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This book includes a collection of essays that explore the relationship between Disability Studies and literary ecocriticism, particularly as this relationship plays out in American literature and culture. The contributors to this collection operate from the premise that there is much to be gained for both fields by putting them in conversation, and they do so in a variety of ways. In this manner, the collection contributes to what Joni Adamson and Scott Slovic have referred to as a “third wave of ecocriticism.” Adamson and Slovic attribute the rise of this “third wave” to the richly diverse contributions to ecocriticism over the past decade by scholars intent on including postmodernism, ecofeminism, transnationalism, globalization, and postcolonialism into ecocritical discussions. The essays in Toward an Ecosomatic Paradigm extend this approach of this “third wave” by analyzing disability from an “environmental point of view” while simultaneously examining the environmental imagination from a disability studies perspective. More specifically, the goal of the collection is to investigate the role that literary narratives play in fostering the “ecosomatic paradigm.” As a theoretical framework, the ecosomatic paradigm underscores the dynamic and inter-relational process wherein human mind-bodies interact with the places, both built and wild, they inhabit. That is, the ecosomatic paradigm proceeds from the assumption that nature and culture are meshed in an ongoing and deep relationship that has implications for both the human subject and the natural world. An ecosomatic approach highlights the profound overlap between embodiment and emplacement, and is therefore enriched by both disability studies and ecocritical insight. By drawing on points of confluence between disability studies and ecological criticism, the various ecosomatic readings in this collection challenge normative (even ableist) constructions of the body-environment dyad by complicating and expanding our understanding of this relationship as it is represented in American literature and culture. Collectively, the essays in this book augment the American environmental imagination by highlighting the relationship between disability and the environment as reflected in American literary texts across multiple periods and genres.
Although scholars in the environmental humanities have been exploring the dichotomy between "wild" and "built" environments for several years, few have focused on the field of disability studies, a discipline that enlists the contingency between environments and bodies as a foundation of its scholarship. On the other hand, scholars in disability studies have demonstrated the ways in which the built environment privileges some bodies and minds over others, yet they have rarely examined the ways in which toxic environments engender chronic illness and disability or how environmental illnesses disrupt dominant paradigms for scrutinizing "disability." Designed as a reader for undergraduate and graduate courses, Disability Studies and the Environmental Humanities employs interdisciplinary perspectives to examine such issues as slow violence, imperialism, race, toxicity, eco-sickness, the body in environmental justice, ableism, and other topics. With a historical scope spanning the seventeenth century to the present, this collection not only presents the foundational documents informing this intersection of fields but also showcases the most current work, making it an indispensable reference.
The nineteenth-century roots of environmental writing in American literature are often mentioned in passing and sometimes studied piece by piece. Writing the Environment in Nineteenth-Century American Literature: The Ecological Awareness of Early Scribes of Nature brings together numerous explorations of environmentally-aware writing across the genres of nineteenth-century literature. Like Lawrence Buell, the authors of this collection find Thoreau’s writing a touchstone of nineteenth-century environmental writing, particularly focusing on Thoreau’s claim that humans may function as “scribes of nature.” However, these studies of Thoreau’s antecedents, contemporaries, and successors also reveal a range of other writers in the nineteenth century whose literary treatments of nature are often more environmentally attuned than most readers have noticed. The writers whose works are studied in this collection include canonical and forgotten writers, men and women, early nineteenth-century and late nineteenth-century authors, pioneers and conservationists. They drew attention to the conflicted relationships between humans and the American continent, as experienced by Native Americans and European Americans. Taken together, these essays offer a fresh perspective on the roots of environmental literature in nineteenth-century American nonfiction, fiction, and poetry as well as in multi-genre compositions such as the travel writings of Margaret Fuller. Bringing largely forgotten voices such as John Godman alongside canonical voices such as Nathaniel Hawthorne, Herman Melville, Walt Whitman, and Emily Dickinson, the authors whose writings are studied in this collection produced a diverse tapestry of nascent American environmental writing in the nineteenth-century. From early nineteenth-century writers such as poet Philip Freneau and novelist Charles Brockden Brown to later nineteenth-century conservationists such as John James Audubon and John Muir, Scribes of Nature shows the development of an environmental consciousness and a growing conservationist ethos in American literature. Given their often surprisingly healthy respect for the natural environment, these nineteenth-century writers offer us much to consider in an age of environmental crisis. The complexities of the supposed nature/culture divide still work into our lives today as economic and environmental issues are often seen at loggerheads when they ought to be seen as part of the same conversation of what it means to live healthy lives, and to pass on a healthy world to those who follow us in a world where human activity is becoming increasingly threatening to the health of our planet.
This book engages recent scholarship on trans-corporeality, disability studies, and environmental justice. Ray argues that environmental discourse often frames ecological crisis as a crisis of the body, therefore promoting ecological health at the cost of social equality. Ray urges us to be careful about the ways in which we construct “others” in our arguments to protect nature.
The first book to cover the entirety of disability history, from pre-1492 to the present Disability is not just the story of someone we love or the story of whom we may become; rather it is undoubtedly the story of our nation. Covering the entirety of US history from pre-1492 to the present, A Disability History of the United States is the first book to place the experiences of people with disabilities at the center of the American narrative. In many ways, it’s a familiar telling. In other ways, however, it is a radical repositioning of US history. By doing so, the book casts new light on familiar stories, such as slavery and immigration, while breaking ground about the ties between nativism and oralism in the late nineteenth century and the role of ableism in the development of democracy. A Disability History of the United States pulls from primary-source documents and social histories to retell American history through the eyes, words, and impressions of the people who lived it. As historian and disability scholar Nielsen argues, to understand disability history isn’t to narrowly focus on a series of individual triumphs but rather to examine mass movements and pivotal daily events through the lens of varied experiences. Throughout the book, Nielsen deftly illustrates how concepts of disability have deeply shaped the American experience—from deciding who was allowed to immigrate to establishing labor laws and justifying slavery and gender discrimination. Included are absorbing—at times horrific—narratives of blinded slaves being thrown overboard and women being involuntarily sterilized, as well as triumphant accounts of disabled miners organizing strikes and disability rights activists picketing Washington. Engrossing and profound, A Disability History of the United States fundamentally reinterprets how we view our nation’s past: from a stifling master narrative to a shared history that encompasses us all.
The future of disability in America will depend on how well the U.S. prepares for and manages the demographic, fiscal, and technological developments that will unfold during the next two to three decades. Building upon two prior studies from the Institute of Medicine (the 1991 Institute of Medicine's report Disability in America and the 1997 report Enabling America), The Future of Disability in America examines both progress and concerns about continuing barriers that limit the independence, productivity, and participation in community life of people with disabilities. This book offers a comprehensive look at a wide range of issues, including the prevalence of disability across the lifespan; disability trends the role of assistive technology; barriers posed by health care and other facilities with inaccessible buildings, equipment, and information formats; the needs of young people moving from pediatric to adult health care and of adults experiencing premature aging and secondary health problems; selected issues in health care financing (e.g., risk adjusting payments to health plans, coverage of assistive technology); and the organizing and financing of disability-related research. The Future of Disability in America is an assessment of both principles and scientific evidence for disability policies and services. This book's recommendations propose steps to eliminate barriers and strengthen the evidence base for future public and private actions to reduce the impact of disability on individuals, families, and society.
The first major behind-the-scenes account of the history, passage, and impact of the Americans with Disabilities Act (ADA)—the landmark moment for disability rights The Americans with Disabilities Act (ADA) is the widest-ranging and most comprehensive piece of civil rights legislation ever passed in the United States, and it has become the model for disability-based laws around the world. Yet the surprising story behind how the bill came to be is little known. In this riveting account, acclaimed disability scholar Lennard J. Davis delivers the first on-the-ground narrative of how a band of leftist Berkeley hippies managed to make an alliance with upper-crust, conservative Republicans to bring about a truly bipartisan bill. Based on extensive interviews with all the major players involved including legislators and activists, Davis recreates the dramatic tension of a story that is anything but a dry account of bills and speeches. Rather, it’s filled with one indefatigable character after another, culminating in explosive moments when the hidden army of the disability community stages scenes like the iconic “Capitol Crawl” or an event when students stormed Gallaudet University demanding a “Deaf President Now!” From inside the offices of newly formed disability groups to secret breakfast meetings surreptitiously held outside the White House grounds, here we meet countless unsung characters, including political heavyweights and disability advocates on the front lines. “You want to fight?” an angered Ted Kennedy would shout in an upstairs room at the Capitol while negotiating the final details of the ADA. Congressman Tony Coelho, whose parents once thought him to be possessed by the devil because of his epilepsy, later became the bill’s primary sponsor. There’s Justin Dart, adorned in disability power buttons and his signature cowboy hat, who took to the road canvassing 50 states, and people like Patrisha Wright, also known as “The General,” Arlene Myerson or “the brains,” “architect” Bob Funk, and visionary Mary Lou Breslin, who left the hippie highlands of the West to pursue equal rights in the marble halls of DC.
James Charlton has produced a ringing indictment of disability oppression, which, he says, is rooted in degradation, dependency, and powerlessness and is experienced in some form by five hundred million persons throughout the world who have physical, sensory, cognitive, or developmental disabilities. Nothing About Us Without Us is the first book in the literature on disability to provide a theoretical overview of disability oppression that shows its similarities to, and differences from, racism, sexism, and colonialism. Charlton's analysis is illuminated by interviews he conducted over a ten-year period with disability rights activists throughout the Third World, Europe, and the United States. Charlton finds an antidote for dependency and powerlessness in the resistance to disability oppression that is emerging worldwide. His interviews contain striking stories of self-reliance and empowerment evoking the new consciousness of disability rights activists. As a latecomer among the world's liberation movements, the disability rights movement will gain visibility and momentum from Charlton's elucidation of its history and its political philosophy of self-determination, which is captured in the title of his book. Nothing About Us Without Us expresses the conviction of people with disabilities that they know what is best for them. Charlton's combination of personal involvement and theoretical awareness assures greater understanding of the disability rights movement.
A Publishers Weekly Best Book of the Year for Nonfiction "...an essential and engaging look at recent disability history."— Buzzfeed One of the most influential disability rights activists in US history tells her personal story of fighting for the right to receive an education, have a job, and just be human. A story of fighting to belong in a world that wasn’t built for all of us and of one woman’s activism—from the streets of Brooklyn and San Francisco to inside the halls of Washington—Being Heumann recounts Judy Heumann’s lifelong battle to achieve respect, acceptance, and inclusion in society. Paralyzed from polio at eighteen months, Judy’s struggle for equality began early in life. From fighting to attend grade school after being described as a “fire hazard” to later winning a lawsuit against the New York City school system for denying her a teacher’s license because of her paralysis, Judy’s actions set a precedent that fundamentally improved rights for disabled people. As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples’ rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act. Candid, intimate, and irreverent, Judy Heumann’s memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.
The human body has been depicted in a variety of ways across a range of cultural and historical locations. It has been described, variously, as a biological entity, clothing for the soul, a site of cultural production, a psychosexual construct, and a material encumbrance. Each of these different approaches brings with it a range of anthropological, political, theological, and psychological discourses that explore and construct identities and subject positions. This Companion examines connections between American literature and bodies from the eighteenth century through the present. It reveals the singular way that literature can help us understand the body's entanglement within social and biological influences, and it traces the body's existence within histories of race, gender, and ability. This volume details the genres, critical fields, and interpretive practices that best facilitate the analysis of bodies in the full span of American literary imaginings.