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This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
Commissioned by the Department of Health and Human Services, Key Capabilities of an Electronic Health Record System provides guidance on the most significant care delivery-related capabilities of electronic health record (EHR) systems. There is a great deal of interest in both the public and private sectors in encouraging all health care providers to migrate from paper-based health records to a system that stores health information electronically and employs computer-aided decision support systems. In part, this interest is due to a growing recognition that a stronger information technology infrastructure is integral to addressing national concerns such as the need to improve the safety and the quality of health care, rising health care costs, and matters of homeland security related to the health sector. Key Capabilities of an Electronic Health Record System provides a set of basic functionalities that an EHR system must employ to promote patient safety, including detailed patient data (e.g., diagnoses, allergies, laboratory results), as well as decision-support capabilities (e.g., the ability to alert providers to potential drug-drug interactions). The book examines care delivery functions, such as database management and the use of health care data standards to better advance the safety, quality, and efficiency of health care in the United States.
Modern technology has impacted healthcare and interactions between patients and healthcare providers through a variety of means including the internet, social media, mobile devices, and the internet of things. These new technologies have empowered, frustrated, educated, and confused patients by making educational materials more widely available and allowing patients to monitor their own vital signs and self-diagnose. Further analysis of these and future technologies is needed in order to provide new approaches to empowerment, reduce mistakes, and improve overall healthcare. Impacts of Information Technology on Patient Care and Empowerment is a critical scholarly resource that delves into patient access to information and the effect that access has on their relationship with healthcare providers and their health outcomes. Featuring a range of topics such as gamification, mobile computing, and risk analysis, this book is ideal for healthcare practitioners, doctors, nurses, surgeons, hospital staff, medical administrators, patient advocates, researchers, academicians, policymakers, and healthcare students.
This book provides a multidisciplinary overview of the design and implementation of systems for remote patient monitoring and healthcare. Readers are guided step-by-step through the components of such a system and shown how they could be integrated in a coherent framework for deployment in practice. The authors explain planning from subsystem design to complete integration and deployment, given particular application constraints. Readers will benefit from descriptions of the clinical requirements underpinning the entire application scenario, physiological parameter sensing techniques, information processing approaches and overall, application dependent system integration. Each chapter ends with a discussion of practical design challenges and two case studies are included to provide practical examples and design methods for two remote healthcare systems with different needs.
"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/
Health care organizations have made investments in health information technologies such as electronic health records, health information exchanges, and many more, which have increased the importance of Health Information Technology studies. Cases on Healthcare Information Technology for Patient Care Management highlights the importance of understanding the potential challenges and lessons learned from past technology implementations. This comprehensive collection of case studies aims to help improve the understanding of the process as well as challenges faced and lessons learned through implementation of health information technologies.
Aims and Scope Patients are more empowered to shape their own health care today than ever before. Health information technologies are creating new opportunities for patients and families to participate actively in their care, manage their medical problems and improve communication with their healthcare providers. Moreover, health information technologies are enabling healthcare providers to partner with their patients in a bold effort to optimize quality of care, improve health outcomes and transform the healthcare system on the macro-level. In this book, leading figures discuss the existing needs, challenges and opportunities for improving patient engagement and empowerment through health information technology, mapping out what has been accomplished and what work remains to truly transform the care we deliver and engage patients in their care. Policymakers, healthcare providers and administrators, consultants and industry managers, researchers and students and, not least, patients and their family members should all find value in this book. "In the exciting period that lies just ahead, more will be needed than simply connecting patients to clinicians, and clinicians to each other. The health care systems that will be most effective in meeting patients' needs will be those that can actually design their 'human wares' around that purpose. This book provides deep insight into how information technology can and will support that redesign." Thomas H. Lee, MD, MSc, Chief Medical Officer, Press Ganey Associates; Professor of Medicine, Harvard Medical School and Professor of Health Policy and Management, Harvard School of Public Health The Editors: Drs. Maria Adela Grando, Ronen Rozenblum and David W. Bates are widely recognized professors, researchers and experts in the domain of health information technology, patient engagement and empowerment. Their research, lectures and contributions in these domains have been recognized nationally and internationally. Dr. Grando is affiliated with Arizona State University and the Mayo Clinic, and Drs. Rozenblum and Bates are affiliated with Brigham and Women's Hospital and Harvard University.