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There are many people who experience invisible, and often undiagnosed, disabilities and conditions which affect their everyday lives. On the surface, it might not be immediately obvious that someone perhaps has a different way of thinking, experiencing or processing the world around them. Having an invisible disability usually means that it is difficult to provide concrete, visible evidence for it and it can be perceived as ‘not real’ by other people. Indeed, some individuals can often be made to feel they are not good enough, and may end up masking or hiding their difficulties in order to just get by in day-to-day life without being judged. In this collection, we introduce and educate Young Minds about a range of “invisible” conditions, for example mental health conditions like Post-Traumatic Stress Disorder, autism, chronic pain conditions, intellectual disabilities, stuttering, and many others. We also highlight some of the wider challenges faced within society, such as the lack of understanding from other people, and discuss how Young Minds can potentially support their friends and family who might be experiencing some of these disabilities or conditions. This collection covers what Young Minds could learn about what it means to have an invisible condition and how it can impact on relationships, education, thinking, communication, emotions, behaviours, and generally navigating everyday life. Further, some people might be unwilling to seek help and share their concerns with others, because they are worried that others don’t really understand what life is like for them. We hope that this collection helps those without an invisible condition to think carefully about how they can make the world a more supportive and inclusive place for everyone.
For any woman who has experienced illness, chronic pain, or endometriosis comes an inspiring memoir advocating for recognition of women's health issues In the fall of 2010, Abby Norman's strong dancer's body dropped forty pounds and gray hairs began to sprout from her temples. She was repeatedly hospitalized in excruciating pain, but the doctors insisted it was a urinary tract infection and sent her home with antibiotics. Unable to get out of bed, much less attend class, Norman dropped out of college and embarked on what would become a years-long journey to discover what was wrong with her. It wasn't until she took matters into her own hands -- securing a job in a hospital and educating herself over lunchtime reading in the medical library -- that she found an accurate diagnosis of endometriosis. In Ask Me About My Uterus, Norman describes what it was like to have her pain dismissed, to be told it was all in her head, only to be taken seriously when she was accompanied by a boyfriend who confirmed that her sexual performance was, indeed, compromised. Putting her own trials into a broader historical, sociocultural, and political context, Norman shows that women's bodies have long been the battleground of a never-ending war for power, control, medical knowledge, and truth. It's time to refute the belief that being a woman is a preexisting condition.
A NEW YORK TIMES BESTSELLER FINALIST FOR THE 2022 NATIONAL BOOK AWARD FOR NONFICTION Named one of the BEST BOOKS OF 2022 by NPR, The New Yorker, Time, and Vogue “Remarkable.” –Andrew Solomon, The New York Times Book Review "At once a rigorous work of scholarship and a radical act of empathy.”—Esquire "A ray of light into those isolated cocoons of darkness that, at one time or another, may afflict us all.” —The Wall Street Journal "Essential."—The Boston Globe A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and autoimmune diseases A silent epidemic of chronic illnesses afflicts tens of millions of Americans: these are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.
Invisible chronic illness (ICI) can manifest itself in chronic fatigue, chronic pain, and many other miseries that are often perceived and dismissed negatively, even by doctors. This book offers "an invaluable source of help and comfort" (Katharina Dalton, M.D.) to those who suffer from ICI. "Today" feature.
Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest! But You LOOK Good gets to the heart of why our friends and family have difficulty with understanding ongoing illness and pain. It serves as a tool to help explain to loved ones how extreme fatigue, pain, dizziness, cognitive impairments and other symptoms can be limiting, even though the person may not look sick or in pain. Moreover, it gives them simple, pragmatic ways to truly be an encouragement, what to say, what not to say and how to help. Often loved ones are enlightened as to why their well-meaning advice is not always well-received. It is cherished by both those living with illness or injury, as well as those who love them!
“An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care. Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.
Millions of people are discovering they are victims of conditions such as chronic fatigue, fibromyalgia, intestinal permeability (a.k.a. leaky gut syndrome), etc.; although these are all relatively new terms to most of us, they are real and debilitating for those who suffer from them. Invisible Illnesses, 2nd Edition covers all these conditions, as well as multiple chemical sensitivities, chemically induced immune system disorders and prescription drug withdrawal syndrome among others. It introduces natural therapies and lifestyle modifications for overcoming these disorders. They emphasize diet, supplementation, non-toxic therapies, environmental modifications, and therapies that encourage the healing process-reserving drugs and surgery as a last resort. With this book, and the guidance of a naturopath or integrative medical doctor, readers can learn what is needed to achieve optimal health, naturally.
Examines the records on insanity in England, Ireland, Canada, and the United States over a 250-year period, concluding, through quantitative and qualitative evidence, that insanity is an unrecognized, modern-day plague.
Chronicles one person's true life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illness; Getting Sick, Being Sick, Grief and Acceptance and Living Well. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones.
As a physiological or biological matter, breath is mostly considered to be mechanical and thoughtless. By expanding on the insights of many religions and therapeutic practices, which emphasize the cultivation of breath, the contributors argue that breath should be understood as fundamentally and comprehensively intertwined with human life and experience. Various dimensions of the respiratory world are referred to as "atmospheres" that encircle and connect human existence, coexistence, and the world. Drawing from a number of traditions of breathing, including from Indian and East Asian religion and philosophy, the book considers breath in relation to ontological, hermeneutical, phenomenological, ethical, and aesthetic concerns in philosophy. The wide-ranging topics include poetry, theater, environmental issues and health, feminism, and media studies.