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This book provides modern technical answers to the legal requirements of pseudonymisation as recommended by privacy legislation. It covers topics such as modern regulatory frameworks for sharing and linking sensitive information, concepts and algorithms for privacy-preserving record linkage and their computational aspects, practical considerations such as dealing with dirty and missing data, as well as privacy, risk, and performance assessment measures. Existing techniques for privacy-preserving record linkage are evaluated empirically and real-world application examples that scale to population sizes are described. The book also includes pointers to freely available software tools, benchmark data sets, and tools to generate synthetic data that can be used to test and evaluate linkage techniques. This book consists of fourteen chapters grouped into four parts, and two appendices. The first part introduces the reader to the topic of linking sensitive data, the second part covers methods and techniques to link such data, the third part discusses aspects of practical importance, and the fourth part provides an outlook of future challenges and open research problems relevant to linking sensitive databases. The appendices provide pointers and describe freely available, open-source software systems that allow the linkage of sensitive data, and provide further details about the evaluations presented. A companion Web site at https://dmm.anu.edu.au/lsdbook2020 provides additional material and Python programs used in the book. This book is mainly written for applied scientists, researchers, and advanced practitioners in governments, industry, and universities who are concerned with developing, implementing, and deploying systems and tools to share sensitive information in administrative, commercial, or medical databases. The Book describes how linkage methods work and how to evaluate their performance. It covers all the major concepts and methods and also discusses practical matters such as computational efficiency, which are critical if the methods are to be used in practice - and it does all this in a highly accessible way! David J. Hand, Imperial College, London.
Data matching (also known as record or data linkage, entity resolution, object identification, or field matching) is the task of identifying, matching and merging records that correspond to the same entities from several databases or even within one database. Based on research in various domains including applied statistics, health informatics, data mining, machine learning, artificial intelligence, database management, and digital libraries, significant advances have been achieved over the last decade in all aspects of the data matching process, especially on how to improve the accuracy of data matching, and its scalability to large databases. Peter Christen’s book is divided into three parts: Part I, “Overview”, introduces the subject by presenting several sample applications and their special challenges, as well as a general overview of a generic data matching process. Part II, “Steps of the Data Matching Process”, then details its main steps like pre-processing, indexing, field and record comparison, classification, and quality evaluation. Lastly, part III, “Further Topics”, deals with specific aspects like privacy, real-time matching, or matching unstructured data. Finally, it briefly describes the main features of many research and open source systems available today. By providing the reader with a broad range of data matching concepts and techniques and touching on all aspects of the data matching process, this book helps researchers as well as students specializing in data quality or data matching aspects to familiarize themselves with recent research advances and to identify open research challenges in the area of data matching. To this end, each chapter of the book includes a final section that provides pointers to further background and research material. Practitioners will better understand the current state of the art in data matching as well as the internal workings and limitations of current systems. Especially, they will learn that it is often not feasible to simply implement an existing off-the-shelf data matching system without substantial adaption and customization. Such practical considerations are discussed for each of the major steps in the data matching process.
This handbook offers comprehensive coverage of recent advancements in Big Data technologies and related paradigms. Chapters are authored by international leading experts in the field, and have been reviewed and revised for maximum reader value. The volume consists of twenty-five chapters organized into four main parts. Part one covers the fundamental concepts of Big Data technologies including data curation mechanisms, data models, storage models, programming models and programming platforms. It also dives into the details of implementing Big SQL query engines and big stream processing systems. Part Two focuses on the semantic aspects of Big Data management including data integration and exploratory ad hoc analysis in addition to structured querying and pattern matching techniques. Part Three presents a comprehensive overview of large scale graph processing. It covers the most recent research in large scale graph processing platforms, introducing several scalable graph querying and mining mechanisms in domains such as social networks. Part Four details novel applications that have been made possible by the rapid emergence of Big Data technologies such as Internet-of-Things (IOT), Cognitive Computing and SCADA Systems. All parts of the book discuss open research problems, including potential opportunities, that have arisen from the rapid progress of Big Data technologies and the associated increasing requirements of application domains. Designed for researchers, IT professionals and graduate students, this book is a timely contribution to the growing Big Data field. Big Data has been recognized as one of leading emerging technologies that will have a major contribution and impact on the various fields of science and varies aspect of the human society over the coming decades. Therefore, the content in this book will be an essential tool to help readers understand the development and future of the field.
The problem of privacy-preserving data analysis has a long history spanning multiple disciplines. As electronic data about individuals becomes increasingly detailed, and as technology enables ever more powerful collection and curation of these data, the need increases for a robust, meaningful, and mathematically rigorous definition of privacy, together with a computationally rich class of algorithms that satisfy this definition. Differential Privacy is such a definition. The Algorithmic Foundations of Differential Privacy starts out by motivating and discussing the meaning of differential privacy, and proceeds to explore the fundamental techniques for achieving differential privacy, and the application of these techniques in creative combinations, using the query-release problem as an ongoing example. A key point is that, by rethinking the computational goal, one can often obtain far better results than would be achieved by methodically replacing each step of a non-private computation with a differentially private implementation. Despite some powerful computational results, there are still fundamental limitations. Virtually all the algorithms discussed herein maintain differential privacy against adversaries of arbitrary computational power -- certain algorithms are computationally intensive, others are efficient. Computational complexity for the adversary and the algorithm are both discussed. The monograph then turns from fundamentals to applications other than query-release, discussing differentially private methods for mechanism design and machine learning. The vast majority of the literature on differentially private algorithms considers a single, static, database that is subject to many analyses. Differential privacy in other models, including distributed databases and computations on data streams, is discussed. The Algorithmic Foundations of Differential Privacy is meant as a thorough introduction to the problems and techniques of differential privacy, and is an invaluable reference for anyone with an interest in the topic.
A comprehensive compilation of new developments in data linkage methodology The increasing availability of large administrative databases has led to a dramatic rise in the use of data linkage, yet the standard texts on linkage are still those which describe the seminal work from the 1950-60s, with some updates. Linkage and analysis of data across sources remains problematic due to lack of discriminatory and accurate identifiers, missing data and regulatory issues. Recent developments in data linkage methodology have concentrated on bias and analysis of linked data, novel approaches to organising relationships between databases and privacy-preserving linkage. Methodological Developments in Data Linkage brings together a collection of contributions from members of the international data linkage community, covering cutting edge methodology in this field. It presents opportunities and challenges provided by linkage of large and often complex datasets, including analysis problems, legal and security aspects, models for data access and the development of novel research areas. New methods for handling uncertainty in analysis of linked data, solutions for anonymised linkage and alternative models for data collection are also discussed. Key Features: Presents cutting edge methods for a topic of increasing importance to a wide range of research areas, with applications to data linkage systems internationally Covers the essential issues associated with data linkage today Includes examples based on real data linkage systems, highlighting the opportunities, successes and challenges that the increasing availability of linkage data provides Novel approach incorporates technical aspects of both linkage, management and analysis of linked data This book will be of core interest to academics, government employees, data holders, data managers, analysts and statisticians who use administrative data. It will also appeal to researchers in a variety of areas, including epidemiology, biostatistics, social statistics, informatics, policy and public health.
The escalation of security breaches involving personally identifiable information (PII) has contributed to the loss of millions of records over the past few years. Breaches involving PII are hazardous to both individuals and org. Individual harms may include identity theft, embarrassment, or blackmail. Organ. harms may include a loss of public trust, legal liability, or remediation costs. To protect the confidentiality of PII, org. should use a risk-based approach. This report provides guidelines for a risk-based approach to protecting the confidentiality of PII. The recommend. here are intended primarily for U.S. Fed. gov¿t. agencies and those who conduct business on behalf of the agencies, but other org. may find portions of the publication useful.
This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
A comprehensive compilation of new developments in data linkage methodology The increasing availability of large administrative databases has led to a dramatic rise in the use of data linkage, yet the standard texts on linkage are still those which describe the seminal work from the 1950-60s, with some updates. Linkage and analysis of data across sources remains problematic due to lack of discriminatory and accurate identifiers, missing data and regulatory issues. Recent developments in data linkage methodology have concentrated on bias and analysis of linked data, novel approaches to organising relationships between databases and privacy-preserving linkage. Methodological Developments in Data Linkage brings together a collection of contributions from members of the international data linkage community, covering cutting edge methodology in this field. It presents opportunities and challenges provided by linkage of large and often complex datasets, including analysis problems, legal and security aspects, models for data access and the development of novel research areas. New methods for handling uncertainty in analysis of linked data, solutions for anonymised linkage and alternative models for data collection are also discussed. Key Features: Presents cutting edge methods for a topic of increasing importance to a wide range of research areas, with applications to data linkage systems internationally Covers the essential issues associated with data linkage today Includes examples based on real data linkage systems, highlighting the opportunities, successes and challenges that the increasing availability of linkage data provides Novel approach incorporates technical aspects of both linkage, management and analysis of linked data This book will be of core interest to academics, government employees, data holders, data managers, analysts and statisticians who use administrative data. It will also appeal to researchers in a variety of areas, including epidemiology, biostatistics, social statistics, informatics, policy and public health.