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The proliferation of Acquired Immune Deficiency Syndrome (AIDS) among women and children represents one of the gravest health issues confronting contemporary society. Women, most of childbearing age, now constitute 11 percent of all cases, and the U.S. Public Health Service has projected over 3,000 cases of pediatric AIDS by the end of 1991. In the face of these sobering statistics, experts have been called upon to grapple with a difficult, compelling question: under what conditions, if any, should HIV testing of women and children be required? Also at issue are the surreptitious testing for HIV antibodies as part of routine prenatal and neonatal examinations, and whether such testing should be performed on all women and infants, or only those who belong to groups judged at "high risk". In this unique contribution to the debate about HIV screening and testing, Ruth Faden, Madison Powers, and Gail Geller have assembled perspectives from experts in public health, medicine, law, and ethics. Their wide-ranging treatment examines the history of prenatal and neonatal screening programs; informed consent; legal issues and confidentiality; reproductive decision-making; and numerous other aspects of HIV testing. Alternative policy options for both now and the future are discussed in detail. This volume provides a comprehensive analysis of these pressing medical, public health, legal, ethical, and social issues, and is essential reading for AIDS researchers and clinicians, public health specialists, ethicists, health policymakers and analysts, obstetricians, and pediatricians.
One of the tragic factors of the AIDS epidemic is the growing number of infected women and children. This study explores the ethical, legal, clinical and public health issues raised by the question of under what conditions pregnant women and children should be tested for HIV infection.
For young gay men who came of age in the United States in the 1980s, the HIV/AIDS epidemic was a formative experience in fear, hardship, and loss. Those who were diagnosed before 1996 suffered an exceptionally high rate of mortality, and the survivors -- both the infected individuals and those close to them -- today constitute a "bravest generation" in American history. The AIDS Generation: Stories of Survival and Resilience examines the strategies for survival and coping employed by these HIV-positive gay men, who together constitute the first generation of long-term survivors of the disease. Through interviews conducted by the author, it narrates the stories of gay men who have survived since the early days of the epidemic; documents and delineates the strategies and behaviors enacted by men of this generation to survive it; and examines the extent to which these approaches to survival inform and are informed by the broad body of literature on resilience and health. The stories and strategies detailed here, all used to combat the profound physical, emotional, and social challenges faced by those in the crosshairs of the AIDS epidemic, provide a gateway for understanding how individuals cope with chronic and life-threatening diseases. Halkitis takes readers on a journey of first-hand data collection (the interviews themselves), the popular culture representations of these phenomena, and his own experiences as one of the men of the AIDS generation. This riveting account will be of interest to health practitioners and historians throughout the clinical and social sciences -- or to anyone with an interest in this important chapter in social history. Cover photo courtesy of Fire Island Pines Historical Preservation Society.
Go beyond traditional medical care to treat the whole person!In the past ten years, the treatment and epidemiology of AIDS have changed, and HIV/AIDS services must also change. The Next Generation of AIDS Patients suggests new ways to find and care for persons living with AIDS, not just by offering traditional medical treatment but by delivering needed support services as well. This landmark book defines the startling shift in demographics of this phase of the epidemic. The new AIDS patients have different problems than the white gay men who were strongly affected in the early days of the disease: some are substance abusers or sex workers or their partners, and many have children. Clients who are homeless, poorly educated, not native English speakers, or uninsured have overwhelming social support needs and need extra help to obtain their medical requirements. The Next Generation of AIDS Patients offers detailed analyses to help you determine clients’needs and vulnerability levels, so you can provide complete biopsychosocial services. In addition, the original empirical research in this book reveals which programs deliver the best outcomes for various client populations. The Next Generation of AIDS Patientssupplies you with an effective data modeling approach for determining levels of vulnerability and need, and discusses such vital issues as: identifying and overcoming barriers to HIV care engaging and retaining in care individuals with high levels of unmet need delivering services to diverse minority populations, substance abusers, homeless people, and those who live in rural areas client satisfaction in community service organizations In order to develop successful community-based health care and support services, medical and social work professionals must take the new face of this disease into account. The Next Generation of AIDS Patients offers practical advice, readily applicable theory, and proven strategies for caring for people living with AIDS.
Twenty percent of all women coming into the New York state prison system either have AIDS or are HIV positive. In response to this very real scenario, a group of inmates at the women's prison at Bedford Hills, New York, created the A.C.E. (AIDS Counseling and Education) Program. This book documents the A.C.E. Program from its beginnings, recorded in the women's own voices, and details nine workshops that anyone can use. 35 illustrations and photos.
Go beyond traditional medical care to treat the whole person! In the past ten years, the treatment and epidemiology of AIDS have changed, and HIV/AIDS services must also change. The Next Generation of AIDS Patients suggests new ways to find and care for persons living with AIDS, not just by offering traditional medical treatment but by delivering needed support services as well. This landmark book defines the startling shift in demographics of this phase of the epidemic. The new AIDS patients have different problems than the white gay men who were strongly affected in the early days of the disease: some are substance abusers or sex workers or their partners, and many have children. Clients who are homeless, poorly educated, not native English speakers, or uninsured have overwhelming social support needs and need extra help to obtain their medical requirements. The Next Generation of AIDS Patients offers detailed analyses to help you determine clients’needs and vulnerability levels, so you can provide complete biopsychosocial services. In addition, the original empirical research in this book reveals which programs deliver the best outcomes for various client populations. The Next Generation of AIDS Patientssupplies you with an effective data modeling approach for determining levels of vulnerability and need, and discusses such vital issues as: identifying and overcoming barriers to HIV care engaging and retaining in care individuals with high levels of unmet need delivering services to diverse minority populations, substance abusers, homeless people, and those who live in rural areas client satisfaction in community service organizations In order to develop successful community-based health care and support services, medical and social work professionals must take the new face of this disease into account. The Next Generation of AIDS Patients offers practical advice, readily applicable theory, and proven strategies for caring for people living with AIDS.
This second edition of the book provides up-to-date information on new drugs, new proven HIV prevention interventions, a new chapter on positive prevention, and current HIV epidemiology. This definitive text covers all aspects of HIV/AIDS in South Africa, from basic science to medicine, sociology, economics and politics. It has been written by a highly respected team of South African HIV/AIDS experts and provides a thoroughly researched account of the epidemic in the region.
Winner of the 2022 Lambda Literary LGBTQ Nonfiction Award and the 2022 NLGJA Excellence in Book Writing Award. Finalist for the PEN/John Kenneth Galbriath Award for Nonfiction, the Gotham Book Prize, and the ALA Stonewall Israel Fishman Nonfiction Award. A 2021 New York Times Book Review Notable Book and a New York Times Book Review Editors' Choice. Longlisted for the 2021 Brooklyn Public Library Literary Prize. One of NPR, New York, and The Guardian's Best Books of 2021, one of Buzzfeed's Best LGBTQ+ Books of 2021, one of Electric Literature's Favorite Nonfiction Books of 2021, one of NBC's 10 Most Notable LGBTQ Books of 2021, and one of Gay Times' Best LGBTQ Books of 2021. "This is not reverent, definitive history. This is a tactician’s bible." --Parul Sehgal, The New York Times Twenty years in the making, Sarah Schulman's Let the Record Show is the most comprehensive political history ever assembled of ACT UP and American AIDS activism In just six years, ACT UP, New York, a broad and unlikely coalition of activists from all races, genders, sexualities, and backgrounds, changed the world. Armed with rancor, desperation, intelligence, and creativity, it took on the AIDS crisis with an indefatigable, ingenious, and multifaceted attack on the corporations, institutions, governments, and individuals who stood in the way of AIDS treatment for all. They stormed the FDA and NIH in Washington, DC, and started needle exchange programs in New York; they took over Grand Central Terminal and fought to change the legal definition of AIDS to include women; they transformed the American insurance industry, weaponized art and advertising to push their agenda, and battled—and beat—The New York Times, the Catholic Church, and the pharmaceutical industry. Their activism, in its complex and intersectional power, transformed the lives of people with AIDS and the bigoted society that had abandoned them. Based on more than two hundred interviews with ACT UP members and rich with lessons for today’s activists, Let the Record Show is a revelatory exploration—and long-overdue reassessment—of the coalition’s inner workings, conflicts, achievements, and ultimate fracture. Schulman, one of the most revered queer writers and thinkers of her generation, explores the how and the why, examining, with her characteristic rigor and bite, how a group of desperate outcasts changed America forever, and in the process created a livable future for generations of people across the world.
The AIDS epidemic in Sub-Saharan Africa continues to affect all facets of life throughout the subcontinent. Deaths related to AIDS have driven down the life expectancy rate of residents in Zambia, Kenya, and Uganda with far-reaching implications. This book details the current state of the AIDS epidemic in Africa and what is known about the behaviors that contribute to the transmission of the HIV infection. It lays out what research is needed and what is necessary to design more effective prevention programs.