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Parkinson's Disease is the fastest growing neurological disorder in the world. Most people with the disease are diagnosed in their fifties or later, however, it is not just a disease of the elderly. Up to 10% of those with the condition develop the disease in their forties or younger at which point, it is termed "Young Onset Parkinson's Disease" or YOPD. When I was diagnosed with YOPD at the age of 43, I didn't know where to turn for information. I listened to podcasts from specialists, read books, attended support groups, joined Facebook pages, talked with my physician, but what I really wanted was to hear from people my age that were contending with the disease. So I determined that that the best way to learn was to talk to people and understand what its like to live with YOPD.This book is a collection of 10 interviews with individuals that have been living with the disease for as little as 1 to 23 years. Some are negotiating powerful careers, taking leadership roles in their professional organizations, competing in endurance events, starting foundations, volunteering in their communities, playing team sports, writing books, raising money for research and raising kids. However what characterizes them most is what they are not doing, which is sitting around waiting for the disease to consume them. Written primarily for the newly diagnosed, this book is also for the care givers, family members, friends and associates who, like me, are approaching this disease for the first time or have questions about what to expect. As you read this book my hope is that you'll develop a better understanding of what disease progression looks like and how you can support the person with Parkinson's in your life. Welcome to the YOPD Club!
A compilation of insights, practical tools and inspirational suggestions for improving mind-body connection and empowering healing.
Being Well with Chronic Illness is a self-help guide for those with chronic illnesses looking to find a better path to wellness. More than 40% of the US population are affected by chronic diseases. Being Well with Chronic Illness is a guide book for every single one of those people suffering with chronic illness looking to live full lives characterized by joy, resilience, and wellness. Receiving a diagnosis of terminal illness is a turning point in a person’s life where everything they’ve ever known is suddenly turned on its head. Negative emotions like anxiety, depression, anger and uncertainty are ever-present, while the way forward back to health and wellness seems full of twists and turns. This is because the path to wellness—and away from wellness—is a spiral. Being Well with Chronic Illness introduces the simple, but powerful concept of the Wellness Spiral, an actionable pathway anyone can follow to turn bad life events to opportunities for growth and wellness. The intricacies of the Wellness Spiral lay out a road map to how we respond to life’s harshest challenges—and how we can rise above them. You can reclaim wellness through intention and self-discovery. Being Well with Chronic Illness charts the course for a journey that supports finding hope and wholeness after an unexpected diagnosis. This book is for anyone who is at a crossroads and wants to find ways to build resilience.
In this "must-read" guide (Lonnie Ali), four leading doctors and advocates offer a bold action plan to prevent, care for, and treat Parkinson's disease-one of the great health challenges of our time. Brain diseases are now the world's leading source of disability. The fastest growing of these is Parkinson's: the number of impacted patients has doubled to more than six million over the last twenty-five years and is projected to double again by 2040. Harmful pesticides that increase the risk of Parkinson's continue to proliferate, many people remain undiagnosed and untreated, research funding stagnates, and the most effective treatment is now a half century old. In Ending Parkinson's Disease, four top experts provide a plan to help prevent Parkinson's, improve care and treatment, and end the silence associated with this devastating disease.
Personal in approach, beautiful in design, global in scope, The Peripatetic Pursuit of Parkinson Disease envisions a better world for people with Parkinson disease (PD). Developed by the Parkinsons Creative Collective (all of whom have PD), it is an anthology of the experiences of over 120 experts at living with PD -- the patients themselves. Join them on a journey from diagnosis, to informed patient, to empowered advocate. Filled with information and inspiration, it's a color-illustrated encyclopedia of PD from the patients' point of view. With nearly one quarter of the voices from around the world, it encourages discussion while it speaks to those newly diagnosed as well as to those who have lived with PD for years. Even medical professionals reading the book have found new perspectives on what it is like to live with PD. It delivers much more than the basics about this chronic, progressive, neurological disease. The authors share their stories and strategies on how to improve health, quality of life, and wellness in spite of PD. They also present opinions on how to speed the development of new treatments and how to face other life challenges that come with PD. --For those with PD, it's a support group between two covers; and for everyone else, it's a window into the world of PD.
String garlic by the window and hang a cross around your neck! The most powerful vampire of all time returns in our Stepping Stone Classic adaption of the original tale by Bran Stoker. Follow Johnathan Harker, Mina Harker, and Dr. Abraham van Helsing as they discover the true nature of evil. Their battle to destroy Count Dracula takes them from the crags of his castle to the streets of London... and back again.
The fundamental guide to the most effective treatments for Parkinson's Disease, from a Mayo Clinic doctor with thirty years of clinical and research experience. In this second edition follow-up to the extremely successful first edition, Dr. Ahlskog draws on thirty years of clinical experience to present the definitive guide to dealing with all aspects of Parkinson's Disease, from treatment options and side effects to the impact of the disease on caregivers and family. Dr. Ahlskog's goal is to educate patients so that they can better team up with their doctors to do battle with the disease, streamlining the decision-making process and enhancing their treatment. To do this, Dr. Ahlskog offers a gold mine of information, distilled from his years of experience treating people with Parkinson's at the Mayo Clinic. In addition to providing a comprehensive account of Parkinson's medications, this book also examines additional aspects of treatment, such as the role of nutrition, exercise, and physical therapy. Although many commendable texts have been written on the subject of Parkinson's Disease, their discussions of treatment have not been in depth. Dr. Ahlskog sifts through aspects of the disease in order to give the reader a comprehensive sense of Parkinson's and the best available treatment options. With a broader understanding of the disease and the available options, patients are able to make more informed choices, and doctors are able to provide more tailored care. This book delivers hopeful, helpful, and extensive information to all parties concerned: patients, caregivers, and doctors. The ultimate guide to symptoms and treatment, this thoroughly updated second edition is the first place patients should turn for reliable, easy-to-grasp information on Parkinson's Disease.
Why has 'the discursive turn' been sidelined in the development of a social theory of disability, and what has been the result of this? How might a social theory of disability which fully incorporates the multidimensional and multifunctional role of language be described? What would such a theory contribute to a more inclusive understanding of 'discourse' and 'culture'? The idea that disability is socially created has, in recent years, been increasingly legitimated within social, cultural and policy frameworks and structures which view disability as a form of social oppression. However, the materialist emphasis of these frameworks and structures has sidelined the growing recognition of the central role of language in social phenomena which has accompanied the 'linguistic turn' in social theory. As a result, little attention has been paid within Disability Studies to analysing the role of language in struggle and transformation in power relations and the engineering of social and cultural change. Drawing upon personal narratives, rhetoric, material discourse, discourse analysis, cultural representation, ethnography and contextual studies, international contributors seek to emphasize the multi-dimensional and multi-functional nature of disability language in an attempt to further inform our understanding of disability and to locate disability more firmly within contemporary mainstream social and cultural theory.
An optimistic guide from an expert author and the world authority on Parkinson's disease. Worldwide, there are more than 10 million people living with Parkinson's disease (PD). In the US alone, approximately one million Americans live with PD and approximately 60,000 more are diagnosed each year. Internationally renowned as both a neurologist and a leading researcher, Dr. Okun has been referred to as the voice of these patients and a world authority on Parkinson's disease. His positive and optimistic approach has helped countless people manage their symptoms and achieve happiness despite them. This approach, detailed in his new book, Living with Parkinson's Disease, is a critical resource for Parkinson's disease patients and their families. Presented in a friendly and easy-to-understand way, this book addresses PD-related issues and symptoms along with emerging therapies. In each chapter, Dr. Okun offers patients the necessary tools to manage their disease and to ultimately find joy and fulfilment in their lives.
"After reading this book and following Howard's recipe for some time now, I can only say this book is worth each and every word. It is highly valuable and, by the way, I feel much better now and my symptoms have almost disappear so far. I recommend to anyone who is seeking some alternative path to his treatment on Parkinson's." - Amazon Kunde, Amazon Verified Purchaser. "Howard's Recipe For Recovery is a breath of fresh air; If you do the recipe you will be on the road to recovery, the same road the cured walked before us, six of them so far in the past seven years. How full of hope is that?! The first sign that things were turning around for me was that my sense of smell came back after twenty years. Now where before there was despair I'm so thankful to have hope and the means to make it happen...now there are tears of joy! It's a great book...Don't miss it! Hope fulfilled is priceless and it's in your hand. Buy the book!!!!" - Thomas J., Amazon Verified Purchaser. "This book is the fascinating story of his recovery, and the recovery of others over the years afterwards, using his Recipe...Although there are a few individual, poorly substantiated claims of curing Parkinson's, this is the only one I know of that has cured multiple identified individuals of this "incurable" disease. We owe Howard a great deal of gratitude for his generosity in sharing his Recipe with us here and on his extensive website. His Recipe is likely to be the best cure available over the next decade." - prestonpdx, Amazon Verified Purchaser. Howard Shifke fully recovered from Parkinson's Disease. This memoir presents Howard's story of getting Parkinson's and provides a detailed account of how he won the fight against it. The memoir tells the story of what it was like for Howard to live day-to-day with Parkinson's, getting through the daily challenges and misgivings as well as how he looked toward the future with hope. Howard suffered with internal tremors; extremely poor balance; Bradykinesia (walking -- hunched forward, shuffled feet, arms did not swing); rigidity (arms, legs and upper back were tight and extremely painful); constipation; inability to stand up straight, to get out of a chair without using arms, to go up and down stairs without holding railing; difficulty getting a utensil to his mouth when trying to eat; falling asleep in middle of the day; frozen face; inability to write or to type with two hands; extreme fatigue. In the fall of 2009, Howard Shifke was diagnosed with Parkinson's Disease. His mother had Parkinson's for twenty-four years before dying in 2007, just two years prior to Howard diagnosis of Parkinson's. Having watched her physically deteriorate from the disease and mentally deteriorate from the medications was difficult and frightening.Howard did not want to end up the way his mother had ended up with the disease. Fortunately, in 1999, Howard had started studying alternative healing and Traditional Chinese Medicine. In the ten years leading up to his diagnosis, he had learned the body has the ability to heal itself. As a result, Howard decided he would endeavor to recover from Parkinson's, and he developed an alternative treatment methodology called his Parkinson's Recipe for Recovery(R). Nine months later, he won the fight against Parkinson's with his full recovery. In Howard's two neurologist visits subsequent to his full recovery, his neurologist put him through all of the tests used for the original diagnosis. Both times, his neurologist documented in Howard's medical records that there were no signs or symptoms of Parkinson's Disease.Howard has been symptom free fully recovered from Parkinson's since June 12, 2010.