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The prognosis for individuals with Duchenne Muscular Dystrophy (DMD) is improving, with some men with DMD living into their 30s and 40s. More vital than ever, this book helps teachers and parents to support children and young people with DMD with their education and transition into adulthood. Leading experts on DMD explain Duchenne and its impact in easy-to-understand terms. Going beyond physical management, particular focus is put on learning and behavioural issues, including speech delay and difficulty learning to read, as well as common comorbid conditions, such as ADHD, autism and OCD. Raising aspirations, the book gives guidance on effective support in the classroom and advice on the transition to adulthood, employment and independent living.
Dan's an up-beat boy who loves to have a blast. And like many young boys, he was born with Duchenne muscular dystrophy. This is his story.
This book contains games for mixed groups including people with auditory or visual impairments, those in wheelchairs, and those with multiple disabilities. The games can also be used as a means of improving disability awareness among the non-disabled, and have been used successfully with groups of people of all abilities and ages.
Educating Children with Life-Limiting Conditions supports teachers who are working with children with life-limiting or life-threatening conditions in mainstream schools by providing them with the core knowledge and skills that underpin effective practice within a whole-school and cross-agency approach. Mainstream schools now include increasing numbers of children with life-limiting or life-threatening conditions, and this accessible book is written by a team comprised of both education and health professionals, helping to bridge the gap between different services. Recognising the complexity of individual cases, the authors communicate key principles relating to the importance of communication, multi-professional understanding and working and proactive planning for meeting the needs of any child with a life-limiting or life-threatening condition that can be applied to a range of situations. Reflective activities and practical resources are provided and are also available to download. This book will be of interest to teachers in mainstream schools, as well as teachers, SENCOs and senior leaders in all school settings, school nurses, children’s nurses and allied health professionals.
Muscular Dystrophy - Total Treatment Plan is an original treatise in which the MD patients, their care givers, researchers, teachers, doctors, nurses, and health planners will find reliable knowledge. This 'Do It'book is guaranteed to transform every reader. Right from etiology of the disease, to treatment by different systems of medicine, to counseling and rehabilitation, fascinating case histories and references, reassuring answers to disturbing questions, with appropriate warnings and useful notes, the book has everything in it. See the contents page for more information. Evidence based medicine has much to learn from Holistic Healing or Integration in Medicine to serve the patients.
Down-to-earth advice for helping students with disabilities succeed The School Counselor's Guide to Helping Students with Disabilities offers school counselors a practical guide for handling the complexities of working with children and youth who have disabilities. The book is organized to correspond with the myriad responsibilities and roles assumed by school counselors in elementary, middle and high school settings. The authors provide both seasoned and new school counselors with the insight and tools they need to successfully promote the academic, personal, social, and career success of students with disabilities. Presents a wealth of relevant disability-related knowledge and useful strategies Includes information on the most pertinent legislation pertaining to students with disabilities Offers the most effective counseling interventions for helping young children or adolescents experiencing social exclusion because of their disabilities Bonus section contains a wealth of disability-specific information with implications and practical applications for counselors This important book brings together experts in two disciplines, school counseling and special education/disabilities, in order to address the practicalities and possibilities of working with students with disabilities.
Parents of children with muscular dystrophy have many questions and, in his long years of practice, Dr. Irwin Siegel has heard most of them. If you've ever asked, "Do the arms also weaken in Duchenne muscular dystrophy?" or "What toys are appropriate for the child with DMD?" or "Is any specific physical therapy or occupational therapy useful in the middle stages of Duchenne dystrophy?" you'll find help in "Muscular Dystrophy in Children: A Guide for Families. Written in the calm, reassuring voice of a senior physician, the book reflects the wide-ranging experiences of the long-time MDA clinic co-director at Rush-Presbyterian-St. Luke's Medical Center in Chicago. Siegel's specialties are orthopedic surgery and rehabilitation, but his sincere interest in the well-being of his patients and their families and the quality of information they receive has led him to publish 12 books, including a volume of poetry. This latest volume combines information on some of the practical and technical matters of day-to-day life in families with muscular dystrophy - wheelchair seating, bracing and dietary concerns, for example - with solid advice on getting through it all. This book was written for parents, families, teachers, and friends of children with muscular dystrophy (MD), and for older children. It was written to guide the child and his caregivers through the often frightening labyrinth of medical care that one enters when given the diagnosis of MD. The book will help the reader understand the significance of the signs and symptoms of the disease, the treatment options available, its probable course or outcome and what may affect it, and the currently available choices in directing therapy. The book is construed to inform and educate with state-of-the-art information. Its goal is to address questions and concerns in the most forthright and honest manner possible and to clearly define the available medical options at every stage of the disease and offer guidance even when it may seem that little or nothing can be done. "
This book entitled, “Duchenne Muscular Dystrophy- A Guide”, is a comprehensive and easyguide to parents, other family members and care takers which presents the classification of Muscular Dystrophies. However Duchenne Muscular Dystrophy (DMD) alone is elaborated in detail, as DMD is the predominant Genetic Disorder which is widely observed in our society among various group of people in various geographical areas of the country and even world. This book presents a structured management methods for the care takers, while details the necessary information and guidelines to the parents of the DMD patients regarding, Lungs and Breath Care, Food and Digestive Care, Spinal Cord Care, Heart related Care, Medications and Steroid related Care etc. Symptoms and Stages of DMD are also presented. This book emphasizes the need for providing the comfortable areas for the DMD patient to be explored. A brief overview about the adaptability and movement issues of the patients are listed in a crispy way. This will be helpful to the teachers while the patients are at schools. Meanwhile this will be beneficial to the parents while they bring their wards to some public areas. Finally this guide accentuates the key points to make the society free from Muscular Dystrophy.
This essential guide clarifies the definitions of sensory impairments and physical disabilities, and examines medical conditions that may lead to the need for SEN provision, including epilepsy, Tourettes syndrome and Prader-Willi syndrome. Writing in an accessible style, the author looks at ways of dealing with a variety of conditions, always with practical classroom situations in mind. Each section: sets out the definitions of the condition explains the legal contexts looks at the range of provision suggests intervention and support strategies gives example case studies.