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"Cerebral Palsy (CP) represents one of the most frequent neurological disorder in the infancy and in the childhood. It includes brain injuries or developmental defects. According to the World Health Organization, it is a main problem of public health. It may include communication, intellectual, and motor disabilities with negative consequences on children inclusion in daily life and caregivers burden. Rehabilitative interventions are primarily focused on promoting self-determination and independence of individuals with CP. Postural control, gait, and motor skills are usually embedded. Additionally, one may envisage request and choice programs aimed at enhancing the child's awareness of his/her own behavior. The volume summarizes some illustrative evidence-based contributions to emphasize the effectiveness and the suitability of the adopted programs. Beside stability of upper limbs and motor performance of children with CP (chapter one), the therapeutic effects of a horse riding simulator which was compared to a traditional physiotherapy on the sitting position of children with spastic CP (chapter two), the evaluation of stability in children with different form of CP was assessed through a rehabilitative platform was implemented (chapter three). The aforementioned experimental examinations presented between-groups investigations. Furthermore, four case-report studies were included. Assistive technology-based setups were used to promote an active role, constructive engagement, and positive participation of the enrolled children with CP and intellectual disabilities. The beneficial outcomes on their quality of life were considered. Chapter four describes a microswitch-based program to enhance ambulation responses of a child with CP. Chapter five provides a detailed illustration of such program to support locomotion fluency. Chapter six illustrates a cluster-technology aimed at pursuing the dual goal of fostering an adaptive response and reducing a challenging behavior. Chapter seven refers to a computerized system focused on enabling a child with CP and intellectual delays with academic performance and communication opportunities. Whenever available, the effects on indices of happiness and/or positive participation were analyzed. Social validation procedures involving external raters were conducted. Practical features of the retained treatments were privileged. Clinical, educational, psychological, and rehabilitative implications of the findings were systematically and critically discussed. Caregivers, educators, families of children with CP, practitioners, psychologists, speech and occupational therapists, medicine or psychology students, and teachers may find some useful insights for both research and practice in daily life settings"--
A great starting point for parents and professionals when they first encounter cerebral palsy, this book provides essential information on causes, types, symptoms and treatments as well as practical tips on everyday considerations such as communication and diet. This positive handbook will help readers more fully understand cerebral palsy.
Cerebral palsy presents stable encephalopathy that systemically influences on the child's and adult's organism. Orthopedic complications of cerebral palsy possess on the contrary progressive features and those complications cause gradual failure of motor ability of a person: impaired walking, loss of postural ability, reduced self-care and inclusion, finally quality of life becoming much worse. That is why orthopedic aspects are of great importance in children with cerebral palsy. This volume presents a collection of chapters covering a wide range of problems, from a system of universal classification of dysfunctions in Cerebral Palsy and practical issues of prevention of orthopedic complications orthopedic to surgery (diagnostics and quantitative interpretation of gait disorders in such patients, optimal methods of surgical intervention, hip surgery, spinal surgery) and aspects of nutritive status of this specific category of patients, associated comorbidities and their influence and connection with orthopedic problems. Furthermore, three chapters are dedicated to the anesthetic aspects of orthopedic surgery. The substantiation is given to the methods of combined anesthesia and sedation during surgery, as well as in the immediate postoperative period, taking into account concomitant epilepsy, increased intracranial pressure and spasticity in such children.Single-event multilevel orthopedic surgery is a recognized gold standard in ambulatory patients, though it varies according to gait patterns and associated orthopedic problems causing motor disorders. The book contains explanations and methodology of surgeries for conventional gait patterns, as well as in iatrogenic disorders caused by previous unreasonable interventions. The chapter on the correction of deformities and dysfunctions of the upper limb shows the first applied transfer of m.flexor cubitus ulnaris to the radius, which gave extremely positive results both in terms of function and aesthetics.Unfortunately, in Russia the number of CP patients with iatrogenic orthopedic disorders is high. Extremely negative consequences in the form of weakness of the triceps muscles after percutaneous fibromyotomies (so-called "Ulzibat method") or lengthening of the Achilles tendon in diplegia performed before the age of five years and before the development of muscle retraction lead to the development of crouch gait even in patients with high motor potential (GMFCS I, II). This complication of unreasonable surgical interventions develops in 5-7 years after primary surgery and in the opinion of doctors and parents is not related to previous procedures. This book, based on 3D-instrumented gait analysis, shows the features of iatrogenic crouch gait, as well as methods of surgical correction of this difficult situation.The data presented in this book are based, on the one hand, on the personal practical and scientific experience of each author, and on the other hand, the entire team of authors works in collaboration with each other, coordinating their decisions and interventions with colleagues, thus ensuring continuity in treatment of children and adults suffering from cerebral palsy.
The 4th edition of Finnie's Handling the Young Child with Cerebral Palsy at Home has been updated to reflect the current practices of today. It aims to help parents assist their child with cerebral palsy (CP) towards achieving the most comfortable independence in all activities. It is hoped to show how, by using typical parenting skills, which involve guiding and exposing a child to develop through challenging experiences, the child with CP will also develop. The book is also intended to help professionals and other carers new to this field understand, support and encourage young children with CP and their families.Over the years since the first edition of this book was written ideas on appropriate therapies have changed and developed. Similarly opinion on early intervention has changed and the method of delivery of service has in some places moved from centralisation to home-based or community provision. The emphasis of this new edition however remains on a holistic approach to the child's needs seeing the difficulties in relation to the overall development of the child as a unique person from childhood to adulthood. - Assessment procedures and prediction of future abilities - Management of problems (including medication if appropriate) such as epilepsy, constipation, eneurisis, nourishment, difficulty with sleeping, crying, temper tantrums, sensory deficits and deformity - Stimulation, fitness, problem solving, compensatory strategies and ease of management - New chapters include Neuroimaging, Epilepsy, Emotional health, Orthotics, Spasticity management, and Complementary and alternative medicine - Over 460 revised illustrations showing different pieces of equipment which may be helpful and ways of holding and moving a child with cerebral palsy - Chapters on Sleeping, Feeding, Lifting and Carrying, Toileting, Communication and Fine motor movement have been completely re-written by a professional specialising in the particular field
When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday. Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy. The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child. In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading.
"A must-read for professionals, parents, and the individual with CP."-Deborah Gaebler-Spira, MDAn empowering and evidence-based guide for living a full life with spastic diplegia-bilateral cerebral palsy."This detailed and practical book on spastic diplegia, written by a parent in conjunction with medical practitioners at Gillette, is simply brilliant and fills a huge gap."-Lori Poliski, parentCerebral palsy (CP) is the most common cause of childhood-onset lifelong physical disability. Approximately one-third of those with CP have the subtype spastic diplegia-also known as bilateral spastic CP, or simply bilateral CP. An estimated 6 million worldwide have spastic diplegia. Until now, there has been no book focused on this condition to help this large group of people. This book focuses on the motor problems-problems with bones, muscles, and joints, and their impact on walking. The Gross Motor Function Classification System (GMFCS) is a five-level system that indicates the severity of the condition. This book is relevant to those at GMFCS levels I to III: those who are capable of walking independently or with a handheld mobility device. These three levels account for the majority of people with spastic diplegia.The book addresses how spastic diplegia develops over the lifespan and explains the evidence-based, best-practice treatments. It empowers parents of young children, and adolescents and adults with the condition, to become better advocates and co-decision makers in the medical process. The focus of this optimistic, yet practical book is on maximizing activity and participation-living life to its fullest. Health care professionals, educators, students, and extended family members will also benefit from reading this book. Indeed, while this book focuses on spastic diplegia, much of what is addressed also applies to other forms of spastic CP at GMFCS levels I to III, namely hemiplegia and quadriplegia.Written by Lily Collison, a parent of a son with spastic diplegia and a medical sciences graduate, in close collaboration with senior medical experts from Gillette Children's Specialty Healthcare-a world-renowned center of excellence for CP treatment-this is an excellent, long-needed resource for spastic diplegia.
This book provides parents with help for children with cerebral palsy or other developmental delay master gross motor skills beginning in infancy. Organised in the sequence children acquire gross motor skills, this guide explains how motor development unfolds, and how cerebral palsy can affect it.
The Cerebral Palsy Tool Kit was created to help you sort through the initial emotions in response to your child or loved one receiving a diagnosis of CP and to answer your questions and concerns related to CP. It will guide you through the initial diagnosis period, direct you to other helpful resources and provide information to you about the different approaches to treating and managing CP.
Children with complex cerebral palsy (typically, but not always, GMFCS levels IV and V) require skilled management and extensive expertise which can be overwhelming or intimidating for many clinical practitioners. This book explores management of the many medical comorbidities these children encounter, including orthopedic concerns, mobility and equipment needs, cognition and sensory impairment, difficult behaviors, seizures, respiratory complications and nutritional challenges, among many others. Summary points at the end of each chapter provide at-a-glance access to key recommendations. In addition, an Appendix provides adaptable care tools to guide clinicians in evaluation, preventive care and crisis management. Importantly, the book includes contributions from parents of children with cerebral palsy and youth with cerebral palsy, providing unique and critical wisdom for family-centred care. Parents and families of children and youth with complex cerebral palsy will particularly appreciate the inclusion of chapters on adolescence, transition to adulthood, and growing up, growing well with cerebral palsy.
IntroductionDoes your child have a friend, family member, or classmate who has cerebral palsy? Would you like your child or the children in your classroom to understand more about cerebral palsy? Are you looking for an engaging way to start a dialogue about cerebral palsy? I wrote this book to solve these challenges. C is for Cerebral Palsy is a children's picture book in an ABC format. With delightful illustrations, this book teaches typical conditions that people with cerebral palsy might have. The book uses child-friendly language and is narrated by a 6-year-old with cerebral palsy. C is for Cerebral Palsy provides an entertaining way to start a simple educational discussion about cerebral palsy. I invite you to read this story interactively with your child. Encourage discussions of how you or your friends might be like the child in this book. You might compare and contrast how the child in this book is similar or different from a person you know with cerebral palsy. I intentionally chose a child with more significant limitations so you or your child's friends may have more options for movement. I believe knowledge helps break down barriers and encourages kindness and patience. Helping children understand cerebral palsy at a young age is powerful. Reading this book will change the life of your child and the lives of people with cerebral palsy that your child meets now and in the future.