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Alzheimer's, the frightening disease of aging, is treated heroically in a touching book by a woman who left her important position as Assistant Secretary for Management at the U.S. Department of Treasury to care for her mother. After her mother's medical verdict of increasing memory loss was pronounced, Linda Combs resigned her executive post in Washington, D.C., and moved home to North Carolina.Her familiarity with Alzheimer's prompted Linda Combs to write her book, A Long Goodbye and Beyond, as a resource for other parental caregivers, like herself, who must assist a loved one to pass through the stages of unlovely deterioration.To this book of instruction, courage, kindness, sympathy and loyalty to the idea of a new life beyond, artist Tom Novak lends his marvelous illustrations, which are a tribute to brave souls who have the long loneliness of slow disintegration.
In this deeply moving chronicle of love and loss, cognitive psychologist Rick Gardner recounts his journey alongside his wife, Betty Ann, as she progresses through dementia and eventually Alzheimer's disease. Part love letter to his wife of 50 years, and part science narrative, Journey through Alzheimer's conveys in vivid detail Betty Ann's descent from her first understated symptoms to her subsequent cognitive decline. Gardner describes what happens in the brain when dementia occurs, including the deterioration of the five senses on cognitive functioning, and the effects aging plays in the process. The book is the only first-person account of decline of thinking and cognition into Alzheimer's written by a cognitive psychologist, and readers will appreciate the clarity of Gardner's insights, as well as his compassion and candor. This book will be especially helpful, as well as cathartic, to family and caregivers of those with Alzheimer's, although it is Gardner's tender portrayal of his commitment to the brilliant, vivacious Betty Ann that will remain with readers long after the final page is turned.
This book explores how dementia acts as an existential threat, both to people diagnosed with the condition, and to their carers. The authors highlight how dementia not only gradually erodes our most fundamental abilities, but that it does so at a time of life when the resources of individuals, couples, and families are already stretched. While over time many people who are living with dementia are able to adapt to their diagnosis and acknowledge its impact on them, for many others it remains too threatening and painful to do this. The book draws on examples from clinical practice and experimental studies to argue that a range of responses, such as searching for long-dead parents or clinging to previous identities, all represent ways in which people living with dementia attempt to protect themselves against the emotional impact of the condition. Finally, the authors set out new ways of intervening to boost psychological resources and thereby support people in facing the existential threat of dementia.
Provides Alzheimer's patients and their families with information on the latest medical advances and offers guidance.
A positive approach to dealing with Alzheimer'ss, The Last Dance is a book of courage and inspiration. Susan McLane was a pioneer and public servant advocating for the families and environment of New Hampshire over her twenty-five years in the NH State Senate. The Last Dance tells the story of her struggles with Alzheimer'ss disease, interwoven with memories of a lifetime.
Social isolation and loneliness are serious yet underappreciated public health risks that affect a significant portion of the older adult population. Approximately one-quarter of community-dwelling Americans aged 65 and older are considered to be socially isolated, and a significant proportion of adults in the United States report feeling lonely. People who are 50 years of age or older are more likely to experience many of the risk factors that can cause or exacerbate social isolation or loneliness, such as living alone, the loss of family or friends, chronic illness, and sensory impairments. Over a life course, social isolation and loneliness may be episodic or chronic, depending upon an individual's circumstances and perceptions. A substantial body of evidence demonstrates that social isolation presents a major risk for premature mortality, comparable to other risk factors such as high blood pressure, smoking, or obesity. As older adults are particularly high-volume and high-frequency users of the health care system, there is an opportunity for health care professionals to identify, prevent, and mitigate the adverse health impacts of social isolation and loneliness in older adults. Social Isolation and Loneliness in Older Adults summarizes the evidence base and explores how social isolation and loneliness affect health and quality of life in adults aged 50 and older, particularly among low income, underserved, and vulnerable populations. This report makes recommendations specifically for clinical settings of health care to identify those who suffer the resultant negative health impacts of social isolation and loneliness and target interventions to improve their social conditions. Social Isolation and Loneliness in Older Adults considers clinical tools and methodologies, better education and training for the health care workforce, and dissemination and implementation that will be important for translating research into practice, especially as the evidence base for effective interventions continues to flourish.
The guide tells you how to: Understand how AD changes a person Learn how to cope with these changes Help family and friends understand AD Plan for the future Make your home safe for the person with AD Manage everyday activities like eating, bathing, dressing, and grooming Take care of yourself Get help with caregiving Find out about helpful resources, such as websites, support groups, government agencies, and adult day care programs Choose a full-time care facility for the person with AD if needed Learn about common behavior and medical problems of people with AD and some medicines that may help Cope with late-stage AD
A definitive and compelling book on one of today's most prevalent illnesses. In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2050. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's traces Alzheimer’s from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems’ failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer’s to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers’ support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center.
"A new ethics guideline for caregivers of "deeply forgetful people" and a program on how to communicate and connect based on 30 years of community dialogues through Alzheimer's organizations across the globe"--
Alzheimer's disease - a degenerative disease of the central nervous system characterized especially by premature mental deterioration - is the most publicly visible and widely discussed form of a range of disorders known as senile dementia. The nature of Alzheimer's disease, especially its progressive debilitation of the memory, raises key theological issues. What does it mean to be truly human? Does our ability to remember define who we are as persons? When the mind loses its ability to remember, what happens to the life of the soul? When we forget God, does God still remember us? Forgetting Whose We Are offers a Christian understanding of and response to the difficult theological, spiritual, and pastoral problems raised by Alzheimer's disease. Filling an important gap in existing literature by directly confronting the theological challenges of Alzheimer's disease to victims, caregivers, and their communities, the book affirms the classic Christian doctrines that witness to the reality of grace and the promises of salvation even for those who can no longer remember themselves, their families, or their relationship with God.