney patients to bypass dialysis (or become dialysis-free) by proactively seeking live-donor transplant opportunities. Known for her trailblazing patient empowerment strategies, she invites her fans and followers to "join her at the top" - where dreams can come true.
In Kidney to Share, Martha Gershun tells the story of her decision to donate a kidney to a stranger. She takes readers through the complex process by which such donors are vetted to ensure that they are physically and psychologically fit to take the risk of a major operation. John D. Lantos, a physician and bioethicist, places Gershun's story in the larger context of the history of kidney transplantation and the ethical controversies that surround living donors. Together, they help readers understand the discoveries that made transplantation relatively safe and effective as well as the legal, ethical, and economic policies that make it feasible. Gershun and Lantos explore the steps involved in recovering and allocating organs. They analyze the differences that arise depending on whether the organ comes from a living donor or one who has died. They observe the expertise—and the shortcomings—of doctors, nurses, and other professionals and describe the burdens that we place on people who are willing to donate. In this raw and vivid book, Gershun and Lantos ask us to consider just how far society should go in using one person's healthy body parts in order to save another person. Kidney to Share provides an account of organ donation that is both personal and analytical. The combination of perspectives leads to a profound and compelling exploration of a largely opaque practice. Gershun and Lantos pull back the curtain to offer readers a more transparent view of the fascinating world of organ donation.
Argues that for the first time in history we're in a position to end extreme poverty throughout the world, both because of our unprecedented wealth and advances in technology, therefore we can no longer consider ourselves good people unless we give more to the poor. Reprint.
In 1997, the Institute of Medicine published a report entitled Non-Heart- Beating Organ Transplantation: Medical and Ethical Issues in Procurement. The findings and recommendations of that study defined the ethical and scientific basis for non-heart-beating organ donation and transplantation, and provided specific recommendations for practices that affirm patient welfare, promote patient and family choice, and avoid conflicts of interest. Following the 1997 study, the Department of Health and Human Services requested a follow up study to promote such efforts. The central activity for this study was a workshop held in Washington, D.C., on May 24-25, 1999. The workshop provided the opportunity for extensive dialogue on non-heart-beating organ donation among hospitals and organ procurement organizations (OPOs) that are actively involved in non-heartbeating organ and tissue donation and those with concerns about whether and how to proceed. The findings and recommendations of this report are based in large measure on the discussions and insights from that workshop. Non-Heart-Beating Organ Transplantation includes seven recommendations for developing and implementing non-heart-beating-donor protocols. These recommendations were based on the findings and recommendations from the 1997 IOM report and consensus achieved among participants at the national workshop. The committee developed these recommendations as steps towards an approach to non-heart-beating-donor organ donation and procurement consistent with underlying scientific and ethical guidelines, patient and family options and choices, and public trust in organ donation.