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"Grandma said she's sick, but she looks fine to me. She has a disease called ALS that makes it hard for her muscles to work. My whole family is learning new ways to help her, but I miss how things used to be." Amyotrophic Lateral Sclerosis (ALS) is a very challenging disease that affects all types of people: parents, grandparents, aunts, uncles, and friends. Of course, it also has an enormous impact on the children who love those who've been diagnosed with ALS. Children bring kisses, hugs, caregiving, and joy to those living with ALS, but at the same time, those children may be experiencing confusion, fear, and worry as they watch the person they love face a scary disease. And Love Speaks helps to navigate those difficult feelings and conversations, to help children understand that their loved one with ALS is the same person inside, and to maximize quality time together ensuring every moment counts.
ALS, or amyotrophic lateral sclerosis, is a progressive neurodegenerative disease that currently has no cure. ALS is a disease that typically involves a gradual onset, with initial symptoms that can be quite varied in different people. One person may struggle with lifting a coffee cup or grasping a pen, while others may begin slurring or losing their speech - ALS affects everyone differently. Regardless, ALS is a disease that always takes - takes someone's ability to help themselves, takes someone's ability to express themselves, and ultimately takes someone from the ones who love them most.Mom was taken from us by this disease too soon. She was a nurse of over 30 years, always taking care of others, to end up being taken care of herself. Though we ultimately lost Mom to ALS, we gained a purpose to bring awareness and support to others who may have or had the same experience with their loved one. Whether it's Mom, Dad, Grandma, Grandpa, or another loved one affected by this disease that always takes, always remember - but they still can love.For more ALS information and resources, visit als.org. A large portion of the proceeds from this book will benefit the ALS Association of Georgia Chapter's 'Walk to Defeat ALS' in honor of Mom, Marina Pascarelli.
The author, Robert Rymore, had a good friend who was diagnosed with Lou Gehrig Disease. He wanted to be able to help her and decided to buy some books about the disease. To his disappointment there was a lack of good informative books available on the subject. He decided to investigate the subject thoroughly and write a book about it to be able to help others. He decided he would start talking to professionals - doctors, physical therapists, speech therapists and occupational therapists - to learn more. He quickly realized the information he was getting would be extremely valuable for other people with ALS and their loved ones. This book has been a labor of love, one born of necessity and certainly one that aims to help those with ALS, their families, and their friends. ALS symptoms, signs, stages, types, diagnosis, treatment, caregiver tips, aids and what to expect is all covered. Including chapters about financial considerations, famous people with Lou Gehrig Disease and resources. The book is written in an easy to read and understandable style and contains tips for caregivers.
A compassionate, shame-free guide for your darkest days “A one-of-a-kind book . . . to read for yourself or give to a struggling friend or loved one without the fear that depression and suicidal thoughts will be minimized, medicalized or over-spiritualized.”—Kay Warren, cofounder of Saddleback Church What happens when loving Jesus doesn’t cure you of depression, anxiety, or suicidal thoughts? You might be crushed by shame over your mental illness, only to be told by well-meaning Christians to “choose joy” and “pray more.” So you beg God to take away the pain, but nothing eases the ache inside. As darkness lingers and color drains from your world, you’re left wondering if God has abandoned you. You just want a way out. But there’s hope. In I Love Jesus, But I Want to Die, Sarah J. Robinson offers a healthy, practical, and shame-free guide for Christians struggling with mental illness. With unflinching honesty, Sarah shares her story of battling depression and fighting to stay alive despite toxic theology that made her afraid to seek help outside the church. Pairing her own story with scriptural insights, mental health research, and simple practices, Sarah helps you reconnect with the God who is present in our deepest anguish and discover that you are worth everything it takes to get better. Beautifully written and full of hard-won wisdom, I Love Jesus, But I Want to Die offers a path toward a rich, hope-filled life in Christ, even when healing doesn’t look like what you expect.
In Japan, teenaged Abe Sora, who is afflicted with "Lou Gehrig's Disease," finds friends online and elicits their help to end his suffering.
Starring an enthusiastic pooch whose joy, optimism and love know no bounds, this lively picture book is based on Emma Chichester Clark’s own dog, and joyfully celebrates unconditional love. Plum has lots of favorite things—catching sticks, her bear, her bed—but really, LOVE is her absolute favorite thing. She loves her family and all the things they do together. Sometimes, however, Plum’s exuberance causes trouble, and she just can’t help being naughty. But fortunately, love is such a great thing that even when she makes mistakes, Plum’s family still adores her.
A girl shares many experiences with her grandmother over the years, and many times the old woman gives her a small gift to help her remember their time together.
In this “gripping story of resistance and the triumph of human will” (Senator Elizabeth Warren), activist and subject of the documentary Not Going Quietly Ady Barkan explores his life with ALS and how his diagnosis gave him a profound new understanding of his commitment to social justice for all. Ady Barkan loved taking afternoon runs on the California coast and holding his newborn son, Carl. But one day, he noticed a troubling weakness in his hand. At first, he brushed it off as carpal tunnel syndrome, but after a week of neurological exams and two MRIs, he learned the cause of the problem: amyotrophic lateral sclerosis, better known as ALS or Lou Gehrig’s disease. At age thirty-two, Ady was given just three to four years to live. Yet despite the devastating diagnosis, he refused to let his remaining days go to waste. Eyes to the Wind is a rousing memoir featuring intertwining storylines about determination, perseverance, and how to live a life filled with purpose and intention. The first traces Ady’s battle with ALS: how he turned the initial shock and panic from his diagnosis into a renewed commitment to social justice—not despite his disability but because of it. The second, told in flashbacks, illustrates Ady’s journey from a goofy political nerd to a prominent figure in the enduring fight for equity and justice whose “selfless activism fighting to make health care a right should be an inspiration to us all” (Senator Bernie Sanders). From one of the most vocal advocates for social justice, Eyes to the Wind’s “primary question is existential: how to live when you are dying? Barkan’s answer is to share, open up, act, and capital-R Resist, and his memoir, clearly and candidly written, establishes a legacy” (Booklist).
‘The book to recommend to patients when they face coming to terms with unavoidable childlessness.' – British Medical Journal In Living the Life Unexpected, Jody Day addresses the experience of involuntary childlessness and provides a powerful, practical guide to help those negotiating a future without children come to terms with their grief; a grief that is only just beginning to be recognized by society. This friendly, practical, humorous and honest guide from one of the world’s most respected names in childless support offers compassion and understanding and shows how it’s possible to move towards a creative, happy, meaningful and fulfilling future – even if it’s not the one you had planned. Millions of people are now living a life without children, almost double that of a generation ago and the numbers are rising still. Although some are childfree by choice, many others are childless due to infertility or circumstance and are struggling to come to terms with their uncertain future. Although most people think that those without children either 'couldn't' or 'didn't want’ to be parents, the truth is much more complex. Jody Day was forty-four when she realized that her quest to be a mother was at an end. She presumed that she was through the toughest part, but over the next couple of years she was hit by waves of grief, despair and isolation. Eventually she found her way and in 2011 created Gateway Women, the global friendship and support network for childless women which has now helped almost two million people worldwide. This edition, previously titled Rocking the Life Unexpected, has been extensively revised and updated, with significant additional content and case studies from forty involuntarily childless people (mostly women) from around the world.