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Disability is often described in a way that suggests it is a permanent, relatively stable state. This volume argues that the relationship between impairment (physical state) and disability is neither fixed nor permanent but is fluid and not easily predicted.
The field of disability history continues to evolve rapidly. In this collection, Susan Burch and Michael Rembis present essays that integrate critical analysis of gender, race, historical context, and other factors to enrich and challenge the traditional modes of interpretation still dominating the field. Contributors delve into four critical areas of study within disability history: family, community, and daily life; cultural histories; the relationship between disabled people and the medical field; and issues of citizenship, belonging, and normalcy. As the first collection of its kind in over a decade, Disability Histories not only brings readers up to date on scholarship within the field but fosters the process of moving it beyond the U.S. and Western Europe by offering work on Africa, South America, and Asia. The result is a broad range of readings that open new vistas for investigation and study while encouraging scholars at all levels to redraw the boundaries that delineate who and what is considered of historical value. Informed and accessible, Disability Histories is essential for classrooms engaged in all facets of disability studies within and across disciplines.
The first book to cover the entirety of disability history, from pre-1492 to the present Disability is not just the story of someone we love or the story of whom we may become; rather it is undoubtedly the story of our nation. Covering the entirety of US history from pre-1492 to the present, A Disability History of the United States is the first book to place the experiences of people with disabilities at the center of the American narrative. In many ways, it’s a familiar telling. In other ways, however, it is a radical repositioning of US history. By doing so, the book casts new light on familiar stories, such as slavery and immigration, while breaking ground about the ties between nativism and oralism in the late nineteenth century and the role of ableism in the development of democracy. A Disability History of the United States pulls from primary-source documents and social histories to retell American history through the eyes, words, and impressions of the people who lived it. As historian and disability scholar Nielsen argues, to understand disability history isn’t to narrowly focus on a series of individual triumphs but rather to examine mass movements and pivotal daily events through the lens of varied experiences. Throughout the book, Nielsen deftly illustrates how concepts of disability have deeply shaped the American experience—from deciding who was allowed to immigrate to establishing labor laws and justifying slavery and gender discrimination. Included are absorbing—at times horrific—narratives of blinded slaves being thrown overboard and women being involuntarily sterilized, as well as triumphant accounts of disabled miners organizing strikes and disability rights activists picketing Washington. Engrossing and profound, A Disability History of the United States fundamentally reinterprets how we view our nation’s past: from a stifling master narrative to a shared history that encompasses us all.
Introduces key terms, concepts, debates, and histories for Disability Studies Keywords for Disability Studies aims to broaden and define the conceptual framework of disability studies for readers and practitioners in the field and beyond. The volume engages some of the most pressing debates of our time, such as prenatal testing, euthanasia, accessibility in public transportation and the workplace, post-traumatic stress, and questions about the beginning and end of life. Each of the 60 essays in Keywords for Disability Studies focuses on a distinct critical concept, including “ethics,” “medicalization,” “performance,” “reproduction,” “identity,” and “stigma,” among others. Although the essays recognize that “disability” is often used as an umbrella term, the contributors to the volume avoid treating individual disabilities as keywords, and instead interrogate concepts that encompass different components of the social and bodily experience of disability. The essays approach disability as an embodied condition, a mutable historical phenomenon, and a social, political, and cultural identity. An invaluable resource for students and scholars alike, Keywords for Disability Studies brings the debates that have often remained internal to disability studies into a wider field of critical discourse, providing opportunities for fresh theoretical considerations of the field’s core presuppositions through a variety of disciplinary perspectives. Visit keywords.nyupress.org for online essays, teaching resources, and more.
The act of life is a lived experience, common and unique, that ties each of us to every other lived experience. The fact of disability does not alter this fundamental truth. In this edition of Rethinking Disability: World Perspectives in Culture and Society, we are presented with a system of thinking that considers the values of disability, as a resource, as a creative source of culture that moves disability out of the realm of victimized people and insurmountable barriers, and provides opportunities to use the experience of disability to enter into networks that recognize strengths of differing abilities. The authors within will intrigue you, will move you, will charm you, but always will challenge your notion of sameness and difference as they confront the construct and (de)construct of disability and ableism. They present compelling arguments for viewing disABILITY through the multiple lenses of disability culture. They explore themes and issues that transcend past and origins, time and place, nuances of genetics, to experiences of present and becoming, and towards the future and beyond mere human, yet always intrinsically connected to being human. This book is intended for all audiences who dare to confront difference and sameness within themselves and in connection with others; to inspire researchers who wish to explore, and examine disability across social, cultural and economic barriers. It is an invitation to push away the barriers, bring ableism inside to a place where the prosthesis is no longer the elephant in the room.
Disability can be either an ascribed status or an achieved status and its combination with other statuses will affect the person's social experiences. This issue challenges critical thinking about the interrelationships with disability. It questions if the concepts and methods of intersectionality can be applied to disability at all.
Being an ‘active citizen’ involves exercising social rights and duties, enjoying choice and autonomy, and participating in political decision-making processes which are of importance for one’s life. Amid the new challenges facing contemporary welfare states, debate over just how ‘active’ citizens can and ought to be has redoubled. Presenting research from the first major comparative and cross-national study of active citizenship and disability in Europe, this book analyses the consequences of ongoing changes in Europe – what opportunities do persons with disabilities have to exercise Active Citizenship? The Changing Disability Policy System: Active Citizenship and Disability in Europe Volume 1 approaches the conditions for Active Citizenship from a macro perspective in order to capture the impact of the overall disability policy system. This system takes diverse and changing forms in the nine European countries under study. Central to the analysis are issues of coherence and coordination between three subsystems of the disability policy system, and between levels of governance. This book identifies the implications and policy lessons of the findings for future disability policy in Europe and beyond. It will appeal to policymakers and policy officials, as well as to researchers and students of disability studies, comparative social policy, international disability law and qualitative research methods.
If the future is accessible, as Alisa Grishman—one of 55 million Americans categorized as having a disability—writes in this book’s cover image, then we must stop making or constructing people as disabled and impaired. In this brave new theoretical approach to human physicality, Julie E. Maybee traces societal constructions of disability and impairment through Western history along three dimensions of embodiment: the personal body, the interpersonal body, and the institutional body. Each dimension has played a part in defining people as disabled and impaired in terms of employment, healthcare, education, and social and political roles. Because impairment and disability have been constructed along all three of these bodies, unmaking disability and making the future accessible will require restructuring Western institutions, including capitalism, changing how social roles are assigned, and transforming our deepest beliefs about impairment and disability to reconstruct people as capable. Ultimately, Maybee suggests, unmaking disability will require remaking our world.
The Matter of Disability returns disability to its proper place as an ongoing historical process of corporeal, cognitive, and sensory mutation operating in a world of dynamic, even cataclysmic, change. The book’s contributors offer new theorizations of human and nonhuman embodiments and their complex evolutions in our global present, in essays that explore how disability might be imagined as participant in the “complex elaboration of difference,” rather than something gone awry in an otherwise stable process. This alternative approach to materiality sheds new light on the capacities that exist within the depictions of disability that the book examines, including Spider-Man, Of Mice and Men, and Bloodchild.
Superhero comics reckon with issues of corporeal control. And while they commonly deal in characters of exceptional or superhuman ability, they have also shown an increasing attention and sensitivity to diverse forms of disability, both physical and cognitive. The essays in this collection reveal how the superhero genre, in fusing fantasy with realism, provides a visual forum for engaging with issues of disability and intersectional identity (race, ethnicity, class, gender, and sexuality) and helps to imagine different ways of being in the world. Working from the premise that the theoretical mode of the uncanny, with its interest in what is simultaneously known and unknown, ordinary and extraordinary, opens new ways to think about categories and markers of identity, Uncanny Bodies explores how continuums of ability in superhero comics can reflect, resist, or reevaluate broader cultural conceptions about disability. The chapters focus on lesser-known characters—such as Echo, Omega the Unknown, and the Silver Scorpion—as well as the famous Barbara Gordon and the protagonist of the acclaimed series Hawkeye, whose superheroic uncanniness provides a counterpoint to constructs of normalcy. Several essays explore how superhero comics can provide a vocabulary and discourse for conceptualizing disability more broadly. Thoughtful and challenging, this eye-opening examination of superhero comics breaks new ground in disability studies and scholarship in popular culture. In addition to the editors, the contributors are Sarah Bowden, Charlie Christie, Sarah Gibbons, Andrew Godfrey-Meers, Marit Hanson, Charles Hatfield, Naja Later, Lauren O’Connor, Daniel J. O'Rourke, Daniel Pinti, Lauranne Poharec, and Deleasa Randall-Griffiths.