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Cognitive disorders take a toll on everyone—the person living with the condition, their family, friends, caregivers, and the communities they live in. Most of the public's interest has been in the medical research area for this devastating disease, and advice is desperately needed from those who have created innovative solutions with their own first-hand experience. Voices in Dementia Care is based on a series of interviews with dementia care experts across Europe and the United States and with people living day-to-day with the condition. It provides an intimate look at the challenges of delivering high-quality dementia care with limited resources. The book provides readers a list of best practices that can be adapted and applied in the home and in institutional settings. Voices in Dementia Care is a must-read for anyone caring for loved ones with Alzheimer’s, dementia, or other cognitive disorders. From Voices in Dementia Care— In these pages, we include transcripts of our interviews with the elder care and long-term care providers we have interviewed about dementia care. The voices of these care professionals are important to hear in their entirety, as they describe the nuances of the challenges inherent in delivering innovative high quality dementia care with limited resources. Based on our analysis of these interviews, we have identified the critical best practices that we believe all elder and long-term care providers should consider when delivering care to people living with dementia. These best practices can be adapted and applied by the informal caregiver as well—the sister, brother, child, or other loved one who may be responsible for caring for a person living with dementia outside of a traditional care environment.
Based on research into ten key areas relevant to dementia, this book offers practical advice and suggestions.
How does it feel when someone you love develops dementia? How do you cope with the shock, the stress and the grief? Can you be sure that you and your family will receive the support you need? In Telling Tales About Dementia, thirty carers from different backgrounds and in different circumstances share their experiences of caring for a parent, partner or friend with dementia. They speak from the heart about love and loss: 'I still find it hard to believe that Alzheimer's has happened to us,' writes one contributor, 'as if we were sent the wrong script.' The stories told here vividly reflect the tragedy of dementia, the gravity of loss, and instances of unsatisfactory diagnosis, treatment and care. But they contain hope and optimism too: clear indications that the quality of people's lives can be enhanced by sensitive support services, by improved understanding of the impact of dementia, by recognising the importance of valuing us all as human beings, and by embracing and sustaining the connections between us. This unique collection of personal accounts will be an engaging read for anyone affected by dementia in a personal or professional context, including relatives of people with dementia, social workers, medical practitioners and care staff.
Forgotten Faces: Family Caregiver Voices takes readers directly into the homelives of actual caregivers to cognitively impaired family members. This captivating nonfiction narrative rotates through the entire caregiving journeys of "Fred," "Janice," "Alice," and "Yvonne," whose wife, second husband, mother, and grandfather were diagnosed with Alzheimer's dementia. Dr. Tiller's personal and professional commentary compliments their earnest firsthand accounts to provide solace for prior caregivers, empowerment for new or future caregivers, and startling insights for their families, friends, neighbors, employers, or policymakers. A portion of Forgotten Faces: Family Caregiver Voices proceeds will be directed to assist caregiver support groups. "Forgotten Faces: Family Caregiver Voices captures the very essence of the limits placed on caregivers and offers an extraordinary view into their world." -KATHLEEN M. WINTERS, MS, LN - Executive Director, Alzheimer's Family Organization "Forgotten Faces is a compassionate look at an imminent problem that will touch most Americans' lives in the next two decades. This book is one you will want to keep as you plan to take care of someone dealing with cognitive impairment or even plan your own care." -ANAND KUMAR, PhD "There is a bonus in this book. Tiller explains the necessary legal documents that must be prepared and signed before the onset of this dementia. His segments on financial planning and the need for long-term care insurance are invaluable." -GREGORY G. GAY, P.A. - Certified Elder Law Attorney
If you are facing the unique challenges of caring for a parent with dementia, you are not alone. What do you do when your loved one so plainly needs assistance, but is confused, angry, or resistant to your help? Where can you find the vital information you need, when you need it? Journalist Thomas Harrison and leading geriatric psychiatrist Brent Forester show that you don’t have to be a medical expert to be a good care provider in this authoritative guide. They explain the basics of dementia and offer effective strategies for coping with the medical, emotional, and financial toll. With the right skills, you can navigate changing family roles, communicate better with your parent, keep him or her safe, and manage difficult behaviors. Learn how to "care smarter, not harder"--and help your loved one maintain the best possible quality of life. Winner (Second Place)--American Journal of Nursing Book of the Year Award, Consumer Health Category Winner (Third Place)--Foreword INDIES Book of the Year Award, Family & Relationships Category
The story of becoming a doctor, and being a son. Jerald Winakur is a doctor who cares for, and about, the elderly. Dedicated and compassionate, he's a surrogate son to many. And yet, all his years of service helping patients and their families adjust to the challenges of aging did not prepare him for becoming father to his own father, who had become as needy as any child. In Memory Lessons--a tender and provocative book--Dr. Winakur writes about what it's like to be medical counselor to countless patients, while disclosing his personal heartbreak at watching his 86-year-old father descend into disability and dementia, his mother at his side. In both of these roles--highly skilled professional and loving son--he finds he is hard pressed to alter a course that devastates his dad and tears at his family. But he does what he can. A doctor who does his best to listen carefully to each patient in turn, who attempts to confront every problem with, as he says, "a reasonable fund of knowledge, a modicum of common sense, and a large dose of honesty," Dr. Winakur knows that there is much we can do by loving and listening. We all search for answers; we all want to do the right thing for our parents, but few of us know what that right thing is. Faced with caring for a growing sea of elders, Dr. Winakur reflects on his thirty years in the medical profession to consider the very personal and immediate questions asked by families every day: What are we going to do with Dad? Who will care for him--and how? These are urgent questions, and they're faced head-on in Memory Lessons with unflinching honesty, hope, and, above all, love.
Betsy Peterson spent fourteen years caring for her husband who was suffering from dementia, an experience that put her in touch with others inside the struggle to have or to care for someone with the disease. A combination of contributions from patients, their families, friends, and caregivers, Voices of Alzheimer's gathers the poignant stories, funny quotes, and priceless encouragement that Peterson heard and that helped her along the way. Capturing the many dimensions of the Alzheimer experience-the challenges, the struggles, the humor, and even the rewards-aVoices presents a varied, and realistic, look at what it's like to be affected by the disease. With compassion, humor, and grace, it offers the simple advice, wisdom, and understanding of others who have traveled the same uncertain path.