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REIMAGINE CANCER SUVIVAL That's what cancer survivor Mark Roby wants you to do. On December 30, 2002, Roby was diagnosed with one of the rarest cancers in the world and told it was unresponsive to all known chemotherapy. His oncologist suggested he "accept the inevitable," but Roby thought otherwise. Quickly realizing that conventional thinking would do little to help him, he created his own, personalized treatment plan targeting his specific tumor. And he survived This is Roby's story, but more importantly it's his compilation of the many resources he painstakingly discovered and wants to share with others who are fighting similar battles. With a medical insider's knowledge of what it takes to stay alive when all the odds are against you, Lifelines to Cancer Survival is the first book to help guide cancer patients toward advanced modalities and testing, such as genetic profiling, personalized vaccines, and more. Roby wants to lead the charge of patients directing and supervising their own care.
NEW YORK TIMES BESTSELLER • A searing, deeply moving memoir of illness and recovery that traces one young woman’s journey from diagnosis to remission to re-entry into “normal” life—from the author of the Life, Interrupted column in The New York Times ONE OF THE BEST BOOKS OF THE YEAR: The New York Times Book Review, The Washington Post, Bloomberg, The Rumpus, She Reads, Library Journal, Booklist • “I was immersed for the whole ride and would follow Jaouad anywhere. . . . Her writing restores the moon, lights the way as we learn to endure the unknown.”—Chanel Miller, The New York Times Book Review “Beautifully crafted . . . affecting . . . a transformative read . . . Jaouad’s insights about the self, connectedness, uncertainty and time speak to all of us.”—The Washington Post In the summer after graduating from college, Suleika Jaouad was preparing, as they say in commencement speeches, to enter “the real world.” She had fallen in love and moved to Paris to pursue her dream of becoming a war correspondent. The real world she found, however, would take her into a very different kind of conflict zone. It started with an itch—first on her feet, then up her legs, like a thousand invisible mosquito bites. Next came the exhaustion, and the six-hour naps that only deepened her fatigue. Then a trip to the doctor and, a few weeks shy of her twenty-third birthday, a diagnosis: leukemia, with a 35 percent chance of survival. Just like that, the life she had imagined for herself had gone up in flames. By the time Jaouad flew home to New York, she had lost her job, her apartment, and her independence. She would spend much of the next four years in a hospital bed, fighting for her life and chronicling the saga in a column for The New York Times. When Jaouad finally walked out of the cancer ward—after countless rounds of chemo, a clinical trial, and a bone marrow transplant—she was, according to the doctors, cured. But as she would soon learn, a cure is not where the work of healing ends; it’s where it begins. She had spent the past 1,500 days in desperate pursuit of one goal—to survive. And now that she’d done so, she realized that she had no idea how to live. How would she reenter the world and live again? How could she reclaim what had been lost? Jaouad embarked—with her new best friend, Oscar, a scruffy terrier mutt—on a 100-day, 15,000-mile road trip across the country. She set out to meet some of the strangers who had written to her during her years in the hospital: a teenage girl in Florida also recovering from cancer; a teacher in California grieving the death of her son; a death-row inmate in Texas who’d spent his own years confined to a room. What she learned on this trip is that the divide between sick and well is porous, that the vast majority of us will travel back and forth between these realms throughout our lives. Between Two Kingdoms is a profound chronicle of survivorship and a fierce, tender, and inspiring exploration of what it means to begin again.
A NEW YORK TIMES BESTSELLER As a healthy, happy thirty-nine-year-old mother with no family history of breast cancer, being diagnosed with the disease rocked Hollye Jacobs’s world. Having worked as a nurse, social worker, and child development specialist for fifteen years, she suddenly found herself in the position of moving into the hospital bed. She was trained as a clinician to heal. In her role as patient, the healing process became personal. Exquisitely illustrated with full-color photographs by Hollye’s close friend, award-winning photographer Elizabeth Messina, The Silver Lining is both Hollye’s memoir and a practical, supportive resource for anyone whose life has been touched by breast cancer. In the first section of each chapter, she describes with humor and wisdom her personal experience and gives details about her diagnosis, treatment, side effects, and recovery. The second section of each chapter is told from Hollye’s point of view as a medical expert. In addition to providing a glossary of important terms and resources, she addresses the physical and emotional aspects of treatment, highlights what patients can expect, and provides action steps, including: What to do when facing a diagnosis How to find the best and most supportive medical team What questions to ask What to expect at medical tests How to talk with and support children How to relieve or avoid side effects How to be a supportive friend or family member How to find Silver Linings Looking for and finding Silver Linings buoyed Hollye from the time of her diagnosis throughout her double mastectomy, chemotherapy, radiation, and recovery. They gave her the balance and perspective to get her through the worst days, and they compose the soul of the book. The Silver Lining of Hollye’s illness is that she can now use the knowledge gleaned from her experience to try to make it better for those who have to follow her down this difficult path. This is why she is sharing her story. Hollye is the experienced girlfriend who wants to help shed some light in the darkness, provide guidance through the confusion, and hold your hand every step of the way. At once comforting and instructive, realistic and inspiring, The Silver Lining is a visually beautiful, poignant must-read for everyone who has been touched by cancer.
Life Lines: A Daily Journey is the very personal pilgrimage- in poetry and prayer- of a year in the life of the author, as she seeks to make sense of the world around her; to look at and celebrate the dailiness of life; and to deal with the pitfalls and challenges of simply being human. Because it touches on all 366 days of the year, this evocative book can also serve as a daily companion for anyone making their own life journey; anyone seeking an open, understanding, sometimes funny, often irreverent, always thoughtful, companion along the way; anyone desiring that companion to deal honestly and with great personal integrity with both the complex and mundane issues of daily life.
In I've Been Diagnosed, Now What? Courageously Fighting Cancer in the Face of Fear, Uncertainty and Doubt Ms. Nolen, a seven-year survivor of Stage 3 Inflammatory Breast Cancer, shares her journey from uninformed patient to self-advocate. After coming to grips with the diagnosis, she made a conscious decision to get the best treatment available and to bring together the best support team possible. She used a variety of methods, including internet research, word of mouth, and joining support groups to learn how to build a strong medical team and surround herself with a support structure of her family, friends, and social media communities. Now having passed the critical five-year survival mark, Ms. Nolen is sharing her strategies with other survivors who may be feeling isolated and uncertain. With inspiring stories from other survivors, resource lists for every stage of the process, and survivor secrets she learned along the way, readers will be able to build their own community of support and not just survive, but thrive!
The actress producer, and wife of actor Charles Bronson traces her life--and her fight for that life--after she learned she had cancer
I Am with You is an anthology written by and for amazing cancer patients everywhere. Over 40 women and men who have "walked the walk" of living with cancer ... be it their own diagnosis or that of someone they love ... share their stories to sustain, support, and give you hope. I Am With You is a book of wisdom, wit, inspiration, compassion, and love. Every story you read speaks to the power of those simple, exquisite words "I am with you."
"Cancer can be a very lonely journey that only those who have traveled it truly understand. This book is for those who understand and for those who love and want to help them"--Page 4 of cover.
A specialist in elder care, Dr. Muriel Gillick examines the complications of lives lived far longer than ever before. This book aims to help the frail elderly and their families cope with the often unforeseen dilemmas of aging: the most common chronic ailments, the acute problems, and their impact on living options. Tracing the stories of four people, Dr. Gillick highlights the various challenges and decisions that arise when frailty develops and discusses the importance of prevention and social responsibility in assessing, treating, and living with frailty. " G]ives me hope that if the worst should come, there is help to be found and meaning to be derived." John Kotre, author of "Make It Count""
In Fungible Life Aihwa Ong explores the dynamic world of cutting-edge bioscience research, offering critical insights into the complex ways Asian bioscientific worlds and cosmopolitan sciences are entangled in a tropical environment brimming with the threat of emergent diseases. At biomedical centers in Singapore and China scientists map genetic variants, disease risks, and biomarkers, mobilizing ethnicized "Asian" bodies and health data for genomic research. Their differentiation between Chinese, Indian, and Malay DNA makes fungible Singapore's ethnic-stratified databases that come to "represent" majority populations in Asia. By deploying genomic science as a public good, researchers reconfigure the relationships between objects, peoples, and spaces, thus rendering "Asia" itself as a shifting entity. In Ong's analysis, Asia emerges as a richly layered mode of entanglements, where the population's genetic pasts, anxieties and hopes, shared genetic weaknesses, and embattled genetic futures intersect. Furthermore, her illustration of the contrasting methods and goals of the Biopolis biomedical center in Singapore and BGI Genomics in China raises questions about the future direction of cosmopolitan science in Asia and beyond.