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Activism and Marginalization in the AIDS Crisis shows readers how the advent of HIV-disease has brought into question the utility of certain forms of “activism” as they relate to understanding and fighting the social impacts of disease. This informative and powerful book is centrally concerned about the ways in which institutionally governed social constructions of HIV/AIDS affect policy and public images of the disease more so than activist efforts. It asserts that an accounting of the power institutional structures have over the dominant social constructions of HIV disease is fundamental to adequate forms of present and future AIDS activism. Chapters in Activism and Marginalization in the AIDS Crisis demonstrate how, despite what is thought of as the “successful activism” of the past decade, the claims of the HIV-positive are still being ignored, still being marginalized, and still being administratively “handled” and exploited even as the plight of those who find themselves HIV-positive worsens. Although chapters reject the assertion that activism has been a highly effective remedy to HIV-positive voicelessness, authors do not deny that activists have been vocal, but that they continue to be ignored despite their vocality. Contributors in Activism and Marginalization in the AIDS Crisis offer numerous examples of institutional control and demonstrate that institutional structures, and not activists, are controlling the public meaning of HIV-related issues. Readers learn how messages about HIV/AIDS are produced, negotiated, modified, and sustained through institutional mechanisms that serve mostly institutional interests rather than those of the HIV-positive. In gaining an understanding of these issues, readers will begin to learn how to modify and strengthen activist efforts with valuable insight on: the lack of HIV-positive voices in mainstream news portrayals of HIV/AIDS research on constructions of HIV-disease at the state government level social constructions and how they affect HIV/AIDS policy the political construction of AIDS and interest-based struggles the emergent “bio-politics” of HIV and homosexuality in the U.S. how institutional power works to govern public understanding of HIV disease Institutional structures are defined in this book as groups engaged in and defined by the production of various “truths” which sustain them. Institutional power may be defined as the capacity to regulate, constrain, and disseminate versions of “truth.” Activism and Marginalization in the AIDS Crisis reveals how HIV activist groups have been outmaneuvered when it comes to the production and dissemination of various “truths” about HIV/AIDS by institutional structures more deeply steeped in social legitimacy and which have a superior capacity for message dissemination. HIV/AIDS activists, HIV-positive persons and those with AIDS, HIV/AIDS educators, public and institutional policymakers, health professionals, and the general public will find this book essential to understanding the social constructions of HIV/AIDS, how these affect HIV/AIDS-related policy and public opinion, and how to begin to cipher through the plethora of information to find and promote the “truth.”
Europe's "Black Death" contributed to the rise of nation states, mercantile economies, and even the Reformation. Will the AIDS epidemic have similar dramatic effects on the social and political landscape of the twenty-first century? This readable volume looks at the impact of AIDS since its emergence and suggests its effects in the next decade, when a million or more Americans will likely die of the disease. The Social Impact of AIDS in the United States addresses some of the most sensitive and controversial issues in the public debate over AIDS. This landmark book explores how AIDS has affected fundamental policies and practices in our major institutions, examining: How America's major religious organizations have dealt with sometimes conflicting values: the imperative of care for the sick versus traditional views of homosexuality and drug use. Hotly debated public health measures, such as HIV antibody testing and screening, tracing of sexual contacts, and quarantine. The potential risk of HIV infection to and from health care workers. How AIDS activists have brought about major change in the way new drugs are brought to the marketplace. The impact of AIDS on community-based organizations, from volunteers caring for individuals to the highly political ACT-UP organization. Coping with HIV infection in prisons. Two case studies shed light on HIV and the family relationship. One reports on some efforts to gain legal recognition for nonmarital relationships, and the other examines foster care programs for newborns with the HIV virus. A case study of New York City details how selected institutions interact to give what may be a picture of AIDS in the future. This clear and comprehensive presentation will be of interest to anyone concerned about AIDS and its impact on the country: health professionals, sociologists, psychologists, advocates for at-risk populations, and interested individuals.
In the decades since it was identified in 1981, HIV/AIDS has devastated African American communities. Members of those communities mobilized to fight the epidemic and its consequences from the beginning of the AIDS activist movement. They struggled not only to overcome the stigma and denial surrounding a "white gay disease" in Black America, but also to bring resources to struggling communities that were often dismissed as too "hard to reach." To Make the Wounded Whole offers the first history of African American AIDS activism in all of its depth and breadth. Dan Royles introduces a diverse constellation of activists, including medical professionals, Black gay intellectuals, church pastors, Nation of Islam leaders, recovering drug users, and Black feminists who pursued a wide array of grassroots approaches to slow the epidemic's spread and address its impacts. Through interlinked stories from Philadelphia and Atlanta to South Africa and back again, Royles documents the diverse, creative, and global work of African American activists in the decades-long battle against HIV/AIDS.
In the face of life-threatening news, how does our view of life change—and what do we do it transform it? Remaking a Life uses the HIV/AIDS epidemic as a lens to understand how women generate radical improvements in their social well being in the face of social stigma and economic disadvantage. Drawing on interviews with nationally recognized AIDS activists as well as over one hundred Chicago-based women living with HIV/AIDS, Celeste Watkins-Hayes takes readers on an uplifting journey through women’s transformative projects, a multidimensional process in which women shift their approach to their physical, social, economic, and political survival, thereby changing their viewpoint of “dying from” AIDS to “living with” it. With an eye towards improving the lives of women, Remaking a Life provides techniques to encourage private, nonprofit, and government agencies to successfully collaborate, and shares policy ideas with the hope of alleviating the injuries of inequality faced by those living with HIV/AIDS everyday.
Last year, more African Americans were reported with AIDS than any other racial or ethnic group. And while African Americans make up only 13 percent of the U.S. population, they account for more than 55 percent of all newly diagnosed HIV infections. These alarming developments have caused reactions ranging from profound grief to extreme anger in African-American communities, yet the organized political reaction has remained remarkably restrained. The Boundaries of Blackness is the first full-scale exploration of the social, political, and cultural impact of AIDS on the African-American community. Informed by interviews with activists, ministers, public officials, and people with AIDS, Cathy Cohen unflinchingly brings to light how the epidemic fractured, rather than united, the black community. She traces how the disease separated blacks along different fault lines and analyzes the ensuing struggles and debates. More broadly, Cohen analyzes how other cross-cutting issues—of class, gender, and sexuality—challenge accepted ideas of who belongs in the community. Such issues, she predicts, will increasingly occupy the political agendas of black organizations and institutions and can lead to either greater inclusiveness or further divisiveness. The Boundaries of Blackness, by examining the response of a changing community to an issue laced with stigma, has much to teach us about oppression, resistance, and marginalization. It also offers valuable insight into how the politics of the African-American community—and other marginal groups—will evolve in the twenty-first century.
The civil rights of LGBTQ people have slowly yet steadily strengthened since the Stonewall Riots of June, 1969. Despite enormous opposition from some political segments and the catastrophic effects of the AIDS crisis, the last five decades have witnessed improvement in the conditions of the lives of LGBTQ individuals in the United States. As such, the realities and challenges faced by a young gay man coming of age and coming out in the 1960s is, in many profound ways, different from the experiences of a young gay man coming of age and coming out today. Out in Time explores the life experiences of three generations of gay men --the Stonewall, AIDS, and Queer generations-- arguing that while there are generational differences in the lived experiences of young gay men, each one confronts its own unique historical events, realities, and socio-political conditions, there are consistencies across time that define and unify the identity formation of gay men. Guided by the vast research literature on gay identity formation and coming out, the ideas and themes explored here are seen through the oral histories of a diverse set of fifteen gay men, five from each generation. Out in Time demonstrates how early life challenges define and shape the life courses of gay men, demarcating both the specific time-bound challenges encountered by each generation, and the universal challenges encountered by gay men coming of age across all generations and the conditions that define their lives.
For young gay men who came of age in the United States in the 1980s, the HIV/AIDS epidemic was a formative experience in fear, hardship, and loss. Those who were diagnosed before 1996 suffered an exceptionally high rate of mortality, and the survivors -- both the infected individuals and those close to them -- today constitute a "bravest generation" in American history. The AIDS Generation: Stories of Survival and Resilience examines the strategies for survival and coping employed by these HIV-positive gay men, who together constitute the first generation of long-term survivors of the disease. Through interviews conducted by the author, it narrates the stories of gay men who have survived since the early days of the epidemic; documents and delineates the strategies and behaviors enacted by men of this generation to survive it; and examines the extent to which these approaches to survival inform and are informed by the broad body of literature on resilience and health. The stories and strategies detailed here, all used to combat the profound physical, emotional, and social challenges faced by those in the crosshairs of the AIDS epidemic, provide a gateway for understanding how individuals cope with chronic and life-threatening diseases. Halkitis takes readers on a journey of first-hand data collection (the interviews themselves), the popular culture representations of these phenomena, and his own experiences as one of the men of the AIDS generation. This riveting account will be of interest to health practitioners and historians throughout the clinical and social sciences -- or to anyone with an interest in this important chapter in social history. Cover photo courtesy of Fire Island Pines Historical Preservation Society.
This book explores the normalization of HIV and AIDS, reflecting upon the intended and unintended consequences of the multifarious "AIDS industry." The Normalization of the HIV and AIDS Epidemic in South Africa deals with the manner in which the HIV and AIDS epidemic has become such a well-known disease with such wide-ranging ramifications. With its focus on the "AIDS industry," this book examines issues such as the framing of the HIV and AIDS epidemic in a manner that greatly fostered notions of stigmatization and moralization. This book looks at the complexities of dealing with the epidemic in contemporary South Africa, examining the difficulties of addressing the social aspects of a disease in the context of increased focus on technological quick-fix solutions. De Wet explores these issues thoroughly, looking at the social determinants of the spread of the disease as well as the configuration and the nature of the responses to it, and their increasing marginalization as factors to address in an era of increased biomedicalization and concomitant normalization. This book will intrigue scholars and students of public health, global health care, medical sociology, and African Studies.
Once at the corner of the study of politics, emotions have receded into the shadows, with no place in the rationalistic, structural and organisational models that dominate academic political analysis. These essays reverse the trend.
In this gripping memoir of the AIDS years (1981–1996), Sarah Schulman recalls how much of the rebellious queer culture, cheap rents, and a vibrant downtown arts movement vanished almost overnight to be replaced by gay conservative spokespeople and mainstream consumerism. Schulman takes us back to her Lower East Side and brings it to life, filling these pages with vivid memories of her avant-garde queer friends and dramatically recreating the early years of the AIDS crisis as experienced by a political insider. Interweaving personal reminiscence with cogent analysis, Schulman details her experience as a witness to the loss of a generation’s imagination and the consequences of that loss.