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The authors explore the implications of their study for a childhood model of social disability. They identify and draw out the significance of their findings for a range of mainstream, specialist and statutory providers. It is an invaluable resource for effective ways of communicating directly with disabled children.
Examining the overlooked subject of non-disabled siblings in families where there is a disabled child, this book details the experiences of these children and explores what it means to them to have a disabled brother or sister. The author makes clear recommendations for future practice.
Long-awaited revision of the essential guide for organizing and running support groups for siblings of children with special needs.
Draws on recent research to address key issues in residential child care policy and practice in the UK, offering guidance for developing best practice and improved outcomes for children and young people.
When there's a disabled child in the family, how are normally developing siblings affected? According to Kate Strohm, a counselor and health educator, siblings of the disabled face particular emotional challenges that are often overlooked. Able siblings commonly struggle with feelings of isolation, grief, anger, and anxiety—and these and other emotional issues can have lifelong effects. Being the Other One is based on the author's own experience (as a sibling of a sister with cerebral palsy) and on extensive interviews she conducted with siblings of all ages. In clear and compassionate terms, Strohm explores the often secret feelings of siblings and offers valuable strategies for coping with the challenges they face. Being the Other One reveals the difficulties faced by siblings at all stages of life, from early childhood through adulthood, when siblings must often assume responsibility for the care of their disabled brothers and sisters. Though the book looks honestly at the many challenges that siblings face, it is full of encouragement and practical strategies. Strohm emphasizes that when siblings are able to clearly identify and openly express their feelings and concerns—and when parents and health professionals offer the needed support—siblings can thrive. This book includes writing exercises for personal exploration and a substantial resources section listing helpful books, organizations, and websites.
"Carolyn is in a wheelchair, but she doesn't let that stop her! She can do almost everything the other kids can, even if sometimes she has to do it a little differently"--
Living with a Brother or Sister with Special Needs focuses on the intensity of emotions that brothers and sisters experience when they have a sibling with special needs, and the hard questions they ask: What caused my sibling�s disability? Could my own child have a disability as well? What will happen to my brother or sister if my parents die? Written for young readers, the book discusses specific disabilities in easy to understand terms. It talks about the good and not-so-good parts of having a brother or sister who has special needs, and offers suggestions for how to make life easier for everyone in the family. The book is a wonderful resource, not just for siblings and their parents but also for teachers and other professionals who work with children with special needs. This revised and updated edition includes new sections on attention deficit hyperactivity disorder, fetal alcohol syndrome, fragile X syndrome, traumatic brain injuries, ultrasound, speech therapy, recent legislation on disabilities, and an extensive bibliography.
This collection offers first-hand accounts, research studies and in-depth theoretical explorations of disabled children's childhoods. The accounts oppose the global imposition of problematic views of disability and childhood and instead, offer an open discussion of responsive and ethical research approaches.
This is a book written to celebrate the humanity of people, and to share experiences of what brilliant care and support can look like for families with learning disabled or autistic children and adults. Sara Ryan steers clear of jargon and 'doublespeak' to conjure authentic experiences of families. Speaking with families and professionals, she conveys the love, laughter and joy which binds families and the harsh realities many face; of separation from loved ones, substandard care and frustration and helplessness in the face of inflexible services. From their experiences, Sara looks to capture those pockets of brilliance that families have encountered, and which outstanding practitioners have pioneered, for us all to learn from. We know so much about what support and services should look like in order to enable flourishing lives - this book aims to help families and professionals to achieve it, together.
The story of a boy who struggles to accept his new born sister, when she is not what he expected. But the swifts which swoop over his home help to show him that she is truly perfect. 'Perfect' is a remarkable story about anticipation and disappointment, acceptance and love, and the power of nature in all our lives.