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"My primary concern is with the ethics of representing vulnerable subjects—persons who are liable to exposure by someone with whom they are involved in an intimate or trust-based relationship, unable to represent themselves in writing, or unable to offer meaningful consent to their representation by someone else.... Of primary importance is intimate life writing—that done within families or couples, close relationships, or quasi-professional relationships that involve trust—rather than conventional biography, which can be written by a stranger. The closer the relationship between writer and subject, the greater the vulnerability or dependency of the subject, the higher the ethical stakes, and the more urgent the need for ethical scrutiny."—from the Preface Vulnerable Subjects explores a range of life-writing scenarios-from the "celebrity" to the "ethnographic"—and a number of life-writing genres from parental memoir to literary case studies by Oliver Sacks. G. Thomas Couser addresses complex contemporary issues; he investigates the role of disability in narratives of euthanasia and explores the implications of the Human Genome Project for life-writing practices in any age when many regard DNA as a code that "scripts" lives and shapes identity. Throughout, his book is concerned with the ethical implications of the political and economic, as well as the mimetic, aspects of life writing.
An in-depth look at disparities in health and health care, fully updated for 2021 Vulnerable Populations in the United States, 3rd Edition provides a general framework for studying vulnerable populations and summarizes major health and health care disparities by race/ethnicity, socioeconomic status, and health insurance coverage. This updated contains the latest statistics and figures, incorporates new information related to Healthy People 2020, analyzes the latest data and trends in health and health care disparities, and provides a detailed synthesis of recent and increasingly expansive programs and initiatives to remedy these disparities. In addition, the Third Edition offers new coverage of health care reform, the "deaths of despair" (suicide, opioids, etc.), and the global primary care initiative. Based on the authors' teaching and research at the Johns Hopkins Bloomberg School of Public Health and the Keck School of Medicine of the University of Southern California, this landmark text is an important resource for students, researchers, practitioners, and policymakers for learning about vulnerable populations. The book's Web site includes instructor's materials that may be downloaded. Gain a general understanding of health and health care disparities related to race/ethnicity, socioeconomic status, and health insurance coverage Access online resources including editable PowerPoint slides, video, and more Delve into the programs and initiatives designed to remedy inequalities in health and health care, including Healthy People 2020 updates Enjoy new coverage of health care reform, the "deaths of despair" (suicide, opioids, etc.), and the global primary care initiative End of chapter revision questions and other pedagogical features make this book a valuable learning tool for anyone studying at the advanced undergraduate or graduate levels. Additionally, it will prove useful in the field for medical professionals, social and community workers, and health educators in the public sphere.
Role in forming balanced assessments.

The Belmont Report

United States. National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research

Published: 1978

Total Pages: 614


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Culturally safe healthcare is rapidly challenging previous notions of cultural competency or cultural sensitivity in healthcare provision. The increasing number of vulnerable populations means healthcare must be given by a healthcare provider who has developed a social consciousness in relation to his or her own socio-cultural positioning versus that of the patient. A culturally safe practitioner has engaged in an active examination of the power differences existing in this patient-provider relationship. In this book, Lucy Mkandawire-Valhmu critically analyzes the complex issues affecting the health of vulnerable populations. Written from a critical theoretical perspective she seeks to enhance the ability of the healthcare student to develop a social consciousness about the realities faced by many populations living on the margins of society, and thereafter make an active and conscious decision to engage in culturally safe healthcare and contribute to the elimination of health disparities. Through the application of postcolonial feminist theory this book conceptualizes health as being historically situated in social relations of power and emphasizes health interventions that are potentially empowering, and enhance emancipatory change. Through discussions of health provision for ethnic minorities, immigrant populations, and refugees, the book seeks to provide pragmatic guidance for culturally safe care for a variety of marginalized populations and invites students and professionals to think deeply about the implications of power, culture and health.
Protecting the rights and welfare of those who volunteer to participate in research is a fundamental tenet of ethical research. A great deal of progress has been made in recent decades in changing the culture of research to incorporate more fully this ethical responsibility into protocol design and implementation. In the 1960s and 1970s, a series of scandals concerning social science research and medical research conducted with the sick and the illiterate underlined the need to systematically and rigorously protect individuals in research (Beecher 1966; Faden and Beauchamp 1986; Jones 1981; Katz 1972; Tuskegee Syphilis Study Ad Hoc Advisory Panel 1973). However, the resulting system of protections that evolved out of these rising concerns-although an improvement over past practices-is no longer sufficient. It is a patchwork arrangement associated with the receipt of federal research funding or the regulatory review and approval of new drugs and devices. In addition, it depends on the voluntary cooperation of investigators, research institutions, and professional societies across a wide array of research disciplines. Increasingly, the current system is being viewed as uneven in its ability to simultaneously protect the rights and welfare of research participants and promote ethically responsible research.
This book develops a concept of vulnerability in International Relations that allows for a profound rethinking of a core concept of international politics: means-ends rationality. It explores traditions that proffer a more complex and relational account of vulnerability.
The contributors to this volume examine the role of mutual aid groups and social workers in helping members of oppressed, vulnerable, and resilient populations regain control over their lives. The chapters reveal the ways in which mutual aid processes help individuals overcome social and emotional trauma in contemporary society by reducing isolation, universalizing individual problems, and mitigating stigma. Using the life cycle as a framework the editors establish a theoretical model for practice and demonstrate how social workers as group leaders can foster the healing and empowering process of mutual aid. The contributors also consider the fundamentals of the mutual aid process, the institutional benefits of group service, and specific clinical examples of mutual aid groups. Each chapter offers detailed case materials that illustrate both group work skills and developmental issues for a variety of populations and settings, including HIV-positive and AIDS patients, the homeless, and perpetrators and victims of sexual abuse and family violence. New chapters in this completely revised and updated third edition illustrate the power of mutual aid processes in dealing with children traumatized by the events of September 11, adult survivors of sexual abuse, parents with developmentally challenged children, people with AIDS in substance recovery, and mentally ill older adults.
This book provides a framework for approaching ethical and policy dilemmas in research with human subjects from the perspective of trust. It explains how trust is important not only between investigators and subjects but also between and among other stakeholders involved in the research enterprise, including research staff, sponsors, institutions, communities, oversight committees, government agencies, and the general public. The book argues that trust should be viewed as a distinct ethical principle for research with human subjects that complements other principles, such as autonomy, beneficence, non-maleficence, and justice. The book applies the principle of trust to numerous issues, including informed consent, confidentiality, risk minimization, risks and benefits, protection of vulnerable subjects, experimental design, research integrity, and research oversight.This work also includes discussions of the history of research involving human subjects, moral theories and principles, contemporary cases, and proposed regulatory reforms. The book is useful for undergraduate and graduate students studying ethical policy issues related to research with human subjects, as well as for scientists and scholars who are interested in thinking about this topic from the perspective of trust.
In the past 30 years, the population of prisoners in the United States has expanded almost 5-fold, correctional facilities are increasingly overcrowded, and more of the country's disadvantaged populations—racial minorities, women, people with mental illness, and people with communicable diseases such as HIV/AIDS, hepatitis C, and tuberculosis—are under correctional supervision. Because prisoners face restrictions on liberty and autonomy, have limited privacy, and often receive inadequate health care, they require specific protections when involved in research, particularly in today's correctional settings. Given these issues, the Department of Health and Human Services' Office for Human Research Protections commissioned the Institute of Medicine to review the ethical considerations regarding research involving prisoners. The resulting analysis contained in this book, Ethical Considerations for Research Involving Prisoners, emphasizes five broad actions to provide prisoners involved in research with critically important protections: • expand the definition of "prisoner"; • ensure universally and consistently applied standards of protection; • shift from a category-based to a risk-benefit approach to research review; • update the ethical framework to include collaborative responsibility; and • enhance systematic oversight of research involving prisoners.