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Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
This book examines choice and preference in the lives of people with disability, focusing on people with intellectual and developmental disabilities. It provides an overview of choice and examines foundational concepts related to choice and preference, including self-determination and supported decision making. Chapters examine a range of critical service and policy issues, such as guardianship, individualized funding, the health care system, and the situation regarding choices for people with disability in international contexts. In addition, chapters explore issues ranging from the development of preference and choice in childhood to choices in older age and end of life matters. It provides in-depth analysis of particular choices faced at different points across the lifespan. The book concludes with implications for policy and practice. Topics featured in this book include: Supported decision making for adults with intellectual disabilities or acquired brain injury. The role of parents and families in the development of choice-making skills. Preference assessments for individuals who cannot tell us what they prefer. Employment opportunities for people with intellectual disabilities. Sexual and reproductive rights for people with intellectual disabilities. Disability and the choice to become a parent. Choice, Preference, and Disability is an essential resource for researchers, professors, clinicians, therapists, and other professionals as well as graduate students in the fields of developmental and positive psychology, rehabilitation, social work, special education, occupational, speech and language therapy, public health, and healthcare policy.
This handbook presents a diverse range of effective treatment approaches for individuals with intellectual and developmental disabilities (IDD). Its triple focus on key concepts, treatment and training modalities, and evidence-based interventions for challenging behaviors of individuals with IDD provides a solid foundation for effective treatment strategies, theory-to-implementation issues, and the philosophical and moral aspects of care. Expert contributions advocate for changes in treating individuals with intellectual and developmental disabilities by emphasizing caregiver support as well as respecting and encouraging client autonomy, self-determination, and choice. With its quality-of-life approach, the handbook details practices that are person-centered and supportive as well as therapeutically sound. Topics featured in the handbook include: Functional and preference assessments for clinical decision making. Treatment modalities from cognitive behavioral therapy and pharmacotherapy to mindfulness, telehealth, and assistive technologies. Self-determination and choice as well as community living skills. Quality-of-life issues for individuals with IDD. Early intensive behavior interventions for autism spectrum disorder. Skills training for parents of children with IDD as well as staff training in positive behavior support. Evidence-based interventions for a wide range of challenging behaviors and issues. The Handbook of Evidence-Based Practices in Intellectual and Developmental Disabilities is a must-have resource for researchers, clinicians, scientist-practitioners, and graduate students in clinical psychology, social work, behavior therapy, and rehabilitation.
People with learning disabilities are affected by significantly more health problems than the general population and are much more likely to have significant health risks. Yet evidence suggests they are not receiving the same level of health education and health promotion opportunities as other members of society. This important, interdisciplinary book is aimed at increasing professional awareness of the importance of health promotion activities for people with intellectual and developmental disabilities. Written by an international board of experts, it is a thorough and comprehensive guide for students, professionals and carers. The book considers a variety of challenges faced by those with intellectual disabilities, from physical illnesses such as diabetes, epilepsy and sexual health issues, through to issues such as addiction, mental health and ageing. Contributors: Jim Blair, Penny Blake, Malin Broberg, Michael Brown, Eddie Chaplin, Bob Davies, Gillian Eastgate, Paul Fleming, Dora Fisher, Linda Goddard, Tamar Heller, John Heng, Thanos Karatzias, Mike Kerr, Nick Lennox, Tadhg MacIntyre, Beth Marks, Jane McCarthy,Judith Moyle,Karen Nankervis,Ruth Northway, Joseph O'Grady, Renee Proulx, Janet Robertson, Cathy Ross, Jasmina Sisirak, Eamonn Slevin, David S Stewart, William F. Sullivan, Beverley Temple, Hana Válková , Henny van Schrojenstein Lantman-de Valk. "I highly recommend this book to anyone working directly with people with an intellectual disability as well as professionals, academics and students who strive to promote issues and improve the lives of people with intellectual disabilities and their families." Agnes Lunny OBE, Chief Executive of Positive Futures, Northern Ireland "The editors and authors have done practitioners a great favour in bringing together in one volume a comprehensive account of how children and adults with intellectual disabilities can be supported to lead healthier lives." Roy McConkey, Professor of Developmental Disabilities, University of Ulster, Northern Ireland "This timely and important book synthesises current knowledge about health promotion interventions for people with intellectual disabilities. Written by leading researchers and practitioners, it should be on the bookshelves of everyone concerned with addressing the stark inequalities in health experienced by people with intellectual disabilities around the world." Eric Emerson, Professor of Disability Population Health, University of Sydney, Australia and Emeritus Professor of Disability and Health Research, Lancaster University, UK "This book is current and different from other textbooks I have used before. The book is pitched at a very easy to understand level and any healthcare professional or student working with people with intellectual and developmental disabilities can use it. The content is very up to date and relevant. The use of comprehensive authors with differing backgrounds demonstrates the textbook has a wide range of expertise and knowledge packed into it that makes the book very relevant learning disabilities practice. I will definitely be recommending this textbook to undergraduate nursing students in Learning Disabilities." Dorothy Kupara – Lecturer in Learning Disabilities Nursing, University of West London.
The eighth edition of this seminal guide is designed to support public health practitioners in keeping up-to-date amid the rapidly changing, complex challenges and contexts facing population health in the twenty-first century. Suitable for both undergraduates and postgraduates across a range of professions, the Practical Guide provides theories, principles and competencies for effective health promotion in multiple settings. The book is organised into three parts, covering an overview of the public health landscape, the essentials of planning and management, and how to develop capabilities across a range of activities. The text has been fully updated to examine new issues facing public health, including restructuring of the UK sector post-European Union; COVID-19 and its public health impact and legacy; economic and cost of living influences on population health; and the role of the internet and social media misinformation. - Includes promotion of healthier living, working with communities and effective communication - Outlines new research on the comparative effectiveness of different approaches to health promotion and public health practice - Explores the increasing influence of the internet, both in terms of its use for health promotion and its negative influence on wellbeing and health - Describes changes to the structure and organisation of public health in the UK, including the latest policies and national strategies - Accessible writing style – makes it easy to learn and remember - Case studies bring theory to life - Practice points help readers structure study - Latest evidence on the response to the COVID-19 pandemic – a permeating theme throughout the book - All policy sections updated to reflect current policy frameworks and agendas - New health data plus recent research on the comparative effectiveness of different approaches to health promotion and public health practice - All case studies replaced with current scenarios; more global examples of public health and health promotion action - Fully updated references and practice examples
The second edition of this landmark textbook is distinguished by its pioneering approach to encompassing disability and aging policies under one umbrella, in response to the newly developed Administration on Aging and Disability. It addresses policy changes impacting health and disability services resulting from the Affordable Care Act (ACA) and other new legislation, and offers a pioneering approach to transforming policy into practice applications. New to the second edition is current census data and new legislative mandates from the ACA and other policy organizations impacting aging adults and/or disabled populations. Also included is new coverage on Social Media, Motivational Interviewing, Health Literacy, Underrepresented Groups, LGBT, and Rural Communities. Podcasts, available as downloads, present the messages of advocates, lobbyists, policy experts, and consumers who address various aspects of relevant policies and policy development. Unlike other texts, the book focuses on triangulating skills, policies, and programs for graduate students in social work, public health, gerontology, and rehabilitation. It aims thus to enhance understanding of policy development through a critical analysis and review of policy framework, and promotes development of skills in shaping programs and implementing policy. The text lays out tools that facilitate policy and program development to include the media, coalition building, the use of an evidence base, and how each mandated policy addresses these programs and services. Chapters include learning objectives, case studies, review/discussion questions, and resources for additional information. An Instructors Manual, Test Bank, and PowerPoint slides facilitate the teaching process. New to the Second Edition: Addresses both disability and aging policies Includes updated census data Presents new legislation and mandates for the ACA, Veterans and the Military, Caregivers/Caregiver Support Act, Alzheimer Support, Health Lifestyles, Aging and Disability Resource Centers, Elder Justice Act, and Substance Use and Misuse Provides new coverage on Social Media, Motivational Interviewing, Health Literacy, Minorities, Incarcerated Individuals, Immigrants/Refugees, LGBT, and Rural Communities Offers podcasts of interviews with key consumers and policy experts Key Features: Lays out tools that facilitate policy and program development Examines major service areas for older adults Addresses philosophical, historical, and demographic challenges Enhances understanding of policy development through critical analysis Includes learning objectives, case studies, review questions, and instructor package
The first interdisciplinary text on health issues concerning persons of all ages with intellectual and developmental disabilities designed for the classroom.
"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/