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Nederland telt op dit moment 250.000 dementerenden en hun aantal neemt toe. Ooit treft wellicht onze ouders, onze geliefden of onszelf dit lot. Anne-Mei The werkte als onderzoeker twee jaar in een verpleeghuis. Zij onthult wat meestal verborgen blijft: de beslissing om te stoppen met behandelen. De armoede en voodoo-rituelen van de gekleurde verzorgenden. Problemen die kunnen optreden met de familie. Spanningen, agressie en seks op de afdeling. Maar ze maakt ons ook deelgenoot van ontroerende en hilarische taferelen. Daarnaast ontrafelt The 'de zaak 't Blauwbörgje' die in de jaren negentig in het nieuws kwam. De familie van een diep demente man beschuldigde het verpleeghuis van poging tot moord. Wat ging er mis? En kan zoiets weer gebeuren? Het boek leest als een roman en zet eenieder aan het denken over de invulling van zijn of haar eigen levenseinde in het geval van dementie.
This in-depth description of life in a nursing/care home for 70 residents and 40 staff highlights the daily care of frail or ill residents between 80 and 100 years of age, including people suffering with dementia. How residents interact with care assistants is emphasised, as are the different behaviours of men and women observed during a year of daily conversations between the author, patients and staff, who share their stories of the pressures of the work. Living Before Dying shows a world where, in extreme old age, people have to learn how to cope with living communally.
Winner of the Michael Ramsay Prize 2016 Dementia is one of the most feared diseases in Western society today. Some have even gone so far as to suggest euthanasia as a solution to the perceived indignity of memory loss and the disorientation that accompanies it. Here, John Swinton develops a practical theology of dementia for caregivers, people with dementia, ministers, hospital chaplains, and medical practitioners as he explores two primary questions: • Who am I when I’ve forgotten who I am? • What does it mean to love God and be loved by God when I have forgotten who God is? Offering compassionate and carefully considered theological and pastoral responses to dementia and forgetfulness, Swinton’s Dementia redefines dementia in light of the transformative counter story that is the gospel.
Improvements in health care in the 21st century mean people are living longer, but with the paradox that chronic illness is increasingly prevalent. Dementia, a term used to describe various different brain disorders that involve a loss of brain function that is usually progressive and eventually severe, is a condition associated with an ageing population and is becoming increasingly common. Worldwide there are approximately 25 million people with dementia, expected to rise to 63 million by 2030, and 114 million by 2050. Inevitably, people living with dementia will die, but their needs at the end of life are not well known. This book describes what might be achieved if the values and best practice of both dementia care and palliative care are brought together, to achieve quality end of life care for this specific group of patients. It explores what is known about the experience of dying with dementia, using a narrative approach, and develops a model that draws together a 'person-centered' approach to care. The book examines the possibiities and the challenges faced when trying to improve quality of life for people with dementia, and presents examples of good practice from across the world.
Making Tough Decisions about End-of-Life Care in Dementia is a lifeline, an invaluable guide to assist in the late stage of dementia.
A sensitive, direct and highly accessible insight into the complexities and challenges that a diagnosis of dementia presents. Contributors represent academics, practicing nurses, aged care professionals and family advocates.
"Polly was born in Surry County, N. C. She graduated from Pinnacle High School in 1964. She attended Winston-Salem Business College, and worked for North Carolina Baptist Hospital until she retired in 2008. She has taken several writing classes at Salem College, Winston-Salem, N. C. She was given the Editor's Choice Award in The Path Not Taken, by the National Library of Poetry. She has also had poetry published in Beyond the Stars, Where Dawn Lingers, Poetic Voices of America, and Treasured Poems of America. She has also self-published Daisies Rainbows Dreams. This is her story of being a caregiver and her husband's battle with Alzheimer's."
Now in paperback, the cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to care. Despite being a physician and a bioethicist, Tia Powell wasn't prepared to address the challenges she faced when her grandmother, and then her mother, were diagnosed with dementia--not to mention confronting the hard truth that her own odds aren't great. In the U.S., 10,000 baby boomers turn 65 every day; by the time a person reaches 85, their chances of having dementia approach 50 percent. And the truth is, there is no cure, and none coming soon, despite the perpetual promises by pharmaceutical companies that they are just one more expensive study away from a pill. Dr. Powell's goal is to move the conversation away from an exclusive focus on cure to a genuine appreciation of care--what we can do for those who have dementia, and how to keep life meaningful and even joyful. Reimagining Dementia is a moving combination of medicine and memoir, peeling back the untold history of dementia, from the story of Solomon Fuller, a black doctor whose research at the turn of the twentieth century anticipated important aspects of what we know about dementia today, to what has been gained and lost with the recent bonanza of funding for Alzheimer's at the expense of other forms of the disease. In demystifying dementia, Dr. Powell helps us understand it with clearer eyes, from the point of view of both physician and caregiver. Ultimately, she wants us all to know that dementia is not only about loss--it's also about the preservation of dignity and hope.
Caring for someone with dementia presents different challenges than caring for others with health care issues.People with dementia don't "play by the rules" that signify approaching death from disease or old age. This booklet outlines the issues and progress that a person with dementia will probably follow.The aim of this booklet is to provide information regarding approaching end of life to those people, family and significant others, who are making decisions for and caring for someone with dementia. It would be given to the family upon admission to the Palliative Care program or to any family that is having to address the eating and not eating dilemma.Like it's companions, Gone From My Sight and The Eleventh Hour, How Do I Know You? is short, written in large print, and the information is conveyed in a simple, direct yet gentle manner.
In Death's Waiting Room is a penetrating story about people suffering from dementia in a multi-cultural society, relevant to us all. Anne-Mei The carried out two years of ethnographic research in a nursing home in the Netherlands revealing what usually remains hidden from the public: the decision to stop treatment, the cultural and social gap between the Dutch occupants and the black Caribbean nursing staff, the communication problems with relatives, the tensions and aggression. But she also shares with us the touching and funny moments and experiences with the elderly occupants. This book also unravels "the Blauwborgje case" - which was the focus of much media attention in the Netherlands in the late 1990s - in which a nursing home refused to re-hydrate a man with extreme dementia because they considered his condition to be terminal, whilst his family disagreed and pressed charges for attempted murder. Anne-Mei The gives an account of the events that took place and also explores the wider relevance of the case.