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As internationally recognised pioneers in their field, Drs Volicer and Hurley have brought critical attention to the unique issues and needs of people in the advanced stages of dementia. In this book, they bring together a culmination of more than 20 years of research on late-stage dementia, providing the best evidence-based measurement scales available for researchers and care providers who are seeking to improve care for people in the final stages of this increasingly prevalent disease.
ABC of Dementia is a practical guide, written with the needs of professionals in training in mind. Its aim is to enable readers to explore attitudes towards dementia, and find the knowledge and skills required in the important task of supporting the lives of people with dementia and their carers. This new edition is designed to assist students and practitioners working within both primary and secondary care settings with the diagnosis, treatment and provision of care. It covers the causes of dementia, diagnostic assessment, early intervention, pharmacological treatment, person-centred care, legal and ethical issues, and more. This resource has been thoroughly revised to reflect the most recent research and evidence-based practice. New and expanded content addresses dementia and frailty in care homes, explores the role of technology in the treatment of dementia, discusses working with minority groups, and examines case studies. Aids healthcare professionals in developing the knowledge, skills and confidence to care for those with dementia Highlights the importance of person-centred care and the effects of dementia on families and carers Describes the cognitive changes and neurological disorders central to dementia Addresses the needs of younger people developing dementia Provides guidance on managing dementia in primary care, the acute hospital and end-of-life care settings Covers the Neuropsychiatric Symptoms of Dementia (NPSD) Features numerous full-colour photographs and illustrations ABC of Dementia is a must-have for healthcare students, general practitioners, and other healthcare professionals caring for people with dementia. It will also be of interest to members of the general public who wish to know more about dementia.
A high percentage of patients with dementia experience debilitating pain. Untreated, it can result in mental and physical impairment; a higher frequency of neuropsychiatric symptoms such as agitation, depression, and sleep problems; and adverse events such as falls, hallucination, and even death. With the help of Pain in Dementia, you can learn new ways to give these patients a better quality of life! A multidisciplinary team of leading experts navigates the complex clinical challenges associated with pain among these patients. They identify the sources of pain, even in patients who have trouble communicating, and recommend the most effective pain treatment options.
Highlights major new accomplishments in such areas as the neurobiology of pain, age-related psychological and cognitive differences in pain perception, and the assessment of pain in cognitively intact and cognitively impaired older persons. Treatments such as oral analgesics, physical therapy techniques, cognitive-behavioral therapy, complementary and alternative medicine applications, and multidisciplinary pain management clinics are discussed, as are low back pain, neuropathic pain, postoperative pain, and end-of-life issues.
For many years, the need to develop valid tools to evaluate signs and symptoms of Parkinson Disease (PD) has been present. However the understanding of all intricacies of rating scales development was not widely available and the first attempts were relatively crude. In 2002, the Movement Disorders Society created a task force to systemize the measurement of Parkinson's Disease. Since then, the Task Force has produced and published several critiques to the available rating scales addressing both motor and non-motor domains of Parkinson Disease. Additionally the task force initiated a project to develop a new version of the UPDRS, the MDS-UPDRS. But none of this was made available in one convenient source. Until now. Rating Scales in Parkinson's Disease is written for researchers from the medical and social sciences, and for health professionals wishing to evaluate the progress of their patients suffering from Parkinson Disease. The book is both exhaustive in the description of the scales and informative on the advantages and limitations of each scale. As such, the text clearly guides readers on how to choose and use the instruments available. Extensive cross-referenced tables and charts closely integrate the parts of the book to facilitate readers in moving from one symptom domain to another.
This Guide assesses the key clinimetric attributes in the assessment of Parkinson's Disease (PD), with the intention to offer rapid and pragmatic information on the most relevant scales used in PD. Parkinson’s disease affects approximately 4 million people globally and is most commonly seen in people over the age of 50. The disease is a progressive disorder of the nervous system, and presents a number of movement and cognitive symptoms, thereby greatly affecting a patients quality of life. The use of scales for assessment in neurological disorders such as PD arises from the need to quantify disorders and states (such constructs as disability, symptoms, quality of life). Assessment scales are often categorised into two categories: generic (i.e. those scales usable in any health condition), and specific (i.e. scales developed for exclusive use in PD). They can have a variety of components: single-item and multi-item or composite scale; unidimensional and multidimensional; and as disease-centered and patient-centered measures. The creation and validation of scales is complex, with scales undergoing numerous studies to assess criteria such as acceptability, reliability, and responsiveness. In the process of validation of a scale the following attributes should be tested to ascertain whether a scale is an effective instrument of measurement.
"Rating scales are used daily by everyone involved in the management of patients with neurologic disease and in the design and management of neurologic clinical trials. Now there is a single source for the wide range of scales used in specific neurologic diseases and neurorehabilitation. You will refer to this volume constantly! The first edition of the Handbook of Neurologic Rating Scales quickly became an invaluable reference work on the increasing array of scales for measuring neurologic disease. In the brief few years since the first edition the importance of this book has only increased. New Chapters Include Scales On: Generic and general use Pediatric neurology and rehabilitation Peripheral neuropathy and pain Ataxia HIV/AIDS And instruments for diagnosing headaches. Formal measurement of the effects of neurologic disease and of treatment effects, beyond the description of changes on the standard neurologic examination, is a relatively recent development. Controlled clinical trials and outcomes research are at the heart of modern information-based medicine, and neurologic scales are essential tools in clinical trials designed to provide this information. A Resource for Clinical Trials The Handbook of Neurologic Rating Scales provides a resource for clinicians and clinical investigators in the broad field of neurology and neurologic rehabilitation to help them: evaluate the clinical trials literature by providing information on the scales being used evaluate and select appropriate and efficient scales for clinical trials and outcomes research, and provide information that will help them to develop new scales or measures or to improve existing ones. A Resource for Evaluating Disease Status Outcomes research is playing an increasingly important role in clinical management and neurorehabilitation, and these also depend largely on measurement of disease status and change. In this era of managed care, neurologists must produce outcomes data demonstrating the effectiveness of neurologic care if the specialty is to survive, and certainly if it is to thrive. Even effective therapies are likely to fall by the wayside if studies to prove their effectiveness are not done. Comprehensive and Standardized Information on All Scales Each chapter in this volume contains the scales of importance and in current use, including a sequence of scale descriptions and specific scales in a standard format, as well as a summary and recommendations indicating which scales are most useful for specific purposes and whether a combination of scales is particularly useful or if better scales are needed. Each entry notes: the purpose for which the scale was developed and its current uses if they differ from those for which it was developed a detailed description of the scale information about validation, such as: Does the scale have face validity? i.e., does it appear to measure what it purports to measure? how and by whom the scale is administered the time needed to administer and score the scale the scale itself or, when the scale is proprietary or too long for inclusion, a description and key references special considerations, including unusual measures needed to obtain a valid score or problems in administering the test in specific patients advantages, or what makes the scale good or useful. Disadvantages, or what makes the scale difficult to use or impairs its reliability key references, including the original publication of the scale and its validation Downloadable PDFs of the scales contained in the Handbook of Neurologic Rating Scales are included with the purchase of this book. The password to download the files can be found in the book itself.
2010 AJN Book of the Year Award Winner in both Gerontologic Nursing and Hospice and Palliative Care! "This book...provides important information on best practices and appropriate ways to care for a person with Alzheimer's and advanced dementia. Drs. Martin and Sabbagh have assembled a team of experts to help craft recommendations that should ultimately become standards that all professional caregivers adopt." -Michael Reagan Son of former President Ronald Reagan President, Reagan Legacy Foundation This book testifies that caregivers can have a monumental impact on the lives of persons with advanced dementia. Through specialized programming and a renewed effort toward patient-centered care, caregivers can profoundly enrich the quality of life for these persons. Providing guidelines for health care professionals, caregivers, and family members, this book introduces palliative care programs and protocols for the treatment of people with advanced dementia. The book is designed to guide professional caregivers in meeting the needs of patients and their families, providing insight into the philosophy, assessment, planning, implementation, and evaluation measures involved in interdisciplinary palliative care. The chapter authors offer guidelines and standards of care based on contributions from nurses, physical therapists, social workers, dietitions, psychologists, family caregivers and pastors. An exhibit at the end of every chapter clearly articulates the standards of care appropriate for all advanced dementia facilities and health care staff. This book helps caregivers: Enhance the physiological, psychological, social, and spiritual well-being of the patient and the patient's family Anticipate and meet the patient's basic human needs: hunger, thirst, body positioning, hygiene, continence, and management of any pain Ensure that the patient's surroundings are safe, comfortable, and homelike Address health care decisions that will support the patient's right to self-determination until the end of life
Untreated or undertreated pain causes needless suffering and negatively affects the quality of life. This second edition provides an overview of pain assessment and management, identifies what the standards require regarding the treatment of patients with pain, and offers guidance on making pain management an integral part of care services.
This definitive clinical reference comprehensively reviews the most advanced methods for assessing the person in pain. The field's leading authorities present essential information and tools for evaluating psychosocial, behavioral, situational, and medical factors in patients' subjective experience, functional impairment, and response to treatment. Empirically supported instruments and procedures are detailed, including self-report measures, observational techniques, psychophysiological measures, and more. Best-practice recommendations are provided for assessing the most prevalent pain syndromes and for working with children, older adults, and people with communication difficulties. The book also weighs in on the limitations of existing methods and identifies key directions for future research.