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The devastating words Congenital Heart Defect thrust parents of more than 36,000 children annually into a frightening, dark tunnel—dramatically changing the dynamics of each family. Because CHD, attacks unexpectedly, parents reel, bombarded with information regarding treatments, tests, and decisions—as parents echo, "I’ve never felt so alone. I can’t believe this is happening to us." From the initial diagnosis and throughout the daunting journey, the twelve chapters and resources in this guide weave advice, support, and hope from fellow travelers and medical professionals who come alongside through encouraging short stories, refreshing helpful hints, and inspiring scriptures and prayers. Many weary parents pull apart as communication breaks down during these devastating times—sometimes far apart. You-niquely Made is a section that helps family members appreciate different personalities and methods of coping. Overwhelmed families find comfort and courage as they read about the struggles parents face, balancing needs of their child and family (the set-aside spouses and the invisible ones—siblings) and self—the caregiver. Readers come to understand—the new normal of congenital heart disease. Heartfelt stories also include becoming your child’s advocate, reactions to stages of grief including unexpected waves and survivor’s guilt. This second book in the "You Are Not Alone" book series joins national award winning, Hope for Families of Children with Cancer, shining rays of light in the darkness.
Enter into the world of two young girls, each diagnosed with congenital heart disease, and witness how their unique paths translate into an instant connection between them. Their rare journeys, complete with surgeries at young ages and other complexities difficult for children to process, lends itself to forging a friendship that has given them the confidence to endure the lifelong fight against their CHDs and the emotional challenges that follow. The rainbows and storms the girl face side-by-side creates a special bond that helps carry them through challenges, yet also normalizes their childhood, including embracing their warrior zipper scar. Faith, hope, and love is instilled in the girls from their mothers and proves to be the anchor of all the uncertainty and their roadmap for learning to support each other along the way.
A family conquers grief and lost expectations raising their son born with half a heart, while navigating complex medical challenges.
Fox News Channel anchor Bret Baier shares the New York Times bestselling story of his son Paul's ongoing battle with heart disease, and how it transformed his own life and family. This deeply touching personal story is told through the eyes of a journalist as he faces his life's greatest crisis: caring for his critically ill son. With the acute insight of a seasoned reporter, and the deep love of a husband and father, Baier shares behind-the-scenes stories and emotional narrative of young Paul's life thus far. Bret and his wife Amy emerge-just like their brave young son-scarred but infinitely stronger, and clearly understanding what matters most in life. Told by a loving father and master storyteller, this hope-filled account offers an inspirational glimpse into the family of a man who just happens to be someone millions turn to for the day's news. One hundred percent of what the author receives from the sale of this book is donated to various non-profit pediatric heart causes.
Pediatric Home Care is a practice-based text perfect for either students or for supporting pediatric nurses practicing in a home-care setting. The text includes a variety of nursing information required for this type of care across a large spectrum of physiologic categories and acuity levels. The Third Edition has been completely revised and updated to reflect the most current practice and technology and includes a new focus on evidence based practice.
Heart disease affects millions of people every year. The MLA Guide to Finding Out About Heart Disease organizes and offers evaluated print and online resources to help readers develop a collection or research specific medical options, incorporating important data and key concepts about risk factors and symptoms of heart disease.
The story of Gio's Heart was inspired by the life of my son, Gianni "Gio" Young, who was born with a congenital heart defect called Hypoplastic Left Heart Syndrome or HLHS. Gio's Heart embellishes on personal lessons learned throughout a challenging ICU experience to illustrate the effect that one child's heart had on all who were connected to him. Gio's Heart encourages the spread of love, forgiveness, hope, and kindness, as well as allows young readers to practice visual recognition, use their motor skills, and use their imagination. Gio's Heart was written and illustrated with young children who have brief or extended stays in the ICU, as well as their parents and family members in mind. It is our hope that you can find support, representation, and encouragement within this book. Gio's Heart is dedicated to Gio and to all of the brave children with congenital heart defects worldwide.
Decklan was born with a heart defect and faced open heart surgery at five weeks old. After fighting many battles in the hospital, the boy born blue used his strength to turn into a real-life superhero.