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Meet Sydney, a girl who likes the same things other kids doriding her bike, playing baseball, and hanging out with her friends. Sydney also has cerebral palsy, which makes walking, talking, and using her hands difficult. Sydney shares her first hand account of life with cerebral palsy in I Have Cerebral Palsy so that others can understand what her life is like. Most importantly, Sydney wants her story to help other kids feel more comfortable around people with disabilities. Readers can learn about the different items that make it easier for Sydney to be mobile, eat or write in the fact-filled section about adaptive technology. Information about the Miracle League, the volunteer-based program that makes it possible for children with a variety of disabilities play baseball is also included. Additional resources are available to learn more about cerebral palsy and organizations that help children with disabilities and their families lead active lives.
When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday. Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy. The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child. In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading.
The 4th edition of Finnie's Handling the Young Child with Cerebral Palsy at Home has been updated to reflect the current practices of today. It aims to help parents assist their child with cerebral palsy (CP) towards achieving the most comfortable independence in all activities. It is hoped to show how, by using typical parenting skills, which involve guiding and exposing a child to develop through challenging experiences, the child with CP will also develop. The book is also intended to help professionals and other carers new to this field understand, support and encourage young children with CP and their families.Over the years since the first edition of this book was written ideas on appropriate therapies have changed and developed. Similarly opinion on early intervention has changed and the method of delivery of service has in some places moved from centralisation to home-based or community provision. The emphasis of this new edition however remains on a holistic approach to the child's needs seeing the difficulties in relation to the overall development of the child as a unique person from childhood to adulthood. - Assessment procedures and prediction of future abilities - Management of problems (including medication if appropriate) such as epilepsy, constipation, eneurisis, nourishment, difficulty with sleeping, crying, temper tantrums, sensory deficits and deformity - Stimulation, fitness, problem solving, compensatory strategies and ease of management - New chapters include Neuroimaging, Epilepsy, Emotional health, Orthotics, Spasticity management, and Complementary and alternative medicine - Over 460 revised illustrations showing different pieces of equipment which may be helpful and ways of holding and moving a child with cerebral palsy - Chapters on Sleeping, Feeding, Lifting and Carrying, Toileting, Communication and Fine motor movement have been completely re-written by a professional specialising in the particular field
A great starting point for parents and professionals when they first encounter cerebral palsy, this book provides essential information on causes, types, symptoms and treatments as well as practical tips on everyday considerations such as communication and diet. This positive handbook will help readers more fully understand cerebral palsy.
by A. Berthoz The publication of this volume, edited by Adriano Ferrari and Giovanni Cioni, is a major event for several reasons. Most importantly, it concerns an area of child pathology that has yet to be fully explored. In this context, the authors’ efforts to compile their observations as well as those of other clinicians and to elaborate their theories have resulted in an ess- tial step in the field of cerebral palsy (CP). The originality of the book is its very clear focus, while at the same time the authors have encouraged the book’s contributors to express their ideas and personal opinions. This leads sometimes to redundancy, but this is precisely one of the benefits of the book - cause the same problems are then exposed from different points of views. The reader is thus spared the normative attempts of many other pathology books, in which the compl- ity of a given disease is hidden by the authors’ or editors’ desire to impose a rigid taxo- my or epidemiology.
The Cerebral Palsy Tool Kit was created to help you sort through the initial emotions in response to your child or loved one receiving a diagnosis of CP and to answer your questions and concerns related to CP. It will guide you through the initial diagnosis period, direct you to other helpful resources and provide information to you about the different approaches to treating and managing CP.
"A must-read for professionals, parents, and the individual with CP."-Deborah Gaebler-Spira, MDAn empowering and evidence-based guide for living a full life with spastic diplegia-bilateral cerebral palsy."This detailed and practical book on spastic diplegia, written by a parent in conjunction with medical practitioners at Gillette, is simply brilliant and fills a huge gap."-Lori Poliski, parentCerebral palsy (CP) is the most common cause of childhood-onset lifelong physical disability. Approximately one-third of those with CP have the subtype spastic diplegia-also known as bilateral spastic CP, or simply bilateral CP. An estimated 6 million worldwide have spastic diplegia. Until now, there has been no book focused on this condition to help this large group of people. This book focuses on the motor problems-problems with bones, muscles, and joints, and their impact on walking. The Gross Motor Function Classification System (GMFCS) is a five-level system that indicates the severity of the condition. This book is relevant to those at GMFCS levels I to III: those who are capable of walking independently or with a handheld mobility device. These three levels account for the majority of people with spastic diplegia.The book addresses how spastic diplegia develops over the lifespan and explains the evidence-based, best-practice treatments. It empowers parents of young children, and adolescents and adults with the condition, to become better advocates and co-decision makers in the medical process. The focus of this optimistic, yet practical book is on maximizing activity and participation-living life to its fullest. Health care professionals, educators, students, and extended family members will also benefit from reading this book. Indeed, while this book focuses on spastic diplegia, much of what is addressed also applies to other forms of spastic CP at GMFCS levels I to III, namely hemiplegia and quadriplegia.Written by Lily Collison, a parent of a son with spastic diplegia and a medical sciences graduate, in close collaboration with senior medical experts from Gillette Children's Specialty Healthcare-a world-renowned center of excellence for CP treatment-this is an excellent, long-needed resource for spastic diplegia.
The definitive manual of pediatric medicine - completely updated with 75 new chapters and e-book access.
Children with complex cerebral palsy (typically, but not always, GMFCS levels IV and V) require skilled management and extensive expertise which can be overwhelming or intimidating for many clinical practitioners. This book explores management of the many medical comorbidities these children encounter, including orthopedic concerns, mobility and equipment needs, cognition and sensory impairment, difficult behaviors, seizures, respiratory complications and nutritional challenges, among many others. Summary points at the end of each chapter provide at-a-glance access to key recommendations. In addition, an Appendix provides adaptable care tools to guide clinicians in evaluation, preventive care and crisis management. Importantly, the book includes contributions from parents of children with cerebral palsy and youth with cerebral palsy, providing unique and critical wisdom for family-centred care. Parents and families of children and youth with complex cerebral palsy will particularly appreciate the inclusion of chapters on adolescence, transition to adulthood, and growing up, growing well with cerebral palsy.