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Based on research into ten key areas relevant to dementia, this book offers practical advice and suggestions.
As a focus for academic and professional study, dementia has moved rapidly from the margin to the mainstream during the last decade. Understanding of this distressing condition, its aetiology and recognition, has become much more widespread and sophisticated. Building on such clinical knowledge, this book challenges the reader - to think ethically and in a person-centred way about the implications of dementia at a personal, planning and service provision level - to consider consumer perspectives, not only those of carers but also the much neglected views of individuals with dementia - to explore less well documented areas such as dementia and Down's Syndrome, depression and early onset dementia. In conclusion, the book illuminates selected topical developments in service provision such as community care, advocacy and aspects of the built and social care environment.
Dementia has been widely debated from the perspectives of biomedicine and social psychology. This book broadens the debate to consider the experiences of men and women with dementia from a sociopolitical perspective. It brings to the fore the concept of social citizenship, exploring what it means within the context of dementia and using it to re-examine the issue of rights, status(es), and participation. Most importantly, the book offers fresh and practical insights into how a citizenship framework can be applied in practice. It will be of interest to health and social care professionals, policy makers, academics and researchers and people with dementia and family carers may find it revitalising.
Receiving a diagnosis of Alzheimer's disease profoundly alters lives and creates endless uncertainty about the future. How does a person cope with such a life-changing discovery? What are the hopes and fears of someone living with this disease? How does he want to be treated? How does he feel as the disease alters his brain, his relationships, and ultimately himself? Richard Taylor provides illuminating responses to these and many other questions in this collection of provocative essays. Diagnosed with Alzheimer's disease at age 61, the former psychologist courageously shares an account of his slow transformation and deterioration and the growing division between his world and the world of others. With poignant clarity, candor, and even occasional humor, more than 80 brief essays address difficult issues faced by those with Alzheimer's disease, including the loss of independence and personhood unwanted personality shifts communication difficulties changes in relationships with loved ones and friends the declining ability to perform familiar tasks This rare, insightful exploration into the world of individuals with Alzheimer's disease is a captivating read for anyone affected personally or professionally by the devastating disease. Individuals with early-stage Alzheimer's disease will take comfort in the voice of a fellow traveler experiencing similar challenges, frustrations, and triumphs. Family and professional caregivers will be enlightened by Taylor's revealing words, gaining a better understanding of an unfathomable world and how best to care for someone living in it.
The meanings and causes of hearing voices that others cannot hear (auditory verbal hallucinations, in psychiatric parlance) have been debated for thousands of years. Voice-hearing has been both revered and condemned, understood as a symptom of disease as well as a source of otherworldly communication. Those hearing voices have been viewed as mystics, potential psychiatric patients or simply just people with unusual experiences, and have been beatified, esteemed or accepted, as well as drugged, burnt or gassed. This book travels from voice-hearing in the ancient world through to contemporary experience, examining how power, politics, gender, medicine and religion have shaped the meaning of hearing voices. Who hears voices today, what these voices are like and their potential impact are comprehensively examined. Cutting edge neuroscience is integrated with current psychological theories to consider what may cause voices and the future of research in voice-hearing is explored.
There has been a considerable and welcome growth of publications about dementia care and Jessica Kingsley Publishers has certainly played a very useful part in this growth... we need more not less of this quality of work and writing if society is to include those with dementia as full citizens.' - Christian Council on Ageing 'The editors are to be congratulated on assembling a collection of contributions which make this book a milestone in the literature on dementia research and practice... [They] have collected papers on extraordinarily diverse issues and from a very diverse set of authors. Each of the chapters can be seen as an invaluable introduction to the topic area as well as addressing the main theme of the book. It is a milestone book because it manages to provide a snapshot of dementia studies at this moment in time and will, in my view, be widely quoted by policy makers, practice developers, researchers and trainers for the next few years... In such a treasure trove of approaches and issues it is hard to pick out the most striking... I would recommend this book: all readers of the journal will find chapters that they can use to improve dementia care.' - Journal of Dementia Care 'What makes this particularly notable is that Innes, Archibald and Murphy have harnessed such individual voices to address so cogently. Together they address the core issues, all too often neglected or marginalized, in dementia research and care. Sexuality, communication, risk taking, ethnicity, incontinence and practices within remote rural communities are all subjects that draw threads from the very fabric of our society, and it is indicative of how wide the spectrum has broadened that these historically dispirit strands can be tackled constructively.' - Signpost 'A diverse range of subjects are covered in a series of papers written by numerous professionals of standing from various disciplines... The subjects covered include ethnicity, spirituality, sexuality, dying with dementia (palliative care), faecal incontinence and risk-taking. There is a section addressing aspects of communicating with people with dementia and another covering the medical aspects of dementia that have not had much focus in recent years, such as hypertension and diabetes. Finally, there is a social science perspective, including discussing ways that people with dementia can be involved in the research process. I found the book easy to read and it is well written and clearly presented. Covering marginalized areas of practice, it offers food for thought for the reader and is a welcome addition to current literature'. - British Journal of Occupational Therapy 'This book provides invaluable research results and innovative thinking which professionals studying gerontology and dementia care will find very useful throughout their careers.' - London Centre for Dementia Care Newsletter 'The contributors to this volume examine the barriers to the consideration of social inclusion in the field of dementia studies and argue for the necessity of acknowledging the personhood of all individuals with dementia. The papers discuss the sexuality of people with dementia, communication and risk taking, and dementia care in remote rural communities, among other topics. The volume ends with suggestions for more inclusive values, service development, theory and research'. - Book News 'The book, commendably, tries to look at marginalized issues within dementia, such as death and dying, sexuality and faecal incontinence.' - Mental Health Today 'This is a book for the connoisseur. I wish I had contributed a paper. I wish I had read it even earlier. It will be appreciated by many people, from many backgrounds. This is the study of dementia and dementia-care grown to a new maturity. Chapters are original research papers, communicating new findings and analyses, set in the context of previous knowledge, well reviewed... Thanks to the editors and authors for this little gift. Let's be sure it is read widely.' - David Jolley, director of Dementiaplus Examining important issues in dementia research and care that are often neglected or marginalized, the contributors to this book provide fresh perspectives on current practice. The authors put dementia care into a socio-cultural framework, highlighting the impact of social change on dementia care over the last two decades and challenging current stereotypes. The contributors address the implications of power relationships between carers and people with dementia and discuss a broad spectrum of issues, including: * the sexuality of people with dementia * communication and risk taking * people with dementia from minority ethnic groups * faecal incontinence * dementia care and practice in remote rural communities. Taking an in-depth look at dementia research and service development, this book makes essential reading for practitioners, researchers and students working in the field of dementia care.
This book discusses the aging voice, one of the interesting issues related to aging. Population aging is an issue in most developed countries, where both physicians and specialists are required to improve clinical and scientific practice for elderly adults. In particular, the need for expertise in the diagnosis and treatment of aging voice pathologies is increasing continually. New developments in regenerative medicine have taken care for the aging voice to new level, and the contributors to this book use their wealth of experience in the field of the aging voice to present the latest advances in this field. This book is a unique resource, providing new perspectives for physicians, clinicians and health care workers who are interested in the aging voice.
Dementia is a significant health issue facing our aging population. Although there is no known cure, there is increasing evidence that music is an effective treatment for various symptoms of dementia. Music therapy and musical activities can have widespread benefits for people with dementia and their caretakers, including triggering memories, enhancing relationships, reducing agitation, and improving mood. This book outlines the current research on music and dementia from internationally renowned music therapists, music psychologists, and clinical neuropsychologists.
"Hearing Voices" features the work of students and faculty in our Community, Liberation, Indigenous, and Eco-Psychologies (CLIE) M.A./Ph.D. specialization, as we participate in transformative practices, artistic creations, and theoretical innovations going on in the communities and environments we share. We meet on campus three days a month for nine months of the year from various places in the U.S. and abroad. During the summer students are involved in fieldwork and research in sites of their own choosing based on interest, commitment, and vocation. Our program brings together community, liberation, and depth psychologies with environmental justice initiatives and indigenous epistemologies and practices in order to be part of the critical work of establishing a 21st century curriculum and practice with a growing emphasis on decoloniality. As prospective students consider applying to CLIE, their most common and pressing question is "What are graduates doing?" A good way to get an overview of this is to read the student and alumni news section in each issue of Hearing Voices. We are especially grateful to the incredible artists who contributed their creative inspiration to this edition.
First published: Australia: HarperCollinsReligious, 1998.