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Belonging After Brain Injury: Relocating Dan explores the life of the author’s brother who has dealt with the effects of a severe traumatic brain injury (TBI) for over four decades. It recounts the institutional, psychological, and social labyrinths he and his family have navigated following the TBI he sustained at the age of eighteen. This insightful volume offers a holistic account of the impact of TBI on the survivor and his family. It reveals the difficulties a TBI survivor has had to endure and provides practical information about physical, psychological, and psychosocial symptoms and their consequences. Dan’s story offers new perspectives and strategies that will help alleviate seemingly intractable problems and highlights the central importance of forming connections with others in order to lead a fuller life. The author’s account of her own journey, learning to help care for and advocate for Dan, offers an invaluable guide for TBI survivors and those who care for and support them. Belonging After Brain Injury: Relocating Dan will be of interest to TBI survivors and their families. Its rich insights will be essential reading for medical and mental health professionals, as well those involved in the care and rehabilitation of TBI survivors and families.
An injury to the brain can affect virtually any aspect of functioning and, at the deepest level, can alter sense of self or the essential qualities that define who we are. In recent years, there has been a growing body of research investigating changes to self in the context of brain injury. Developments in the cognitive and social neurosciences, psychotherapy and neurorehabilitation have together provided a rich perspective on self and identity reformation after brain injury. This book draws upon these theoretical perspectives and research findings to provide a comprehensive account of the impact of brain injury on self-identity. The second half of this book provides an in-depth review of clinical strategies for assessing changes in self-identity after brain injury, and of rehabilitation approaches for supporting individuals to maintain or re-establish a positive post-injury identity. The book emphasizes a shift in clinical orientation, from a traditional focus on alleviating impairments, to a focus on working collaboratively with people to support them to re-engage in valued activities and find meaning in their lives after brain injury. Self-Identity after Brain Injury is the first book dedicated to self-identity issues after brain injury which integrates theory and research, and also assessment and intervention strategies. It will be a key resource to support clinicians and researchers working in brain injury rehabilitation, and will be of great interest to researchers and students in clinical psychology, neuropsychology, and allied health disciplines.
An injury to the brain can affect virtually any aspect of functioning and, at the deepest level, can alter sense of self or the essential qualities that define who we are. In recent years, there has been a growing body of research investigating changes to self in the context of brain injury. Developments in the cognitive and social neurosciences, psychotherapy and neurorehabilitation have together provided a rich perspective on self and identity reformation after brain injury. This book draws upon these theoretical perspectives and research findings to provide a comprehensive account of the impact of brain injury on self-identity. The second half of this book provides an in-depth review of clinical strategies for assessing changes in self-identity after brain injury, and of rehabilitation approaches for supporting individuals to maintain or re-establish a positive post-injury identity. The book emphasizes a shift in clinical orientation, from a traditional focus on alleviating impairments, to a focus on working collaboratively with people to support them to re-engage in valued activities and find meaning in their lives after brain injury. Self-Identity after Brain Injury is the first book dedicated to self-identity issues after brain injury which integrates theory and research, and also assessment and intervention strategies. It will be a key resource to support clinicians and researchers working in brain injury rehabilitation, and will be of great interest to researchers and students in clinical psychology, neuropsychology, and allied health disciplines.
This important book provides a firsthand account of a university professor who experienced traumatic brain injury. It tells the story of Michael Arthur, who had recently accepted a position as vice principal of a new high school. After only two weeks on the job, he was involved in a car accident while driving through an intersection in northern Utah. Through his personal account, he takes the reader into the dark interworkings of his mind as he tries to cope with his new reality. He provides insight into how he learned how to process information and even speak without stumbling on his words while also sharing how his significant relationships suffered as he tried to navigate the restless seas of doubt while trying to circumvent his unyielding symptoms. The book is about finding optimism and gaining insight into the struggles of the brain-injured patient and about trying to understand the perspectives of loved ones who can’t quite grasp the idea of an invisible injury. From the sudden onset of garbled speech to the challenges of processing information, the changing dynamic of the author’s life is highlighted to help family members and healthcare workers better understand.
Originally published by Viking Penguin, 2014.
This book tells the author’s story of her ten-year journey of recovery and identity transformation from Traumatic Brain Injury (TBI). Dr. Dee is a survivor who regained the ability to articulate what many TBI survivors cannot, and this powerful account, provided in real-time, portrays the many seemingly unrelatable symptoms of brain injury and subsequent post-traumatic stress disorder (PTSD). Dr. Dee portrays how events pushed her beyond her limits and resulted in life-altering learning experiences, revealing a process of first figuring out how to live, then making meaning of her struggle. When half-way through her PhD program, Dr. Dee was crashed into by a car travelling at 65 miles per hour. She suffered a TBI. She lost her ability to read and write. She had a severe speech impediment and significantly impaired memory. Her journey of recovery, described in the book as her trek, spans four significant periods. The road begins with the loss of most of herself. Diagnosis and evolving symptoms show her broken pathway. The author goes through a rocky road of changes in her relationships and reidentification of herself as she finds her life coach, re-learns to read and write, and deals with mental health issues that felt like the end of her recovery. The final trek reveals hope and posttraumatic growth (PTG) and showcases the value of Disability Culture as a source of pride. This story is for fellow TBI survivors, their caretakers, families and friends, and professionals in the neurorehabilitation field. It brings light to the daunting changes after TBI and give hope for all who tread on this challenging path.
In an age of social isolation, what does it mean to belong? Humanity is at an inflection point. Stress, disconnection, and increasing environmental degradation have people yearning for more than just material progress, personal freedom, or political stability. We are searching for deeper connection. We are longing to belong. On Belonging is an exploration of the crisis of social isolation and of the fundamental human need to belong. It considers belonging across four core dimensions: in our relationships with other people, in our rootedness in nature, in our ability to influence political and economic decision-making, and in our finding of meaning and purpose in our lives, with lessons on how to create communities centered on human connection. A trailblazing advocate and thought leader on questions of social connectedness, Kim Samuel introduces readers to leaders around the world who are doing the work to cultivate belonging. Whether through sports, medicine, music, business, culture, or advocacy, the people and programs in this book offer us meaningful lessons on building a world where we all feel at home.
In 2011, Doing Autoethnography—the first conference to focus solely on autoethnographic principles and practices—was held in chilly Detroit, Michigan on the campus of Wayne State University. The conference has since occurred four additional times (2013, 2014, 2015, 2016). Across the five conferences, thousands of attendees from more than ten countries have participated in hundreds of presentations, more than a dozen workshops, and multiple keynote addresses. The chapters in this collection represent outstanding work from the five conferences. Together, authors interrogate autoethnography ethically, theoretically, relationally, and methodologically. Readers will encounter many overlapping themes: identity norms and negotiations; experiences tied to race, gender, sexuality, size, citizenship, and dis/ability; exclusion and belonging; oppression, injustice, and assault; barriers to learning/education; and living with/in complicated relationships. Some chapters provide clear resolutions; others seemingly provide none. Some authors highlight conventionally positive aspects of experience; others dwell in what might be understood as relational darkness. Some experiences will likely resonate with many readers; others will feel unique, unusual, exceptional. In its entirety, the collection will take readers on an evocative, reflexive, and insightful journey.
Due to injuries sustained in sports and in combat, interest in traumatic brain injury (TBI) has never been greater. This book will fulfill a gap in understanding of what is occurring in the brain following injury that can subsequently be detected in biological fluids and imaging.
Disability, Intersectionality, and Belonging in Special Education focuses on preparing educators who use socioculturally sustaining practices, curricula, and instruction through an intersectional lens. This book empowers preservice students and special education practitioners and administrators to meet the needs of disabled individuals. Understanding the full range of requirements relating to socioculturally sustaining practices is imperative to working with individuals with disabilities as well as with their families and caregivers. Being able to understand and explain this complex issue to others is important and often necessary. Social injustices in special education are historical and systemic. Special education practitioners are typically unaware of the importance of intersectional differences because they have been prepared to address cultural perspectives only during awareness days or through specific units in curricula. At other times they discuss the topic diagnostically—for example, as part of an educational plan or when teaching English as a second language. Other issues stem from the value system of the special education practitioners themselves; some are not willing to engage in these concepts, while others prioritize treating all students the same by using the terms “fairness,” “equity,” and “colorblindness” to justify this treatment. Even when special educator practitioners attempt to address injustices on behalf of their students, they tend to center on only the student’s disability, which means they are ignoring or erasing other aspects of their students’ identities. These concerns highlight the importance of building the sociocultural competence of our teaching force. This book will help practitioners build this competence in their own spheres of influence.