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A guide to help family and friends navigate the emotional and practical challenges they face when someone they love is living in community care. Life changes dramatically for the entire family when the decision is made to move a person who has dementia from home to community care. Rachael Wonderlin, a gerontologist, dementia care expert, and popular dementia care blogger, helps caregivers cope with the difficult behaviors, emotions, and anxieties that both they and their loved one may experience. Writing from her own practice and drawing on the latest research in gerontology and dementia, Wonderlin explains the different kinds of dementia, details the wide range of care communities available for people who have dementia, and speaks empathetically to the worry and guilt many families feel. "Do not let anyone make you feel like you have taken the 'easy way out' by choosing a dementia care community," she writes. "You are still going to deal with a lot of challenging behaviors, concerns, and questions regarding your loved one's care." When Someone You Know Is Living in a Dementia Care Community is an accessible guide offering answers to such questions as: How do I choose a place for my loved one to live? What can I find out by visiting a candidate memory-care community twice? What do I do if my loved one asks about going home? How can I improve the quality of my visits? What is the best way to handle conflict between residents, or between the resident and staff? How can I cope with my loved one's sundowning? What do I do if my loved one starts a romantic relationship with another resident? An indispensable book for family members and friends of people with dementia, When Someone You Know is Living in a Dementia Care Community touches the heart while explaining how to make a difficult situation better.
"When is it time to move a person living with dementia into a senior living community? How do you avoid an argument with someone who no longer knows what year it is? What do you do if the person you're caring for has trouble recognizing you? How can you lessen the guilt and anxiety that come with dementia caregiving? All of these questions-and more-are answered in this helpful guide through the difficulties of dementia care. Care partners to those living with dementia will find this book a helpful guide into an unfamiliar and challenging world, and professionals in the industry will come away with dementia knowledge they have not gotten anywhere else"--
Now in paperback, the cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to care. Despite being a physician and a bioethicist, Tia Powell wasn't prepared to address the challenges she faced when her grandmother, and then her mother, were diagnosed with dementia--not to mention confronting the hard truth that her own odds aren't great. In the U.S., 10,000 baby boomers turn 65 every day; by the time a person reaches 85, their chances of having dementia approach 50 percent. And the truth is, there is no cure, and none coming soon, despite the perpetual promises by pharmaceutical companies that they are just one more expensive study away from a pill. Dr. Powell's goal is to move the conversation away from an exclusive focus on cure to a genuine appreciation of care--what we can do for those who have dementia, and how to keep life meaningful and even joyful. Reimagining Dementia is a moving combination of medicine and memoir, peeling back the untold history of dementia, from the story of Solomon Fuller, a black doctor whose research at the turn of the twentieth century anticipated important aspects of what we know about dementia today, to what has been gained and lost with the recent bonanza of funding for Alzheimer's at the expense of other forms of the disease. In demystifying dementia, Dr. Powell helps us understand it with clearer eyes, from the point of view of both physician and caregiver. Ultimately, she wants us all to know that dementia is not only about loss--it's also about the preservation of dignity and hope.
An activity book to help caregivers improve the quality of life of people who have dementia. Whether they are cared for at home or in an assisted living community, adults living with dementia should be offered a life that is interesting and fun. But what can you do to enhance the everyday experience of a loved one who is losing interest in or is unable to participate in their old hobbies and pursuits? In Creative Engagement, dementia activity expert Rachael Wonderlin and developmental psychology professor Geri M. Lotze provide dozens of creative, hands-on ways to engage with people living with cognitive loss. Teaching caregivers how to find dementia-friendly daily activities and introduce them into a person's life, this comprehensive, empathetic guide is aimed at both family members and professionals. Twelve chapters full of useful, tangible activities touch on a range of topics, including exercise, technology, cooking and baking, memory games, and arts and crafts. Focusing on both group and individual dynamics, mundane activities and specially tailored pursuits, Wonderlin and Lotze offer proven strategies for interacting with people living with dementia. The authors include detailed tips for building a dementia-friendly environment, creating a daily calendar, and scheduling community entertainment. They also suggest special activities geared toward people in hospice care and give targeted advice for dealing with caregiver stress. Drawing on Wonderlin's own practice while incorporating the latest scientific research on dementia and eldercare, Creative Engagement is unique in its dementia-positive approach. Anyone who cares for someone living with dementia will gain valuable knowledge from this compassionate book.
As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.
A collection of informative and inspirational thoughts of many of the nation’s leaders in research, medicine, education, senior care and advocacy around the subject of Alzheimer’s disease. The Future of Alzheimer's features candid views from experts on how they respond today to someone on the difficult journey of Alzheimer’s and what they believe is the future hope for a cure. More than 20 experts in the field of Alzheimer's research or caretakers are asked two key questions: What advice would you give to the loved ones of someone who is newly diagnosed? Do you think there will be a cure, and if so, when? Their answers help provide context and hope for patients, caretakers and loved ones looking for answers by providing helpful insights on the disease and what's to come. Alzheimer's prevalence in the US makes it the 6th leading cause of death, killing more than half a million people, mainly seniors, every year and experts believe this number will only grow. The Future of Alzheimer's seeks to make this and other forms of dementia less of the devastating diagnosis it is now for all of those people.
First published as: Dementia: one-stop guide.
A MacArthur Genius Grant recipient pioneers a radical change in how we interact with older loved ones, especially those experiencing dementia, as she introduces a proven method that uses the creative arts to bring light and joy to the lives of elders. In Creative Care, Anne Basting lays the groundwork for a widespread transformation in our approach to elder care and uses compelling, touching stories to inspire and guide us all—family, friends, and health professionals—in how to connect and interact with those living with dementia. A MacArthur Genius Grant recipient, Basting tells the story of how she pioneered a radical change in how we interact with our older loved ones. Now used around the world, this proven method has brought light and joy to the lives of elders—and those who care for them. Here, for the first time, everyone can learn these methods. Early in her career, Basting noticed a problem: today’s elderly—especially those experiencing dementia and Alzheimer’s— are often isolated in nursing homes or segregated in elder-care settings, making the final years of life feel lonely and devoid of meaning. To alleviate their sense of aloneness, Basting developed a radical approach that combines methods from the world of theater and improvisation with evidence-based therapies that connect people using their own creativity and imagination. Rooted in twenty-five years of research, these new techniques draw on core creative exercises—such as “Yes, and . . .” and “Beautiful Questions.” This approach fosters storytelling and active listening, allowing elders to freely share ideas and stories without worrying about getting the details “correct.” Basting’s research has shown that these practices stimulate the brain and awaken the imagination to add wonder and awe to patients’ daily lives—and provide them a means of connection, both with the world and with those caring for them. Creative Care promises to bring light and hope to a community that needs it most.
Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
The way in which dementia is understood and treated is changing, with a growing focus on the individual's experience and person-centred approaches to care. Introducing a new model of dementia care that reflects on the role of a person with dementia within a community and their relationships, this guide for professional and family caregivers demonstrates how to facilitate positive relationships for peaceful living. By understanding the cognitive and physical challenges that older adults with dementia face, caregivers can practice empathic care that affords people with dementia increased freedom of expression and independence. Included here are techniques for conflict resolution that enable people with dementia to be active and self-initiating in times of distress and disruption. Looking at the basics of respect, empathy, and mindfulness, this book also provides hands-on training for employing these virtues in practice with a number of exercises to help achieve the goal of peaceful independent living.