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The author carefully explains the loss of various types of memory and other thinking processes. She describes how these losses affect the day to day life of people with dementia, their understanding of the world around them and their personal situations. The many portrayals of real life experiences clarify and deepen the explanations. Jennifer is a nurse who worked for many years as an educator and counsellor for people with dementia and their families, as well as others in caring roles. She addresses the emotional and grief issues in the contexts in which they arise for families living with dementia. This book is intentionally written in easily understood plain language. "Thoughtful Dementia Care" is an expansion of the free paper by the same author, "Understanding the Dementia Experience", which has been widely distributed online and received much praise over the past ten years.
Ghent-Fuller offers insights into emotional reactions and practical suggestions based on deep understanding of the way people with dementia view many situations. She explains the loss of various types of memory and other thinking processes, and describes how these losses affect the day to day life of people with dementia, their understanding of the world around them and their personal situations.
"For the first time, those at the front lines of care have access to a single source for a comprehensive set of practical tools to effectively address distressing and harmful interactions between residents with dementia. This prevalent but under-recognized public health problem in long-term care homes results in serious consequences, including psychological harm, physical injuries, and even death. After examining the potential consequences and manifestations of these behavioral expressions, readers learn how to identify the contributing factors, causes, unmet needs, and triggering events that commonly lead to these episodes. With an emphasis on person-directed care practices, this book describes numerous psychosocial strategies to use for prevention and de-escalation prior to, during, and after episodes of harmful resident-to-resident incidents.This valuable resource will help inform training programs for direct care staff, interdisciplinary teams, and LTC administrators. In addition to cost savings from reduced resident-to-resident incidents, care providers will see significant improvements in resident and staff well-being"--
The first book to provide a comprehensive look at what it's like to have dementia and the subjective experience of living with progressive memory loss. Few families are untouched by Alzheimer's disease or a related dementia. Moving accounts of what it is like to care for someone with this disease have already been published, as well as how-to books that offer caregivers advice and information on coping. But this book is the first to provide a comprehensive report of what it is like to have dementia oneself—the subjective experience of living with progressive memory loss. Each chapter discusses a different aspect of having dementia, from the initial assessment and diagnosis through placement in a nursing home. The discussions are grounded in qualitative research and case studies, which convey the variable and personal nature of the experience. They seek to help clinicians, researchers, students, and caregivers (both professionals and family members) understand the experience of dementia, and thereby to promote better caregiving through a person-centered approach. Contributors: Kathleen Kahn-Denis, Judson Retirement Community; Casey Durkin, a psychotherapist in Cleveland, Ohio; Jane Gilliard, Dementia Voice, UK; Phyllis Braudy Harris, John Carroll University; John Keady, University of Wales, UK; John Killick, University of Stirling, UK; Rebecca G. Logsdon, University of Washington; Charlie Murphy, University of Stirling, UK; Alison Phinney, University of British Columbia, Canada; Steven R. Sabat, Georgetown University; Dorothy Seman, Alzheimer's Family Care Center, Chicago; Lisa Snyder, University of California, San Diego; Jane Stansell, Alzheimer's Family Care Center, Chicago; Gloria Sterin, Shaker Heights, Ohio; Jon C. Stuckey, Messiah College; Robyn Yale, Consultant to the Alzheimer's Association, San Francisco; Rosalie Young, Wayne State University School of Medicine.
People with memory loss due to dementia often do not remember what is about to happen during their day. They may not recognize where they are, whom they are with, nor, when it is in time. As a result of their changing understanding of the world around them, they may develop persistent high anxiety. Learning how to interact with them to keep them feeling secure and calm is very beneficial to both people with dementia and their carers. This book provides a brief, easily understood, orientation to the causes and effects of dementia, assisted by carefully designed on-line search terms, which will lead the reader to explanatory illustrations. Reflective exercises are provided, in order to help the reader to build an empathetic understanding of the emotional context within which the person with dementia dwells. Fundamental interaction patterns are explained. Written by the author of "Thoughtful Dementia Care TM: Understanding the Dementia Experience" (2012).
Psychodynamic Approaches to the Experience of Dementia: Perspectives from Observation, Theory and Practice demonstrates the impact of healthcare approaches that take into account not only the practical needs but also the emotional experience of the patient, their partners, families and friends, lay carers and professional staff. Currently there is no cure for dementia, but the psychosocial and therapeutic approaches described in this volume have appeared to help people, both patients and carers, feel more contained and less lonely and isolated. Psychoanalytic theory provides a disciplined way of thinking about the internal world of an individual and their relationships. Each author provides their own commentary on the personal and interpersonal effects of dementia, endeavouring to understand behaviours and emotions which may otherwise seem incomprehensible. The subject is approached from a psychodynamic perspective, considering the unconscious, previous and current experiences and relationships, including those between patients and staff. Psychodynamic Approaches to the Experience of Dementia illustrates the practical and theoretical thinking of clinicians from a wide range of disciplines who are engaged in the care of people in late life with a diagnosis of dementia. It will be essential reading for mental health and health professionals in practice and training in the field of dementia.
This picture book aims to raise awareness of the impact that dementia can have on an individual and their family in a child-friendly and supportive way. It is aimed at 4-11 year olds and has been inspired and informed by people with lived experiences of dementia. Through rhyme and engaging illustrations this book hopes to start conversations about dementia, in order to help relieve anxieties that children might have about someone close to them who may be living with dementia. The MY HAS series of books aims to help children to understand a range of long-term health conditions whilst promoting an inclusive and diverse society.
"A comprehensive guide for living with, caring for, and supporting those affected by dementia." Embark on a journey to better understand dementia and learn how to navigate the challenges that come with it. This comprehensive guide delves into various types of dementia, their progression, and the early warning signs. It explores the diagnosis process, treatment options, and strategies for managing symptoms, as well as the emotional and practical aspects of care. Discover how to maintain a safe and supportive environment, manage emotional well-being, and provide effective caregiver support. This book also addresses legal and financial planning, driving concerns, and the importance of social interaction. Learn about end-of-life care, the role of arts and spirituality, dementia-friendly communities, and the unique challenges faced by diverse populations. Stay informed about the latest research, advocacy efforts, and ethical considerations, while reading inspiring personal stories from those living with dementia and their caregivers. Learn how to maintain brain health and explore the role of technology, alternative therapies, and the impact of dementia on families. "Dementia: A Comprehensive Guide to Understanding, Diagnosis, and Treatment" is your essential resource for navigating the complexities of dementia care. Whether you are a person with dementia, a family member, a caregiver, or a healthcare professional, this book provides invaluable insights, practical advice, and compassionate guidance for living with, caring for, and supporting those affected by dementia.