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"A guide for carers caring for a person who has a life limiting illness at home"--Provided by publisher.
"Family caregivers are often those that provide ongoing care and assistance to family members in need of emotional, psychological, spiritual and social support due to physical or mental health conditions. This guide gives tips and advice on dealing with all kind of home care situations when caring for a terminally ill relative."--Publisher's description.
This book address both the emotional and psychological issues associated with death and dying and the practical and medical realities typically dealt with at this time-unusual among titles in this subject area. The authors, a psychologist and medical doctor, are passionate advocates for quality end-of-life care. Author Feldman's background in positive psychology brings an emphasis on hope, inspiration, meaning, and human connection at the end of life to the book. As medical technology progresses and life expectancies edge upward, families are being faced with ever-more-complicated choices as loved ones approach their final hours. This book offers readers much-needed guidance and support for making these often difficult decisions.
“This book is a perfect blend of compassion and competence that addresses the core values of care, the interdisciplinary team, self-care of staff, and the needs of an aging society.” –Betty Ferrell, PhD, FAAN, FPCN, CHPN Professor and Director, Nursing Research, City of Hope Medical Center Principal Investigator, End-of-Life Nursing Education Consortium “A must-read for all hospice providers. It is a comprehensive overview of the core elements required to practice effectively, compliantly, safely, and compassionately. An indispensable addition to all hospice libraries.” – Kim Corral, MA Ed, BSN, RN, COS-C Director of Corporate Compliance, Quality and Education Bridge Home Health and Hospice “I have utilized Tina Marrelli’s home health and hospice handbooks to support training new clinical staff and students for decades and consider these resources to be the gold standard.” – Kimberly Skehan, MSN, RN, HCS-D, COS-C Vice President of Accreditation Community Health Accreditation Partner Hospice & Palliative Care Handbook, Fourth Edition, offers updated coverage of all aspects of hospice and palliative care for the entire healthcare team who provide important care while meeting difficult multilevel regulations. This edition includes examples and strategies covering key topics related to standards, guidelines, goals, and effective care planning. TABLE OF CONTENTS Prologue: Hospice and Covid-19: A Pandemic Part 1: Hospice Care: An Overview of Quality and Compassionate Care Part 2: Documentation: An Important Driver for Care and Coverage Part 3: Planning, Managing, and Coordinating Hospice Care Part 4: Hospice Diagnoses and Guidelines for Care Alzheimer’s Disease and Other Dementias Care Bedbound, Coma, and Skin Care Cancer Care Cardiac and Cerebrovascular Accident (Stroke) Care Frailty and Geriatric Care Liver Disease Care Neurological Disease Care Pediatric Care: A Very Special Patient Population Pulmonary Care Renal Disease Care Skin and Wound Care Resources ABOUT THE AUTHORS TINA. M. MARRELLI, MSN, MA, RN, FAAN, is the author of over 10 award-winning books. She is an international consultant specializing in home care and hospice and is the President of Marrelli & Associates, Inc., a publishing and consulting firm working in healthcare and technology for over 25 years. JENNIFER KENNEDY, EdD, BSN, RN, CHC, is the Vice President for Quality, Standards, and Compliance at Community Health Accreditation Partner (CHAP) and is a nationally recognized hospice expert. She has more than 35 years of experience as a leader and nurse in diverse healthcare settings and has worked in hospice and palliative care for more than 25 years.
For more than two decades, hospice nurse Maggie Callanan has tended to the terminally ill and been a cornerstone of support for their loved ones. Now the coauthor of the classic bestseller Final Gifts passes along the lessons she has learned from the experts—her patients. Here is the guide we all need to understanding the special needs of the dying and those who care for them. In her work with thousands of families, Maggie Callanan has witnessed the tears, the love—and the confusion and conflict—this final passage can evoke. Now, with honesty, compassion, and even humor, she empowers patients and their families to write the last chapter of their lives with less fear, less pain, and more control—so that all involved can focus their energies on creating the best possible ending. From supporting a husband or wife faced with the loss of a spouse, to helping a dying mother prepare her children to carry on without her, Callanan’s poignant stories illustrate new ways to meet the physical, emotional, and spiritual challenges of this difficult and precious time. She brings welcome clarity to medical and ethical concerns, explaining what to expect at every stage. Each brief chapter also conveys a home truth about making crucial treatment decisions, supporting the patient’s dignity and individuality, and lightening the burden on caregivers. Final Journeys is designed to be your companion, resource, and advocate. From diagnosis through the final hours, it will help you keep the lines of communication open, get the help you need, and create the peaceful end we all hope for.
Saying the final goodbye is never easy. Are you a caregiver for someone who needs home hospice, unsure of what your job is for your loved one at the end of life? The Practical Caregiver's Guide to Home Hospice Care will help you understand not only how to take care of your loved one, but also yourself. Make the care you provide fit the real needs of the person needing help.
The Caregiver's Handbook is a definitive guide to caring for a sick or disabled person of any age. Whether it be adults looking after parents, partners looking after each other, parents looking after children, or young caregivers looking after their parents, the Caregiver's Handbook addresses both the needs of the caregiver, and person who needs care. The Caregiver's Handbook offers emotional support and practical advice on a wide range of topics, enabling individuals to provide the best care possible-whatever the requirements. Everyday concerns, including healthy eating, personal care, and rest and sleep, are addressed alongside topics such as safe movement and handling, choosing the right stability aids, or even how to maneuver a wheelchair for the first time. Features also include a look at how either at the needs of the caregiver, or how the requirement of specific conditions-such as dementia or physical impairment-can affect the way a task can be approached. The Caregiver's Handbook is a comprehensive, compassionate, and indispensable resource that all caregivers will want to have on hand at all times - it is essential reading for anyone caring for someone at home.
The most thorough text available on providing patients and families with quality end-of-life care "The study/learning questions at the end of each chapter make this book an excellent resource for both faculty who wish to test knowledge, and individual learners who wish to assess their own learning....The book is well written and easy to read. 3 Stars."--Doody's Review Service End of Life Care: A Practical Guide offers solution-oriented coverage of the real-world issues and challenges that arise daily for clinicians caring for those with life-limiting illnesses and conditions. End of Life Care: A Practical Guide includes specific clinical guidance for pain management and other common end of life symptoms. The second edition has been made even more essential with the addition of chapter-ending Q&A for self assessment and board review, new coverage of multicultural medicine, an increased number of algorithms to assist decision making on complicated clinical, legal, and ethical issues. Six sections walk you through the complexities of caring for patients who are nearing the end of life: Preparing Patients for End of Life Management of Symptoms Diagnostic and Invasive Interventions Ethical Dilemmas Special Populations Diversity No other text better assists physicians and other clinicians in providing patients near the end of life with support, guidance, and hope in the face of “hopelessness” than End of Life Care: A Practical Guide.