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For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."
What happens to consciousness during the act of dying? The most compelling answers come from people who almost die and later recall events that occurred while lifesaving resuscitation, emergency care, or surgery was performed. These events are now called near-death experiences (NDEs). As medical and surgical skills improve, innovative procedures can bring back patients who have traveled farther on the path to death than at any other time in history. Physicians and healthcare professionals must learn how to appropriately treat patients who report an NDE. It is estimated that more than 10 million people in the United States have experienced an NDE. Hagan and the contributors to this volume engage in evidence-based research on near-death experiences and include physicians who themselves have undergone a near-death experience. This book establishes a new paradigm for NDEs.
This book presents a variety of experience-based perspectives on working in palliative care. Emphasising the use of self and the importance of reflective practice in professional work, the book will be of relevance to professionals in medical and social care who want to gain a deeper understanding of their work and of the motivation underlying it.
Progress in medical science has increased our understanding of what happens when the brain begins to fail. Psychology delves ever more deeply into the nature of the self. In Dying to Live, Blackmore, a leading expert in near-death experiences, explores what psychology, biology, and medicine have to say about this extraordinary aspect of death and dying.. . . the best resource for materialist arguments that currently exists. . . . Blackmore's book is the most up-to-date catalogue of misgivings about the dualist concept of self and the religionist's desire for the afterlife vis-a-vis experiences near-death. . . . a fine book. -Journal of Scientific Exploration. . . one of the most intelligent and comprehensive examinations of the near-death experience to date. For thoroughness of treatment and tidiness of theory, the book is quite without equal. -Journal of the American Society for Psychical Research[This book is] brilliant though controversial . . . -ChoiceHer book is a model of understanding and . . . moving in its course through a sensitive subject. -New ScientistWell documented and well researched . . . The author's impartial treatment of diverse beliefs on the subject helps readers to see how scientific and spiritual points of view can coexist. There's much to think about here. -School Library Journal
Case studies of near-death experiences in children reveal the patients' ability to communicate with deceased relatives and friends, as well as their experiences while dead
"For those who have been close to death, even survived 'clinical death', a remarkable experience occurs which has become known as the Near-Death Experience. Margot Grey describes how people close to death undergo a sense of euphoria and floating out of one's body, entering a dark tunnel and emerging to encounter a brilliant light and experiencing a panoramic life review. The Near-Death Experience often has a profound effect on the person who experiences it and can lead to spiritual awakening and psychic development. The fear of death tends to diminish and in many cases a total personality transformation occurs."--back cover.
From Ira Byock, prominent palliative care physician and expert in end of life decisions, a lesson in Dying Well. Nobody should have to die in pain. Nobody should have to die alone. This is Ira Byock's dream, and he is dedicating his life to making it come true. Dying Well brings us to the homes and bedsides of families with whom Dr. Byock has worked, telling stories of love and reconciliation in the face of tragedy, pain, medical drama, and conflict. Through the true stories of patients, he shows us that a lot of important emotional work can be accomplished in the final months, weeks, and even days of life. It is a companion for families, showing them how to deal with doctors, how to talk to loved ones—and how to make the end of life as meaningful and enriching as the beginning. Ira Byock is also the author of The Best Care Possible: A Physician's Quest to Transform Care Through the End of Life.
This book is about how, when, and why our dead visit us. Allan Kellehear--a medical sociologist and expert on death, dying, and palliative care--has gathered data and conducted studies on deathbed visions across cultures.