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This easy-to-use guide gives you a quick overview on many topics related to working with young children with special needs. Learn about inclusion in early childhood programs and disability law, as well as typical vs. atypical development. The quick guide also covers several specific disabilities/special needs and provides definitions, common characteristics, and practical strategies for adaptation. Cindy Croft is the director of the Center for Inclusive Child Care at Concordia University and on faculty for several university education programs. She has her MA in Education and has worked in the field of early childhood for over twenty years.
Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
This concise manual offers best practice guidance on dental treatment of pediatric patients with special health care needs (CSHCN). The straightforward approaches described will enable clinicians to deliver high-quality, patient-centered care to children with intellectual and developmental disabilities. Readers will find up-to-date information on case-based treatment planning, alternative caries management strategies, the use of behavioral and pharmacological interventions to facilitate delivery of quality treatment, and a team approach to care. Practical clinical tips are provided on how to achieve and maintain oral health, including good oral hygiene and nutrition. A systematic framework for patient assessment and interaction with medical colleagues will assist readers in understanding when dental protocols must be altered. Other important topics include techniques for effective communication with CSHCN, behavioral strategies to improve treatment acceptance, the role of occupational therapy techniques, the sensory adapted dental environment, and the use protective stabilization.
Dr. Robert A. Naseef, a psychologist and father of a son with autism, details the daily blessings and challenges of raising a child with disabilities, offering sensitive, real-world advice along the way.
Raising a child with special needs is a lifelong commitment that is as unique as each person who embarks on it. Written by a variety of authors who share in this distinctive relationship, Chicken Soup for the Soul Children with Special Needs offers a glimpse into the lives of others who are on a similar path. These stories provide insight, comfort, and connection with others who have walked this powerful and transformational journey. The authors of these candid stories relate their own experiences of adjusting, reaching out, and flourishing and share their universal worries, their tears, and the laughter that come with this extraordinary relationship. Most important, through these stories, you will be guided with the wisdom of fellow parents, caregivers, and those with special needs to help you be the very best parent or caregiver you can be.
The inspiring true story of the first Girl Scout troop founded for and by girls living in a shelter in Queens, New York, and the amazing, nationwide response that it sparked “A powerful book full of powerful women.”—Chelsea Clinton Giselle Burgess was a young mother of five trying to provide for her family. Though she had a full-time job, the demands of ever-increasing rent and mounting bills forced her to fall behind, and eviction soon followed. Giselle and her kids were thrown into New York City’s overburdened shelter system, which housed nearly 60,000 people each day. They soon found themselves living at a Sleep Inn in Queens, provided by the city as temporary shelter; for nearly a year, all six lived in a single room with two beds and one bathroom. With curfews and lack of amenities, it felt more like a prison than a home, and Giselle, at the mercy of a broken system, grew fearful about her family’s future. She knew that her daughters and the other girls living at the shelter needed to be a part of something where they didn’t feel the shame or stigma of being homeless, and could develop skills and a community they could be proud of. Giselle had worked for the Girl Scouts and had the idea to establish a troop in the shelter, and with the support of a group of dedicated parents, advocates, and remarkable girls, Troop 6000 was born. New York Times journalist Nikita Stewart settled in with Troop 6000 for more than a year, at the peak of New York City’s homelessness crisis in 2017, getting to know the girls and their families and witnessing both their triumphs and challenges. In Troop 6000, readers will feel the highs and lows as some families make it out of the shelter while others falter, and girls grow up with the stress and insecurity of not knowing what each day will bring and not having a place to call home, living for the times when they can put on their Girl Scout uniforms and come together. The result is a powerful, inspiring story about overcoming the odds in the most unlikely of places. Stewart shows how shared experiences of poverty and hardship sparked the political will needed to create the troop that would expand from one shelter to fifteen in New York City, and ultimately inspired the creation of similar troops across the country. Woven throughout the book is the history of the Girl Scouts, an organization that has always adapted to fit the times, supporting girls from all walks of life. Troop 6000 is both the intimate story of one group of girls who find pride and community with one another, and the larger story of how, when we come together, we can find support and commonality and experience joy and success, no matter how challenging life may be.
Although the general public in the United States assumes children to be generally healthy and thriving, a substantial and growing number of children have at least one chronic health condition. Many of these conditions are associated with disabilities and interfere regularly with children's usual activities, such as play or leisure activities, attending school, and engaging in family or community activities. In their most severe forms, such disorders are serious lifelong threats to children's social, emotional well-being and quality of life, and anticipated adult outcomes such as for employment or independent living. However, pinpointing the prevalence of disability among children in the U.S. is difficult, as conceptual frameworks and definitions of disability vary among federal programs that provide services to this population and national surveys, the two primary sources for prevalence data. Opportunities for Improving Programs and Services for Children with Disabilities provides a comprehensive analysis of health outcomes for school-aged children with disabilities. This report reviews and assesses programs, services, and supports available to these children and their families. It also describes overarching program, service, and treatment goals; examines outreach efforts and utilization rates; identifies what outcomes are measured and how they are reported; and describes what is known about the effectiveness of these programs and services.
An expert physician empowers parents to make informed decisions about their child’s care. Global impairment of the central nervous system, whether stable or progressive, is often called severe neurological impairment (SNI). A child who has SNI will be cared for both by specialist clinicians and by parents at home. A parent is a child’s best expert and advocate, and many parents become highly skilled in managing their child's care. This guide provides information to help parents increase their knowledge and improve their caregiving skills. In Caring for Children Who Have Severe Neurological Impairment, Dr. Julie M. Hauer advocates shared decision making between family caregivers and healthcare providers. She details aspects of medical care such as pain, sleep, feeding, and respiratory problems that will be particularly useful to parents. Tables and key points summarize discussions for clear, quick reference, while case studies and stories illustrate how different families approach decision making, communication, care plans, and informed consent. Parents and other caregivers will find this book to be indispensable—as will bioethicists and clinicians in pediatrics, neurology, physical and rehabilitative medicine, palliative care, and others who care for children with neurological and neuromuscular disorders. Dr. Hauer offers hope and practical coping strategies in equal measure.
Amid a bewildering range of treatments that promise to alleviate or even cure autism, even the leading researchers can’t predict what will work for your child. As a parent, you are in a unique position to become the practical expert on your child’s needs and strengths. Parenting Your Child with Autism will equip you with family-tested and science-based approaches for meeting the challenges ahead. You’ll learn how to get a diagnosis and navigate the health care and educational systems, make sense of your child’s treatment options, and tap into expert opinions and your own observations to find a treatment program that works. Perhaps most importantly, you will learn how to become your child’s best advocate, and build a better life for your child. This book focuses on the processes and decisions parents of children with autism face every day. To help you build an everyday life that works for your child with autism and other family members, this book shares suggestions that range from practical and educational to philosophical, closing with some personal and professional advice for your journey ahead.