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The first text to explore the history, characteristics, and challenges of hospice social work, this volume weaves leading research into an underlying framework for practice and care. A longtime practitioner, Dona J. Reese describes the hospice social work role in assessment and intervention with individuals, families, groups, organizations, and the community, while honestly confronting the personal and professional difficulties of such life-changing work. She introduces a well-tested model of psychosocial and spiritual variables that predict hospice client outcomes, and she advances a social work assessment tool to document their occurrence. Operating at the center of national leaders' coordinated efforts to develop and advance professional organizations and guidelines for end-of-life care, Reese reaches out with support and practice information, helping social workers understand their significance in treating the whole person, contributing to the cultural competence of hospice settings, and claiming a definitive place within the hospice team.
The health care industry offers many opportunities for a challenging and fulfilling career with only two years of post-high school education. Workers in the hospital and home health fields provide essential care around the clock to some of the most vulnerable patients and the elderly. Readers explore a range of career options within these fields, including practical or visiting nurse, social service aide, home health aide, and medical equipment technician, among others. Clear, accessible text and evocative photos give a sense of each job's responsibilities and work environment. Useful information about training requirements, certification and licensing tests, and paths to advancement empower readers to pursue their goals.
Millions of people in the United States live with serious illnesses such as cancer, heart disease, chronic obstructive pulmonary disorder (COPD), amyotrophic lateral sclerosis, Parkinson's disease, and dementiaâ€"often for many years. Those facing serious illness have a range of interconnected medical and non-medical needs, and the way their care is financed has a large impact on the care they receive. Medicare is the predominant payer, but both Medicaid and private payers also play significant roles in financing care for serious illness. In an effort to address the complex needs of people with serious illness, public and private health care payers are testing innovative financing strategies and alternative payment models. These innovative approaches signal a gradual transition from the traditional-fee-for-service system that pays providers based on the quantity of services to a system based on the value of care provided and a heightened focus on improved quality of care at lower cost. To explore this evolving financing and payment landscape for serious illness care within public- and private-sector programs, the Roundtable on Quality Care for People with Serious Illness developed a workshop, Financing and Payment Strategies to Support High-Quality Care for People with Serious Illness. The workshop convened clinicians, researchers, policy analysts, and patient advocates, as well as representatives from academia, government and private health care plans, and insurers to discuss challenges and opportunities in financing high-quality care for people with serious illness. This publication summarizes the presentations and discussions from the workshop.
As professional caregivers working with people who are dying we face challenges other health care professionals do not. We must keep ourselves balanced and healthy amid constant sadness. We must create a fulfilling work environment. And we must maintain a happy, engaged, personal life.Health care workers are traditionally trained to make people better, not participate in their patient's dying and eventual death. End of life work goes against all we as professionals have been taught.This booklet is short and easy to read. It is filled with ideas and guidance for the nurse, social worker, nurse's aide, chaplain, physician, end of life doula, or Eleventh Hour volunteer. Anyone who is immersed in the responsibilities of supporting, educating, and guiding a person and their family through the dying experience can find insight into making their work healthier.
The Oxford Textbook of Palliative Social Work is a comprehensive, evidence-informed text that addresses the needs of professionals who provide interdisciplinary, culturally sensitive, biopsychosocial-spiritual care for patients and families living with life-threatening illness. Social workers from diverse settings will benefit from its international scope and wealth of patient and family narratives. Unique to this scholarly text is its emphasis on the collaborative nature inherent in palliative care. This definitive resource is edited by two leading palliative social work pioneers who bring together an array of international authors who provide clinicians, researchers, policy-makers, and academics with a broad range of content to enrich the guidelines recommended by the National Consensus Project for Quality Palliative Care.
Oncology and Palliative Social Work: Psychosocial Care for People Coping with Cancer illustrates the need for integrating early palliative care for patients with cancer and the important role social workers have in providing psychosocial support services across the cancer trajectory. There is a convergence of oncology and palliative social work specialties in the delivery of comprehensive, culturally-congruent, whole person cancer care. OPSW reflects the collective knowledge, skills, clinical experience and perspectives of a diverse group of interprofessional contributors, including best practices, emerging trends, and priorities in psychosocial oncology, and the impact of the COVID-19 pandemic on this evolving landscape. The volume is divided into four sections, each with five to eight thematically connected chapters. Topics include: diagnosing and treating cancer; equity, racism, cultural competence, and cultural humility; social determinants of health; cancer care amid pandemics, disasters and other traumatic events; survivorship, integrative programs, lifestyle and rehabilitation; innovative models in palliative care in oncology; the future direction of psychosocial oncology and palliative care, including research; psychosocial aspects of cancer; pain, symptom, and side effect management; a novel collaborative care model for people living with serious mental illness; interprofessional spiritual care; informal cancer caregivers; palliative and hospice care at the end of life; loss, grief, and bereavement; underrepresented, underserved, and vulnerable populations; ethical and legal issues; professional development and sustainability; credentialing, certification, and continuing education; technology; social work leadership skills; interprofessional practice; international oncology and palliative social work; and, strategies for guiding best practices for the future.
The teacher and gerontological social work scholar Mercedes Bern-Klug joins experts on nursing, law, medicine, sociology, and social work to provide a thorough understanding of nursing home palliative care. Their broad definition of palliative care treats comfort care as appropriate across the illness experience, not just at the end of life. Because a majority of nursing home residents are older adults facing multiple, advanced chronic conditions, this book is grounded in the provision of palliative care-especially palliative psychosocial care. Yet its practice recommendations can also be applied to other long-term care settings, such as assisted living. The contributors combine scholarship with practical wisdom in each chapter, mixing reviews of scholarly literature with insights gleaned from clinical practice. Chapter topics comply with the eight domains of palliative care developed by the National Consensus Project for Quality Palliative Care. Some focus on care of the resident, while others concern the resident's family. A special section addresses self-care for nursing home staff members, and another discusses nursing home rituals to mark the death of a resident. Bern-Klug concludes with an overview of the factors that will shape the future of palliative care for advanced chronic illness.
This “comforting…thoughtful” (The Washington Post) guide to maintaining a high quality of life—from resilient old age to the first inklings of a serious illness to the final breath—by the New York Times bestselling author of Knocking on Heaven’s Door is a “roadmap to the end that combines medical, practical, and spiritual guidance” (The Boston Globe). “A common sense path to define what a ‘good’ death looks like” (USA TODAY), The Art of Dying Well is about living as well as possible for as long as possible and adapting successfully to change. Packed with extraordinarily helpful insights and inspiring true stories, award-winning journalist Katy Butler shows how to thrive in later life (even when coping with a chronic medical condition), how to get the best from our health system, and how to make your own “good death” more likely. Butler explains how to successfully age in place, why to pick a younger doctor and how to have an honest conversation with them, when not to call 911, and how to make your death a sacred rite of passage rather than a medical event. This handbook of preparations—practical, communal, physical, and spiritual—will help you make the most of your remaining time, be it decades, years, or months. Based on Butler’s experience caring for aging parents, and hundreds of interviews with people who have successfully navigated our fragmented health system and helped their loved ones have good deaths, The Art of Dying Well also draws on the expertise of national leaders in family medicine, palliative care, geriatrics, oncology, and hospice. This “empowering guide clearly outlines the steps necessary to prepare for a beautiful death without fear” (Shelf Awareness).
Develop a CORPORATE CULTURE that puts PATIENTS and their FAMILIES FIRST. The MONEY will follow. Hospice work is not for the faint of heart. It takes courage, commitment and accountability to succeed. When hospice is at its finest, a properly trained, passionate staff can make a profound difference in the lives of the dying. Hospice regulations have become more stringent and scrutiny has become more intense. More and more, leaders have turned their focus to documentation and the bottom line and away from the mission of the work. Author Patrice Moore has the win-win solution. No Mission No Margin is THE essential guidebook for managers, board members, and other operational executives to build profitable financial plans that focus on what matters most – the patients and their families.