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Drawing on ethnographic studies of the lived experiences of people with rare diseases, this volume critically examines rare, chronic diseases in the context of care, kinship, and technologies, providing in-depth analyses of local worlds that usually remain at the peripheries of medical anthropological inquiry.
The Routledge Handbook of Anthropology and Global Health provides an overview of the complex relationship between anthropology and global health. The book brings together a diverse group of scholars who consider the intersection of anthropological concerns with health and disease as understood and intervened upon by the field of global health. The book is structured around five sections: (1) social, cultural, and political determinants of health; (2) knowledge production in anthropology and global health; (3) persistent invisibilities in global health; (4) reimagining a critical global health; and (5) new horizons in anthropology and global health. Over these five themes a range of topics is explored, including: rare diseases medical pluralism universal global health protocols HIV health security indigenous communities (non)communicable diseases decolonizing global health The Routledge Handbook of Anthropology and Global Health is an essential resource for upper-level students and researchers in anthropology, global health, sociology, international development, health studies, and politics.
An intellectual and developmental disability (IDD) is a lifelong condition that limits intelligence, learning, and daily life skills. People with IDDs are often not integrated in mainstream society. They have fewer opportunities to participate in recreational activities, hindering their social inclusion, which has the potential to diminish quality of life. As a compassionate society, we must understand how people with IDDs can be socially integrated to ensure their mental health and to maximize their potential so that they can contribute to society in their unique way. Social Inclusion Tactics for People With Intellectual and Developmental Disabilities promotes the social integration of people with IDDs and aims to increase awareness about the lack of opportunities for socialization for people with IDDs. Covering topics such as autism, children with disabilities, and societal inclusion, this book is a valuable resource for organizations, policymakers, academicians, researchers, sociologists, and more.
Drug Use, Recovery, and Maternal Instinct Bias: A Biocultural and Social-Ecological Approach draws upon theoretical perspectives in anthropology and public health to provide insight into the barriers women experience when seeking treatment for substance use disorders. In both theoretical perspectives in biological anthropology and social discourse within the United States, there is an emphasis on explaining why women avoid (or should avoid) using psychoactive substances during their reproductive years, especially during pregnancy. Theories of women's drug avoidance during the childbearing years rely on statistics to show that women are less likely to use all types of illicit drugs than their male counterparts. This gender gap, however, is closing in high-income countries (HICs), calling for more research on the biocultural and social-ecological factors contributing to women's drug use and the barriers to their recovery. The book uses qualitative data from participants in Indiana to illustrate women's struggles along the pathway to recovery. The overarching conclusion is that internalized models of “maternal instinct,” a topic inherent in theoretical and public discourse, can often impede efforts for women seeking treatment, and recovery is only possible when proper social and structural supports are in place.
Agency and Bodily Autonomy in Systems of Care examines the ways in which humans and their bodies become enmeshed in various systems of care. Seven case studies demonstrate the ways in which people lose, negotiate, establish, or impose bodily autonomy in diverse contexts. Diverse methods and perspectives from cultural and medical anthropology, bioarchaeology and public health establish the need for advocacy and policy change to improve health outcomes by re-envisioning systems of care as spaces that include room for individual agency and bodily autonomy. This volume explores diverse subjects to promote advocacy for patient-centered care and bodily autonomy, and for liberation from over-medicalization.
In Boundaries of Care, Ryan I. Logan details the lived experience of community health workers (CHWs) – a present yet often invisible facet of the healthcare workforce. These workers participate in nonclinical services to enhance the health and well-being of their communities outside the walls of the clinic and social service agencies. Logan examines the boundaries of and barriers to care present in the experiences of CHWs, their relationships with clients, issues of professionalization, impacts of burnout and self-care, and the critical impacts of CHW advocacy. Told through first-hand accounts and interwoven with theory, Logan presents the key challenges facing this workforce and their potential to foster even greater well-being within their communities. The findings and recommendations from participants found within Boundaries of Care can inform and shape CHW programs both in the United States and abroad.
**Finalist, PROSE Award in Clinical Medicine** A rich examination of the history of trans medicine and current day practice Surfacing in the mid-twentieth century, yet shrouded in social stigma, transgender medicine is now a rapidly growing medical field. In Trans Medicine, stef shuster makes an important intervention in how we understand the development of this field and how it is being used to “treat” gender identity today. Drawing on interviews with medical providers as well as ethnographic and archival research, shuster examines how health professionals approach patients who seek gender-affirming care. From genital reconstructions to hormone injections, the practice of trans medicine charts new medical ground, compelling medical professionals to plan treatments without widescale clinical trials to back them up. Relying on cultural norms and gut instincts to inform their treatment plans, shuster shows how medical providers’ lack of clinical experience and scientific research undermines their ability to interact with patients, craft treatment plans, and make medical decisions. This situation defies how providers are trained to work with patients and creates uncertainty. As providers navigate the developing knowledge surrounding the medical care of trans folk, Trans Medicine offers a rare opportunity to understand how providers make decisions while facing challenges to their expertise and, in the process, have acquired authority not only over clinical outcomes, but over gender itself.
This book describes how man-made litter, primarily plastic, has spread into the remotest parts of the oceans and covers all aspects of this pollution problem from the impacts on wildlife and human health to socio-economic and political issues. Marine litter is a prime threat to marine wildlife, habitats and food webs worldwide. The book illustrates how advanced technologies from deep-sea research, microbiology and mathematic modelling as well as classic beach litter counts by volunteers contributed to the broad awareness of marine litter as a problem of global significance. The authors summarise more than five decades of marine litter research, which receives growing attention after the recent discovery of great oceanic garbage patches and the ubiquity of microscopic plastic particles in marine organisms and habitats. In 16 chapters, authors from all over the world have created a universal view on the diverse field of marine litter pollution, the biological impacts, dedicated research activities, and the various national and international legislative efforts to combat this environmental problem. They recommend future research directions necessary for a comprehensive understanding of this environmental issue and the development of efficient management strategies. This book addresses scientists, and it provides a solid knowledge base for policy makers, NGOs, and the broader public.
This volume, timed to coincide with what would have been Williams's 100th birthday, tests his ideas in our own experience and to engage Williams's work in ways that move past the familiar terrain that has grown around it.
Through nine ethnographic case-studies, Edges of Global Transformation explores situations where global transformations associated with neoliberalism meet local realities. The “edge” of transformation is characterized by uncertainty, as old patterns are consumed and new formed. The nine case studies from Africa, Europe and the Middle East shed light on how uncertainty plays an inevitable and essential role in the grey zone between macro-transformations and local responses. Despite the tremendous difference in precariousness between these cases, each contributor explores ways in which transformations are conceived and acted upon within the space of possibility that is opened and apprehended locally. The role of uncertainty as an active force is explored throughout the book. While in some cases, uncertainty has a clear restricting effect; other cases illustrate its potential as a productive force. As a contribution to understanding the dynamic of the local realities of global change, the book will be valuable reading for anyone interested in globalization and the neoliberal world order.