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This book critically examines the many complex entanglements between AIDS activism and HIV science. It takes readers on a medical anthropological expedition across time and space that highlights the stakes from the perspective of those most affected by the epidemic. Author Robert Lorway reveals how early in the HIV epidemic, amid inadequate government leadership, communities of people living with and directly affected by HIV and AIDS rose to become a vital force at the forefront of prevention responses. Yet now, more than three decades later, HIV prevention and treatment is increasingly being placed under the jurisdiction of clinical, epidemiological, and management scientific expertise. In this kind of context, where does activism figure into the possibility of more democratized collaborations between affected communities, scientists, and policy makers? Coverage draws upon the findings from an array of community research projects conducted in Canada, India, and Kenya over a 22-year period. It weaves together rich, original data sources that range from in-depth qualitative interviews, field notes, and primary and secondary archival document retrievals in these three regions. Offering a rich diversity in perspectives, this book tackles the broader themes related to global health policy, science, and transnational activism at the same time as it highlights the experiences and local arenas where debates about activism and science play out. In the end, Lorway questions the growing expectation for affected communities themselves to produce sound evidence to legitimize their advocacy projects. He calls for the planners and implementers of biomedically oriented HIV research and interventions to more meaningfully engage with communities in ways that de-monopolize decision making as a matter of ethics and improved scientific practice.
Europe's "Black Death" contributed to the rise of nation states, mercantile economies, and even the Reformation. Will the AIDS epidemic have similar dramatic effects on the social and political landscape of the twenty-first century? This readable volume looks at the impact of AIDS since its emergence and suggests its effects in the next decade, when a million or more Americans will likely die of the disease. The Social Impact of AIDS in the United States addresses some of the most sensitive and controversial issues in the public debate over AIDS. This landmark book explores how AIDS has affected fundamental policies and practices in our major institutions, examining: How America's major religious organizations have dealt with sometimes conflicting values: the imperative of care for the sick versus traditional views of homosexuality and drug use. Hotly debated public health measures, such as HIV antibody testing and screening, tracing of sexual contacts, and quarantine. The potential risk of HIV infection to and from health care workers. How AIDS activists have brought about major change in the way new drugs are brought to the marketplace. The impact of AIDS on community-based organizations, from volunteers caring for individuals to the highly political ACT-UP organization. Coping with HIV infection in prisons. Two case studies shed light on HIV and the family relationship. One reports on some efforts to gain legal recognition for nonmarital relationships, and the other examines foster care programs for newborns with the HIV virus. A case study of New York City details how selected institutions interact to give what may be a picture of AIDS in the future. This clear and comprehensive presentation will be of interest to anyone concerned about AIDS and its impact on the country: health professionals, sociologists, psychologists, advocates for at-risk populations, and interested individuals.
Over the past decade, effective prevention and treatment policies have resulted in global health organizations claiming that the end of the HIV/AIDS crisis is near and that HIV/AIDS is now a chronic but manageable disease. These proclamations have been accompanied by stagnant or decreasing public interest in and financial support for people living with HIV and the organizations that support them, minimizing significant global disparities in the management and control of the HIV pandemic. The contributors to this edited collection explore how diverse communities of people living with HIV (PLHIV) and organizations that support them are navigating physical, social, political, and economic challenges during these so-called “post-crisis” times.
A second edition of the classic introduction to arts in social movements, fully updated and now including Black Lives Matter, Occupy Wall Street, and new digital and social media forms of cultural resistance The Art of Protest, first published in 2006, was hailed as an “essential” introduction to progressive social movements in the United States and praised for its “fluid writing style” and “well-informed and insightful” contribution (Choice Magazine). Now thoroughly revised and updated, this new edition of T. V. Reed’s acclaimed work offers engaging accounts of ten key progressive movements in postwar America, from the African American struggle for civil rights beginning in the 1950s to Occupy Wall Street and Black Lives Matter in the twenty-first century. Reed focuses on the artistic activities of these movements as a lively way to frame progressive social change and its cultural legacies: civil rights freedom songs, the street drama of the Black Panthers, revolutionary murals of the Chicano movement, poetry in women’s movements, the American Indian Movement’s use of film and video, anti-apartheid rock music, ACT UP’s visual art, digital arts in #Occupy, Black Lives Matter rap videos, and more. Through the kaleidoscopic lens of artistic expression, Reed reveals how activism profoundly shapes popular cultural forms. For students and scholars of social change and those seeking to counter reactionary efforts to turn back the clock on social equality and justice, the new edition of The Art of Protest will be both informative and inspiring.
When cannabis tincture was withdrawn from the medical establishment in the UK in 1973, cannabis became regulated solely as an illicit drug. Within a decade cannabis-based drugs were back in the clinic. The UK is one of the biggest producers of medicinal cannabis, but few patients have access to these medicines. High-profile cases of parents campaigning for access to cannabis oil for severe and rare forms of epilepsy in their children are the most recent in a long line of controversies over cannabis and cannabis-based medicines. With mounting questions about patient access, the effectiveness of international drug control systems, and the role of expert advice, it is crucial to understand how we have arrived at this situation. While the historical literature has focused on cannabis as an illicit substance, Remedicalizing Cannabis considers the botanical product and its potential to yield medical applications. Investigating the remedicalization of cannabis, Taylor explores the process whereby boundaries shift between illicit drug and licit medicine. Basing her arguments on archival material from expert committees, researchers, and activists and in-depth interviews with key players, Suzanne Taylor traces the issues and interests involved in this process, demonstrating the important roles of changing scientific knowledge, expert advice, industry, clinical trials, and patient activism. Remedicalizing Cannabis investigates the evolving tensions that have brought us to the current situation and demonstrates the role of history in understanding today’s debates about cannabis.
What contributions can LGBT activists make to eliminating the inequities that drive the HIV epidemic in countries that are hostile to sexual and gender minority rights? In Breaking Barriers: Sexual and Gender Minority-led Advocacy to End AIDS in Africa and the Caribbean, Robin Lin Miller and George Ayala tell the story of a transnational partnership among community activists from eight countries to address the entrenched stigma and discrimination that blocks sexual and gender minority people from accessing affirming HIV care. Through their extended case study of Project ACT, they demonstrate how activists contributed to social progress within their country environments, despite great obstacles. Documenting the project from its inception through to its untimely demise due to the Covid pandemic, Miller and Ayala highlight the many ups and downs endured by activists and their allies as they tried to promote access to health care in politically and culturally hostile national contexts and with limited financial resources. They raise questions about the role of donors and partners from the Global North in supporting progress on the ground in Global South countries. They also consider effective strategies for evaluating human rights-focused HIV advocacy in these fraught environments. Ultimately, Miller and Ayala provide readers guidance on principles of practice for human rights advocacy and for planning, carrying out, and evaluating projects that aspire to create structural change to improve access to affirming HIV care for sexual and gender minority people.
In the early twenty-first century, key public health issues and challenges have taken centre stage on the global scene, and health has been placed at the heart of our collective aspirations for human development and well-being. But significant debate exists not only about the causes, but also about the possible solutions for nearly all of the most important global health challenges. Competing visions of the values and perspectives that should underlie global health policies have emerged, ranging from an emphasis on cost eff ectiveness and resource constraints on one extreme, to new calls for health and human rights, and renewed calls for health and social justice on the other. The role of different intergovernmental agencies, bilateral or unilateral donors, public or private institutions and initiatives, has increasingly been called into question, whilst the spread of neoliberal policies and programmes, and existing international trade regimes and intellectual property rights, are deeply implicated in relation to global health responses. This volume critically evaluates how the global health industry has evolved and how the interests of diverse political and economic stakeholders are shaping the context of a rapidly changing institutional landscape. Bringing together leading authors from across the world, the Handbook’s eight sections explore: • Critical perspectives on global health • Globalisation, neoliberalism, and health systems • The changing shape of global health governance • Development assistance and the politics of global health • Scale-up, scale-down, and the sustainability of global health programmes • Intellectual property rights, trade relations, and global health • Humanitarian emergencies and global health politics • Human rights, social justice, and global health The Routledge Handbook on the Politics of Global Health addresses both the emerging issues and conceptualisations of the political strategies, policy-making processes, and global governance of global health, along with expanding upon and highlighting the critical priorities in this rapidly evolving field. It provides an authoritative overview for students, practitioners, researchers, and policymakers working in or concerned with the politics of public health around the globe.
In the global race to reach the end of AIDS, why is the world slipping off track? The answer has to do with stigma, money, and data. Global funding for AIDS response is declining. Tough choices must be made: some people will win and some will lose. Global aid agencies and governments use health data to make these choices. While aid agencies prioritize a shrinking list of countries, many governments deny that sex workers, men who have sex with men, drug users, and transgender people exist. Since no data is gathered about their needs, life-saving services are not funded, and the lack of data reinforces the denial. The Uncounted cracks open this and other data paradoxes through interviews with global health leaders and activists, ethnographic research, analysis of gaps in mathematical models, and the author's experience as an activist and senior official. It shows what is counted, what is not, and why empowering communities to gather their own data could be key to ending AIDS.
Contestations over knowledge – and who controls its production – are a key focus of social movements and other actors that promote food sovereignty, agroecology and biocultural diversity. This book critically examines the kinds of knowledge and ways of knowing needed for food sovereignty, agroecology and biocultural diversity. ‘Food sovereignty’ is understood here as a transformative process that seeks to recreate the democratic realm and regenerate a diversity of autonomous food systems based on agroecology, biocultural diversity, equity, social justice and ecological sustainability. It is shown that alternatives to the current model of development require radically different knowledges and epistemologies from those on offer today in mainstream institutions (including universities, policy think tanks and donor organizations). To achieve food sovereignty, agroecology and biocultural diversity, there is a need to re-imagine and construct knowledge for diversity, decentralisation, dynamic adaptation and democracy. The authors critically explore the changes in organizations, research paradigms and professional practice that could help transform and co-create knowledge for a new modernity based on plural definitions of wellbeing. Particular attention is given to institutional, pedagogical and methodological innovations that can enhance cognitive justice by giving hitherto excluded citizens more power and agency in the construction of knowledge. The book thus contributes to the democratization of knowledge and power in the domain of food, environment and society. Chapters 1 and 8 of this book are freely available as downloadable Open Access PDFs at http://www.taylorfrancis.com under a Creative Commons Attribution-Non Commercial-No Derivatives (CC-BY-NC-ND) 4.0 license.
This book addresses the impact of HIV on populations of men who have sex with men in Africa and local responses to the issue. It documents the enduring existence of a rich variety of same-sex practices between men. More critically, it analyses how the denial and social rejection of same-sex sexuality, together with the legacy of criminalization by former colonial rulers, has not only fueled the transmission of HIV between men, but has also impeded an effective response. The book also documents some of the outstanding progress that has been made and acknowledges the differences between African countries. Through its focus on lived realities and grassroots activism in Africa, this book will appeal to researchers, policy makers and practitioners alike.