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According to the Pew Foundation’s "Internet in American Life Study," over 60 million Americans per year use the Internet to search for health information. All those concerned with healthcare and how to obtain personally relevant medical information form a large additional target group Many Medical Informatics programs–both in the United States and abroad–include a course in Consumer Health Informatics as part of their curriculum. This book, designed for use in a classroom, will be the first textbook dedicated solely to the specific concerns of consumer health informatics Consumer Health Informatics is an interactive text; filled with case studies and discussion questions With international authorship and edited by five leaders in the field, Consumer Health Informatics has tapped some of the best resources in informatics today
This book's focus is on the decisions taken in consultations between health care patients and professionals. Clinician- patient partnerships in health care decisions are increasingly advocated. Evidence- based patient choice describes a model of health care in which the evidence-based approach can integrate with the promotion of consumer choice. The book examines the traditional approach and the changing experience and expectations of consumers. It describes with many clinical examples and patient narratives how to practice evidence-based patient choice, and explores the ethical, sociological and economic issues raised. It also addresses the future modifications to professional training and organisational change which are required if evidence-based patient choice is to become the norm and speculates about what is likely to be achieved in the next few years. The book provides a summary of current perspectives in this area, which will be of interest to consumers, their representative groups, and to professionals in practice and training alike. From the foreword by Richard Grol: 'An enormous challenge lies before us. In this new and challenging field Evidence-based patient choice is manna from heaven. It summarises the current state of knowledge about these new patient involvement approaches. It is by far the most comprehensive account of scientific and ethical thinking about patient choice at this moment. And, it manages to show us the way to a potential future: health care provision where patients and professionals operate as real partners with shared goals...'
This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
Focusing on a healthcare organization's ability to improve access, quality, and value of care to the patient, this volume provides an extensive and rich compilation of international research which discusses the use, adoption, design, and diffusion of information communication technologies (ICTs) in healthcare.
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Medical ethics draws upon methods from a wide array of disciplines, including anthropology, economics, epidemiology, health services research, history, law, medicine, nursing, philosophy, psychology, sociology, and theology. In this influential book, outstanding scholars in medical ethics bring these many methods together in one place to be systematically described, critiqued, and challenged. Newly revised and updated chapters in this second edition include philosophy, religion and theology, virtue and professionalism, casuistry and clinical ethics, law, history, qualitative research, ethnography, quantitative surveys, experimental methods, and economics and decision science. This second edition also includes new chapters on literature and sociology, as well as a second chapter on philosophy which expands the range of philosophical methods discussed to include gender ethics, communitarianism, and discourse ethics. In each of these chapters, contributors provide descriptions of the methods, critiques, and notes on resources and training. Methods in Medical Ethics is a valuable resource for scholars, teachers, editors, and students in any of the disciplines that have contributed to the field. As a textbook and reference for graduate students and scholars in medical ethics, it offers a rich understanding of the complexities involved in the rigorous investigation of moral questions in medical practice and research.
Coupled with the growth of the World Wide Web, the topic of health information retrieval has had a tremendous impact on consumer health information. With the aid of newly added questions and discussions at the end of each chapter, this Second Edition covers theory practical applications, evaluation, and research directions of all aspects of medical information retireval systems.
"This reference set provides a complete understanding of the development of applications and concepts in clinical, patient, and hospital information systems"--Provided by publisher.
Older Adults, Health Information, and the World Wide Web is devoted to the exploration of how the World Wide Web might be used to deliver current, easily accessible health information to adults over the age of 60 and their caregivers. The book considers how age-related changes in vision, cognitive function, and motor skills affect the delivery and comprehension of health information. The volume is divided into four separate sections. Within these sections, individual chapters: *trace the increasing use of the Web by older adults and offer suggestions on how use can be increased; *discuss federal government initiatives on increasing use of the Web by older adults; *offer guidelines that might be applied to Web site design for older adults; and *describe actual projects in which older adults utilize the Web for various outcomes. Intended for health care providers, health service providers, and older adults and their caregivers, this book is also of interest to researchers in aging, cognition, and human factors.
Governments and clinical providers are investing billions of dollars in health information technologies. This book provides an easy-to-read reference outlining the basic concepts, theory, and methods required to perform a systematic evaluation of HIT.