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Provides answers to parents' concerns about congenital heart defects, discussing the various types of problems, their causes and long-term prognoses, the treatment options available, and what parents can do to help their children.
Explains the causes and treatment of heart disease, describes the tests that are used to diagnose the problem, and discusses special considerations in raising a child with a heart defect
"There's something wrong with your baby's heart." Until the day I die, I will never forget those words. For those words marked the beginning of our battle against congenital heart defects (CHD). They came in the middle of my pregnancy as I carried the child I'd wanted all my life. I chose to fight for my child's life, and this story was born out of that choice. Essentially a field guide for parents and grandparents of children facing CHD, this book chronicles all the details of my son's journey. Every test, every surgery, every victory that led him to today. Today he is a beautiful, intelligent, normal child. There are also facts on CHD to help you navigate the often murky waters of the medical community. This is the book that I wanted when we discovered my son's CHD. Through it, may you find the hope and guidance you need to conquer each step of your own CHD journey.
"It's My Heart" is a resource guide for patients and families affected by congenital and acquired heart disease. It is intended to provide information on many of the issues that families dealing with congenital or acquired heart defects encounter. This revised second edition includes updates on the latest advances in medicine that have taken place over the past seven years.
When an expectant parent is prenatally diagnosed with a congenital heart defect, they are faced with an overwhelming wealth of information to comprehend and retain. To help, Terra Lafranchi, NP-C, and the Fetal Cardiology team at Boston Children's Hospital created An Expectant Parent's Guide to Hypoplastic Left Heart Syndrome and Other Single Ventricle Defects. Covers Hypoplastic Left Heart Syndrome (HLHS), Mitral Valve Atresia (MA), Double Outlet Right Ventricle (DORV) and Hypoplastic Left Ventricle, Double Inlet Right Ventricle (DIRV), Right Dominant Unbalanced Atrioventricular (AV) Canal, Tricuspid Valve Atresia, Pulmonary Atresia with Intact Ventricular Septum (PA/IVS) and Hypoplastic Right Ventricle, Double Inlet Left Ventricle (DILV), Left Dominant Unbalanced AV Canal.
This is a pre-operative teaching book to prepare children and parents for heart surgery. The book's narrator, Mr Pump, tells the story of Matty's heart operation with text and pictures. Each page has a boxed explanation for older children and their parents.
A family conquers grief and lost expectations raising their son born with half a heart, while navigating complex medical challenges.
From birth to adolescence, from doctor's office to playground. Written for parents whose child has a heart disorder, this book provides up-to-date and reliable information from medical experts on children's heart problems. The first edition of The Heart of a Child was widely praised for helping families understand and cope with heart disorders, and many support organizations and websites now recommend this book as "must have" for families. Reflecting changes in treatment and new knowledge about genetics, as well as changes in the system for health care delivery, the text and illustrations have been thoroughly updated with the latest developments in understanding and treating heart problems in children. The second edition includes: • New and updated information on the genetics of heart defects, including syndromes associated with heart defects • Descriptions of new approaches to treatment, including surgery and medication • Advice on how to deal with managed care • Information about advances in prenatal care • Updated list of websites, references, and resources for families • A note to grandparents Written by experts in pediatric cardiology from the Johns Hopkins Medical Institutions and the University of Utah Medical Center, this new edition of The Heart of a Child uses case examples, questions-and-answers, detailed drawings, and careful descriptions to explain the causes of heart disorders, how they are discovered and diagnosed, how they affect children, and how they are treated. The overriding principle of modern treatment is to restore the child who has a heart problem to the best possible health with the minimum of tests and procedures. The Heart of a Child helps parents understand the challenges, the options, the decisions—and the many reasons for hope.
This book provides medical information about heart problems that is aimed at parents and other with a non-clinical background; including . It also seeks to help you deal with some of the feelings and problems that come your way as you live with a child who has a heart problem.