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Ami lives on Culion, an island for people who have leprosy. Her mother is infected. She loves her home - but then islanders untouched by sickness are forced to leave. Ami's desperate to return before her mother's death. She finds a strange and fragile hope in a colony of butterflies. Can they lead her home before it's too late?
Returning home from from military service in India, an Englishman discovers he has leprosy and abandons his family and everything he loves rather than expose his family. After years of loneliness, isolation, and longing, he discovers an abandoned baby girl exposed to leprosy who will change him and the hearts of the community.
The glamorous world of a silent film star’s wife abruptly crumbles when she’s forcibly quarantined at the Carville Lepers Home in this page-turning story of courage, resilience, and reinvention set in 1920s Louisiana and Los Angeles. Based on little-known history, this timely book will strike a chord with readers of Fiona Davis, Tracey Lange, and Marie Benedict. Based on the true story of America’s only leper colony, The Second Life of Mirielle West brings vividly to life the Louisiana institution known as Carville, where thousands of people were stripped of their civil rights, branded as lepers, and forcibly quarantined throughout the entire 20th century. For Mirielle West, a 1920’s socialite married to a silent film star, the isolation and powerlessness of the Louisiana Leper Home is an unimaginable fall from her intoxicatingly chic life of bootlegged champagne and the star-studded parties of Hollywood’s Golden Age. When a doctor notices a pale patch of skin on her hand, she’s immediately branded a leper and carted hundreds of miles from home to Carville, taking a new name to spare her family and famous husband the shame that accompanies the disease. At first she hopes her exile will be brief, but those sent to Carville are more prisoners than patients and their disease has no cure. Instead she must find community and purpose within its walls, struggling to redefine her self-worth while fighting an unchosen fate. As a registered nurse, Amanda Skenandore’s medical background adds layers of detail and authenticity to the experiences of patients and medical professionals at Carville – the isolation, stigma, experimental treatments, and disparate community. A tale of repulsion, resilience, and the Roaring ‘20s, The Second Life of Mirielle West is also the story of a health crisis in America’s past, made all the more poignant by the author’s experiences during another, all-too-recent crisis. PRAISE FOR AMANDA SKENANDORE’S BETWEEN EARTH AND SKY “Intensely emotional…Skenandore’s deeply introspective and moving novel will appeal to readers of American history.” —Publishers Weekly
An enthralling debut collection from a singular Caribbean voice For a leper, many things are impossible, and many other things are easily done. Babalao Chuck said he could fly to the other side of the island and peek at the nuns bathing. And when a man with no hands claims that he can fly, you listen. The inhabitants of an island walk into the sea. A man passes a jail cell's window, shouldering a wooden cross. And in the international shop of coffins, a story repeats itself, pointing toward an inevitable tragedy. If the facts of these stories are sometimes fantastical, the situations they describe are complex and all too real. Lyrical, lush, and haunting, the prose shimmers in this nuanced debut, set mostly in the U.S. Virgin Islands. Part oral history, part postcolonial narrative, How to Escape from a Leper Colony is ultimately a loving portrait of a wholly unique place. Like Gabriel García Márquez, Edwidge Danticat, and Maryse Condé before her, Tiphanie Yanique has crafted a book that is heartbreaking, hilarious, magical, and mesmerizing. An unforgettable collection.
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In the bestselling tradition of In the Heart of the Sea, The Colony, “an impressively researched” (Rocky Mountain News) account of the history of America’s only leper colony located on the Hawaiian island of Molokai, is “an utterly engrossing look at a heartbreaking chapter” (Booklist) in American history and a moving tale of the extraordinary people who endured it. Beginning in 1866 and continuing for over a century, more than eight thousand people suspected of having leprosy were forcibly exiled to the Hawaiian island of Molokai -- the longest and deadliest instance of medical segregation in American history. Torn from their homes and families, these men, women, and children were loaded into shipboard cattle stalls and abandoned in a lawless place where brutality held sway. Many did not have leprosy, and many who did were not contagious, yet all were ensnared in a shared nightmare. Here, for the first time, John Tayman reveals the complete history of the Molokai settlement and its unforgettable inhabitants. It's an epic of ruthless manhunts, thrilling escapes, bizarre medical experiments, and tragic, irreversible error. Carefully researched and masterfully told, The Colony is a searing tale of individual bravery and extraordinary survival, and stands as a testament to the power of faith, compassion, and the human spirit.
Kissing the Leper is about eyes that see. Jesus once counselled us to "buy medicine for your eyes from me so that you can see, really see" (Rev. 3:18 MSG). Kissing the Leper is about getting our eyes repaired from religious and cultural prejudice so that we can see Jesus in others, especially those that our world discards as "the least." The author has compiled the voices and testimonies of historical and contemporary practitioners to develop a devotional theology of encounter. Specifically, Brad Jersak challenges us to meet and welcome Christ in human form from society's margins to the banqueting table of God.
The story of Father Damien De Veuster who arrived at Moloka'i's remote settlement in May of 1873 to become the first resident clergyman and part-time physician for the leper colony.
In 1924 when thirty-two-year-old Edmond Landry kissed his family good-bye and left for the leprosarium in Carville, Louisiana, leprosy, now referred to as Hansen's Disease, stigmatized and disfigured but did not kill. Those with leprosy were incarcerated in the federal hospital and isolated from family and community. Phones were unavailable, transportation was precarious, and fear was rampant. Edmond entered the hospital (as did his four other siblings), but he did not surrender to his fate. He fought with his pen and his limited energy to stay connected to his family and to improve living conditions for himself and other patients. Claire Manes, Edmond's granddaughter, lived much of her life gripped by the silence surrounding her grandfather. When his letters were discovered, she became inspired to tell his story through her scholarship and his writing. Out of the Shadow of Leprosy: The Carville Letters and Stories of the Landry Family presents her grandfather's letters and her own studies of narrative and Carville during much of the twentieth century. The book becomes a testament to Edmond's determination to maintain autonomy and dignity in the land of the living dead. Letters and stories of the other four siblings further enhance the picture of life in Carville from 1919 to 1977.