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A New York Times notable book, The Quality of Life Report is the critically acclaimed first novel by Meghan Daum, New York Times best-selling author and winner of the PEN Center USA Award for creative nonfiction.
New York Times Notable Book: A Manhattanite seeks Midwestern bliss and finds something else in this “funny, literate [and] often touching story” (People). Television correspondent Lucinda Trout is unhappy about the superficiality and shallowness of her life in New York, not to mention the latest stratospheric rent hike. Seeking an escape, she proposes a new project: She’ll move far, far away, to the wholesome, most-livable-list town of Prairie City, and send “Quality of Life Report” segments back to the network. But her mental image of the nation’s heartland doesn’t quite match up to the reality she finds. Prairie City may not be Manhattan, but it isn’t Mayberry either—and while housing may be cheaper here, life and love are just as complicated. Now Lucinda has to confront the challenge of truly finding her own place in the world, in the wildly acclaimed first novel by the New York Times-bestselling and PEN Award-winning author of The Problem with Everything. “Daum brings a crisp, wisecracking voice to her novel . . . An admirably nuanced view of the American heartland.” —The New Yorker “Daum’s enormous comic gift—and her ability to use it in the service of fundamentally serious issues—is an unexpected delight.” —The New York Times Book Review “A confident first novel, full of wit and deft social criticism, often very funny and frequently wise.” —Publishers Weekly, starred review “With a keen eye and trenchant wit, Meghan Daum skewers the obsessive narcissism and sense of entitlement that passes for real values in our media-driven culture. Always funny, often painfully so, The Quality of Life Report is more than simply satirical. It is an intelligent and heartfelt tale of a young woman, making radical choices and waking up to her life.” —Ruth Ozeki, author of The Book of Form and Emptiness
For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
The assessment of patient reported outcomes and health-related quality of life continue to be rapidly evolving areas of research and this new edition reflects the development within the field from an emerging subject to one that is an essential part of the assessment of clinical trials and other clinical studies. The analysis and interpretation of quality-of-life assessments relies on a variety of psychometric and statistical methods which are explained in this book in a non-technical way. The result is a practical guide that covers a wide range of methods and emphasizes the use of simple techniques that are illustrated with numerous examples, with extensive chapters covering qualitative and quantitative methods and the impact of guidelines. The material in this new third edition reflects current teaching methods and content widened to address continuing developments in item response theory, computer adaptive testing, analyses with missing data, analysis of ordinal data, systematic reviews and meta-analysis. This book is aimed at everyone involved in quality-of-life research and is applicable to medical and non-medical, statistical and non-statistical readers. It is of particular relevance for clinical and biomedical researchers within both the pharmaceutical industry and clinical practice.
Considers how Americans define the quality of their life experiences, as expressed in their perceptions, evaluations, and satisfactions. Based on research conducted by the Institute for Social Research at the University of Michigan, the book uses data which are representative of the national population eighteen years of age and older, and employs the major social characteristics of class, age, education, and income. The authors cover such topics as the residential environment, the experience of work, marriage, and family life, and personal resources and competence. They also report on the situation of women and the quality of the life experience of black people.
Quality of life studies form an essential part of the evaluation of any treatment. Written by two authors who are well respected within this field, Quality of Life: The Assessment, Analysis and Interpretation of Patient-reported Outcomes, Second Edition lays down guidelines on assessing, analysing and interpreting quality of life data. The new edition of this standard book has been completely revised, updated and expanded to reflect many methodological developments emerged since the publication of the first edition. Covers the design of instruments, the practical aspects of implementing assessment, the analyses of the data, and the interpretation of the results Presents all essential information on Quality of Life Research in one comprehensive volume Explains the use of qualitative and quantitative methods, including the application of basic statistical methods Includes copious practical examples Fills a need in a rapidly growing area of interest New edition accommodates significant methodological developments, and includes chapters on computer adaptive testing and item banking, choosing an instrument, systematic reviews and meta analysis This book is of interest for everyone involved in quality of life research, and it is applicable to medical and non-medical, statistical and non-statistical readers. It is of particular relevance for clinical and biomedical researchers within both the pharmaceutical industry and practitioners in the fields of cancer and other chronic diseases. Reviews of the First Edition – Winner of the first prize in the Basis of Medicine Category of the BMA Medical Book Competition 2001: “This book is highly recommended to clinicians who are actively involved in the planning, analysis and publication of QoL research.” CLINICAL ONCOLOGY “This book is highly recommended reading.” QUALITY OF LIFE RESEARCH
South Africa’s post-apartheid government has been successful in raising the standard of living for millions of people. It has provided them with access to housing and basic services, improved health and education, and developed social services and urban amenities where none existed before. However, there remain many thorny development challenges that government is, at least at present, poorly equipped to address. Consequently, there remains deep dissatisfaction among many residents, which at various times and in certain contexts has led to widespread community protests. This report stems from the premise that data, and analysis thereof, are critical for local and provincial governments in Gauteng to understand where progress has been made and where intervention is required. The City Benchmarking Report presents some key findings from the Quality of Life IV (2015/16) survey at the municipal and provincial levels. The results provide insight into a range of objective indicators such as access to basic services, travel patterns, and economic activity, as well as respondents’ subjective opinions, perceptions and levels of satisfaction. This combination allows us to gain a multi-dimensional understanding of quality of life in the province as well as some of the drivers that improve or worsen it. While there are many aspects of quality of life measured by the survey, this report focuses on specific issues related to municipal service access, satisfaction with services received, satisfaction with the municipality providing those services, and the relationship between access, satisfaction and overall quality of life. Although this report allows government, residents and stakeholders to compare municipalities with one another, its benchmarking analysis should not be read as a competitive scoring of cities, which in turn becomes a basis for municipalities to market themselves as having the ‘highest quality of life’, or to vie with one another over who has the best performance. Some municipalities do better on some variables, but worse on others. The point of this report is to help each municipality understand its own strengths and weaknesses in relation to others and to the broader Gauteng context.
This book discusses the methods used to create quality of the life indexes. It suggests that economic liberty gives a considerably different view of the quality of life and provides a synthesis by combining the life attributes, both physical and environmental into a final set of world rankings.
The volume presents a broad spectrum of papers which illustrates a range of current research related to the theory, methods and applications of health related quality of life (HRQoL) as well as the interdisciplinary nature of this work.